I began treatment for Lyme last September. So, almost a year ago. I am currently 0% better. I have tried.....
9 months of heavy duty orals........ 0% improvement and 0 herx (except anxiety with rifampin and depression with doxy)
3 months of Buhner herbs......0 improvement, 0 herx
3 months Jernigan protocol....0 improvement, 0 herx
3 months Cowden (banderol, samento) .....0 effect
I had a PICC put in. My current protocol is....
......5 weeks so far IV rocephin, 2 g, 5 days on, 2 days off
......2 weeks so far IV flagyl, 500 mg, 2 days a week
......oral rifampin 450 mgs, 5 days on, 2 days off (4 weeks so far)
I've seen zero action with the exception of a bad anxiety day after starting rifampin. It blew over in one day. I have made no improvements.
Yesterday, I felt terrible. I do today as well. I'm not sure if this is finally a herx 5 weeks into IV treatment. I have terrible diarrhea (sorry, tmi) I feel very weak, and foggy. I just want to lay down. I feel kind of fluey and out of it. A little nausea and anxiety as well. I just feel worse than my normal crappy baseline.
Could it take 5 weeks to herx? Or, is this a toxic reaction to the meds. I just want to veg on the sofa all day. I really feel run down and awful.
I wish I had better news to share, especially for those who also just started IV. I have read in several places that it can take 3-4 months or longer to notice improvements....even on IV's. So maybe 5 weeks isn't that long of a time.
I'll be sure to post if I see success.
Post Edited (Utahgal) : 8/19/2015 6:36:28 AM (GMT-6)