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Posted 6/26/2015 11:53 AM (GMT -5)
Sooooo I've been in treatment for going on almost two months now.. Believe me, I know that isn't long and I should be patient but I'm extremely confused right now.. Here's a little background for my treatments so far..

I started taking antibiotics/probiotics/nystatin/supplements on 5/12/15. But I had to cut down my dose of antibiotics on 5/19/15 due to a hospital stay for chest pain (side effect of killing the lyme or bart possibly). I was on a lower dose of meds until roughly 2 weeks ago. Now I'm on my full dose of cefdinir.

Then on 5/21/15 I saw a naturopathic doctor who added some natural herbs and banderol to my daily routine. I didn't start those until the first week of June tho.

But this is where I get confused.... ever since getting back on my full dose and also adding the banderol I've literally had so many new symptoms pop up. Is this normal? Why am I feeling 100 times worse now? I've been detoxing like crazy (except for a few days here and there). I'm doing detox baths up to 20-25 minutes multiple times a day, drinking lemon water, using my infrared sauna and also dry brushing.

When will this stop? Is this like a phase?? Is it normal to have new symptoms pop up ontop of my normal symptoms (which got worse btw). I feel like I'm herxing 24/7 or maybe they're just flares.. I don't know!!!!!!!!!!!

HELP! Any advice?!!? I'm trying to keep the most positive mind possible, however it is really hard at the moment!!! :(

THANKS!!!!!!
-Aly
Posted 6/26/2015 12:03 PM (GMT -5)
Aly - I had new symptoms pop up after treatment started, too.

I started treatment begining of July, 2014....and end of August I got shoulder pain and stiffness which I never had. I also now have knee pain that I never had last summer.

A couple months later (after med change) I got finger joint pain.

But, as I continued treatment, my shoulder pain got better - it's not completely gone, now, but a lot better.
My knee pain is still there, though.
My finger joint pain is much better, too now.

I don't think mine was from herxing...it's almost like the treatment 'stirred' things up. It could also be a co-infection coming to the forefront.

I'm curious to hear what others say.
Posted 6/26/2015 12:10 PM (GMT -5)
Hey Aly,

I have the same problem. I was on abx for three months and was feeling a bit better, then I had to start an herbal protocol to finish up. And man do I feel like crap!!! All of my symptoms have returned and some are worse than they were before! Especially the breathlessness. I've also had new symptoms crop up, like intense ear pain, jaw pain and shoulder pain. I'm always afraid I'm having a heart attack or something.

It's hard to tell whether these are symptoms of the infections or if they are really bad bad bad herxes. I keep detoxing, but it doesn't seem to do much either. I called my dr today to talk to her about it and ask her what she thinks I should do. But I'm afraid she won't know either.

It's a scary thing to go through. I'm sorry to hear that you are suffering like this too. Maybe you should call your dr. just to set your mind at ease?
Posted 6/26/2015 12:16 PM (GMT -5)
"But this is where I get confused.... ever since getting back on my full dose and also adding the banderol I've literally had so many new symptoms pop up. Is this normal? Why am I feeling 100 times worse now?"

You are herxing. This is completely normal.
Posted 6/26/2015 12:34 PM (GMT -5)
girlie - I'm having joint/muscle issues right now.. never had it before..

wildmoonchild_5 - I'm just the way you are. I'll let you know if I hear from my doc, please let me know if you hear from yours..

sarahm620 - a 24/7 herx?? That doesn't seem normal. But I'll double check with my doctor as well. Thanks!
Posted 6/26/2015 12:35 PM (GMT -5)
You could try adding in a few more detoxing methods. Are you taking a binder? What about using something like Nutramedix burbur and pinella. (is it neuro issues?)

If the detoxing isn't enough...and the herxes aren't abating somewhat, you might have to lower your dose...until the herxes subside...and then try raising again later.
Posted 6/26/2015 12:49 PM (GMT -5)
The reason I say it's herxing is because that is the experience I have had. Yes, sometimes it can last for days. You can DEFINITELY get new symptoms because you are waking up the bacteria.
Posted 6/26/2015 12:59 PM (GMT -5)
When I backed off on my meds - which I have done for herxes before, my shoulder symptoms did not get better....so I figured it wasn't a herx...but a new symptom - perhaps a co-infection, as we've only used antibiotics for lyme so far....for me, time will tell, I guess.
Posted 6/26/2015 2:01 PM (GMT -5)
I agree with Sarah - you're herxing. Sorry.

When I started treatments - any of them that were effective - I herxed for 3 weeks straight - 24/7 - but then I was able to get on top of my detoxing needs and things started settling down.

You should be using every detoxing method that you can right now - the more detoxing pathways that are being used to their full potential the better off you will be.

If it's too intense, back down on your dose of Banderol as that is likely what pushed you over the edge and into a hard herx. If that doesn't ease things up in 3 or 4 days, then back down on your dose of abx for a few days so that your body can catch up to it's detoxing needs.

I hope you feel better soon!!
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