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Posted 7/7/2015 3:51 PM (GMT -5)
So after speaking with different members on this forum as well as different lymies.. I've come to the conclusion that my protocol is NO WHERE NEAR where it should be with the amount of symptoms and severity of my symptoms that I have right now. I've tried to contact both of my doctors in regards to my concerns and they both brush me off. I know this has nothing to do with my anxiety, but my symptoms are getting worse.

Since my body isn't handling the antibiotics well I'm thinking of doing an herbal protocol on my own. Babesia and Bartonella are my worst issues right now and I really really need help treating them. I've had a kind member really help me out with potential protocols but I really just want to find a doctor that'll treat this aggressively.

Am I wrong for feeling like my best interest is not being tended to right now. I'm scared. I'm getting worse. My symptoms are getting worse and I don't know what to do. Could anyone, veteran members, new members, moderators or anyone email me with suggestions to doctors or let me know if this is something I can treat by myself..

I'm getting to the point where I'm considering ending my misery. I've never been suicidal before in my life. But I can now understand why people do it. I was always a happy person and that person has died so why shouldn't I. I'm sick of suffering. I cannot live like this any longer. God help me.
Posted 7/7/2015 3:55 PM (GMT -5)
Alyrose - Some people have had no other choice but to treat on their own. If you do something like the Buhner herbs, his protocol is on the website.
You can also buy his books, they're not too expensive.

Or you can do the Chronic Tonic - Traveler could help you with it.

I am so sorry you are suffering!! Please don't do anything drastic. Things will get better...

Do you live alone? Do you have somebody close to you that you can lean on for support?
Posted 7/7/2015 4:03 PM (GMT -5)
I had to move back with my mom because I'm so sick. She called me today crying because she witnessed the panic attack I had last night and was so scared by how bad I'm getting
Posted 7/7/2015 4:05 PM (GMT -5)
Do people heal on their own?
Posted 7/7/2015 4:08 PM (GMT -5)
Do you feel a constant panic attack going on? I had this and it was terrible, I know what you're going through. Once I started treating babesia, my panic attacks went away. What are your panic attacks like? Any symptoms that you feel? or is it just mental?
Posted 7/7/2015 4:10 PM (GMT -5)
Yes, people heal without antibiotics and sometimes without a LLND or LLMD.

Traveler used the Chronic Tonic (twice)...and i don't think she had a LLND or LLMD - I know she was treated by a TCM DR. but don't know if that was prior to her Chronic Tonic days.
Posted 7/7/2015 4:10 PM (GMT -5)
I feel a rush of adrenaline. Like I need to keep physically moving around. I also get really flushed, my left face gets swelled and numb. It's bad. I'm at a loss right now. Idk *** to do.
Posted 7/7/2015 4:13 PM (GMT -5)
I had a practitioner help me, but I had to teach her about Lyme and company - but I did treat on my own with no doctors guidance at all with my reinfection last year, although that doesn't really compare with what you are dealing with, since I knew what would work for me, how to use it and what to expect from my body mostly.

There are others that have done it completely on their own though - although this is rough as there will be questions that come up or you may need to get some blood testing done to check your liver or other things. Not really something I would recommend unless you had no other choices.

Why don't you email me so I can talk to you openly about who you are seeing and if there is a LL doc that I can say nice things about that's near you? Of course there's no guarantee that I can help you find a good doc, but I do have some suggestions.

Whatever you do, don't do anything drastic though!! You can and will heal from these infections - no matter how impossible it may seem now. You can't allow yourself to not check into every possibility for healing - you deserve at least that much!!
Posted 7/7/2015 4:13 PM (GMT -5)
I'm 25 and I'm feeling like I have no purpose in life right now. I'm
Sorry to be a Debbie downer but I'm done. I'm done with this guessing bullcrap. None of my docs are taking me seriously
Posted 7/7/2015 4:16 PM (GMT -5)
Trav - I emailed you
Posted 7/7/2015 4:16 PM (GMT -5)
That was what my panic attacks were like exactly. My mom would tell me to sit down and drink some tea and calm down. I would pace around the house because I had to keep moving, such an uncomfortable feeling. She didn't understand that I couldn't help it and that it was a symptom. I know what you're going through. Like nothing else in the world matters, feeling extremely desperate and like it's an emergency.

I also felt AWFUL when I would wake up in the morning, like absolutely terrible. It was like my muscles were so tight and sore but it felt much worse.

These symptoms have all but gone away. Antibiotics always helped these panic attacks for me. But I'd look into treating babesia because I think that is what is caused this exact symptom for me.

Post Edited (DazedPete1) : 7/7/2015 3:19:08 PM GMT

Posted 7/7/2015 4:21 PM (GMT -5)
Are you treating babesia? If so, with what? & is it helping?
Posted 7/7/2015 4:26 PM (GMT -5)
Im treating my babesia with clindamycin/quinine. It is an old combo used for malaria but some docs prefer malarone or mepron with azithromycin as a more current protocol. My doc says in his experience, the clindy/quinine combo is far more effective if you can tolerate the side effects.

Yes it's definitely helping. My air hunger is improving, and I sometimes herx with these panic attacks and hot flashes but I can tolerate the panic attacks knowing it is just a herx.
Posted 7/7/2015 4:31 PM (GMT -5)
A panic attack is the abrupt onset of intense fear or discomfort that reaches a peak within minutes and includes at least four of the following symptoms:

Palpitations, pounding heart, or accelerated heart rate
Sweating
Trembling or shaking
Sensations of shortness of breath or smothering
Feelings of choking
Chest pain or discomfort
Nausea or abdominal distress
Feeling dizzy, unsteady, light-headed, or faint
Chills or heat sensations
Paresthesia (numbness or tingling sensations)
Derealization (feelings of unreality) or depersonalization (being detached from oneself)
Fear of losing control or “going crazy”
Fear of dying
www.adaa.org/understanding-anxiety/panic-disorder-agoraphobia/symptoms

Not being able to sit still isn't a panic attack - it's something that we go through, but not the same as a panic attack.

I think the not being able to sit still thing has to do with the effects on our nervous system - more of a nervous energy that just won't quit. I used to pace a lot - now I only do it when I'm on the phone and need to be thinking a lot (LOL!).

I used to also start shaking/trembling so severely that I would literally "bounce" right off of whatever I was sitting/laying on. This happened in several doc's offices, and no one had an answer for that either - it's not seizures though. These were only something my muscles would go through - then I was completely exhausted for the next several hours.
Posted 7/7/2015 4:35 PM (GMT -5)
Based off of those symptoms I definitely had another panic attack
Posted 7/7/2015 4:41 PM (GMT -5)
Definitely look into babesia. I know those panic attacks all too well. They happened to me daily in the mid-late afternoon, right around 4pm or so.
Posted 7/7/2015 4:42 PM (GMT -5)
Well, it's good to know what you are experiencing!! I'm so sorry though. Is either of your doctors willing to prescribe an anti-anxiety med? The right one can help control those for you until you heal enough for your body to deal with things better.
Posted 7/7/2015 4:48 PM (GMT -5)
My one doc prescribed me Valium, but I filled a prescription for diazepam (generic version I guess)
Posted 7/7/2015 4:50 PM (GMT -5)
Yes diazepam is the drug name for Valium - have you tried it yet?
Posted 7/7/2015 4:57 PM (GMT -5)
No, I was scared to. But, obviously I need to.
Posted 7/7/2015 5:34 PM (GMT -5)
Just start off on a low dose and raise it up slowly until you are at the prescribed dose - unless you still feel an "extreme" need - you know what I mean, like you are going out of your mind due to anxiety - then start on the dose prescribed. You should feel a bit more relaxed after it's taken affect.
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