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Posted 6/17/2015 7:27 AM (GMT -5)
Hey, all.

I've had chronic Lyme for 3 years (contracted it in April 2012--check your bellybuttons!) and for most of this year (2015) have had the worst rounds yet. During the last streak I was so sick for a month (the huge hangover/feeling flattened by a steamroller, etc.) that I could hardly function physically and mentally.

Ever since, I have had 2 weeks of feeling great, aside from a except for continuing dizziness, horrible headaches, horrible lower backaches, exhaustion and some vomiting. It feels like I have been relieved of Lyme, but I don't know. During this time I stopped my herbal protocol I used for @ 5 wks. (teasel root extract, ashwagandha, and David Wilson's Spirolyd compound.)

I'm wondering if I just went through a big herx, and it will come back? Have had periods of this relief for the past 3 years, and I'm really confused.

Anyone? Thank you so much.
Posted 6/17/2015 10:17 AM (GMT -5)
Have you taken notes of when this happens? Lyme is cyclical.

http://www.ladyoflyme.com/blog/borrelia-lyme-disease-life-cycle-a-cyclic-bacteria

 

Posted 6/17/2015 11:00 AM (GMT -5)
So you say you felt great but were still dizzy with horrible headaches, backaches, exhaustion and vomiting? Geez, how bad were you? I'm just thinking that doesn't sound great, you know?

For me, kind of like Sarah said, it cycles, even the herxes... So, you have to detox and just get through them...knowing that's part of getting well...

I always thought every day I'm herxing I'm one day closer to getting my body back to healthy and strong...it's hard tho.
Posted 6/17/2015 7:44 PM (GMT -5)
sarahm620,

Thank you for the suggestion. It's a great idea, and the blog is very helpful. I didn't realize that cycles could have such disparity . . . felt so good I wanted to think I was over it. Silly me. Due to the necessity to work, I get so exhausted that it's a challenge to keep up with time of day, much less tracking, but I will design something to make it feasible. Thanks so much!

candleinthewind,

Yup, it's been pretty bad. And I know others have it much worse than I.
My thinking is, if I'm upright, able to totter about--without stooping as if I'm 200 years old, not aching in every joint, sharp pains in nerves, leg muscles being stabbed and not collapsing, tremors causing me to drop things, not having my balance spin out in vertigo or tilt like a teeter totter from one side to the other, muscles aching, joints in a realm beyond aching, can think beyond the next second and remember what I did or thought of 30 seconds later, don't have to spend most of the day on the floor unable to get up, can keep food or water down and not lose it immediately, on and on ad nauseum, blah blah blah, I feel like I'm having a fairly good day!

I guess I have a pretty high pain thresh-hold, and continue pushing to work my retail job, out of the terror of not being able to support myself and my three four-legged kids (they help me keep my sanity). And, lol, I was an educator for almost 30 years. That in itself makes anyone resilient!

I appreciate your responses. Thank you so very much. <3 I am looking for help, not pity or sympathy. The people I know think I'm making all this up. I'm an independent cuss, have no emotional or other kind of support system, and have been going this alone for so long. My physician doesn't believe in Lyme. Due to my job I have a very difficult time making appointments for anything, much less finding and visiting an LLMD. It's hard for me to ask for any kind of help, including posting on this forum. But I've realized that if I don't, I could die, and I have three four-legged kids who depend on me (just lost one Sunday night). I think they are what drive me to hope. :-)
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