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Can't escape the mold!

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Lyme Disease
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Posted 9/21/2015 10:08 AM (GMT -5)
Hey everyone...

I just need to vent/feel understood I guess.

My lyme treatment was going great - stopped herxing with my venom injections - doc's energy testing indicated that it's pretty well under control...problem is my doc who I like very much doesn't really believe that detoxing is much of an issue...so I've been taking a hiatus from her for a while to work with a naturopath and an energy healer, both of which think that mycotoxins are the bulk of my problems right now.

After growing up in a flood zone with a house that got moldy all the time, working in an office so moldy I could barely stay conscious in it, and then living in a moldy apartment...I thought I was finally free from mold toxins when out of desperation my boyfriend and I moved into my parents' new house to save money for a place of our own one day.

Except now I find out that they also have a mold problem, but despite knowing that such a huge portion of my disability is from mold...they don't intend to do anything about it! It's just really frustrating and heartbreaking for me - I got sick when I was 10 and my family refused to make that a priority/even believe it...I've been begging them for help for so many years and there's so much emotional abuse on top of it...

I'm just frustrated and angry and hurt and scared - I work so hard to try to get back on my feet and it's my own family that's constantly getting in my way! Every time I go away for the weekend I come home and the house smells horrendous, the wall in my mother's bathroom is falling apart from water damage...she wants to renovate the bathroom not because the mold is a problem but because she just would prefer a walk in shower and a nicer floor - meanwhile she "can't afford" to do anything about it because she chooses not to work...and here I am trying so, so hard, in PT 4 times a week for years to just get a part time job or anything just to be able to support myself.

I just feel trapped - I can't get out of here until I'm healthy but I can't get healthy until I get out of here - story of my life!

Just needed to vent about the heartache I guess - I'm trying so hard to have faith that it'll all be okay and I've got the most supportive boyfriend of all time and even sick and poor we're happier than most...I just wish the people who were always supposed to look out for me would stop getting in my way!!!!
Posted 9/21/2015 10:34 AM (GMT -5)
I'm so sorry. What about the boyfriend's parents house? Or can you get an air purifier for the room you are staying in so at least you have 1 safe place?
Posted 9/21/2015 2:25 PM (GMT -5)
Welp, if their new house has mold, then my old house definitely has it. May seem like poor logic, but I'm not going off that alone. Certain smells just seem off to me, irritate my sinuses, give me tingly sensations in there. Sometimes, they ache too.

Also, recently, to make matters worse, some sort of defect in our roof, the shingles, has allowed for the rain to leak in a little spot along a support beam in one of the rooms. It only happens during heavy downpours, but.. still. My grandmother's got someone lined up to fix it. Though, considering there's probably mold growing up there, along the path, we've still got a serious issue on our hands, huh? I feel like that'd be a safe guess.

So, that said, the general outline I'm getting is that, to be free of it, you either gotta get your house cleaned entirely, "remediation," which, no doubt, a lot goes into, as far as time AND money, or pack up and move. My research on the matter's limited, but I'm really doubtful that we could afford that.

I could never convince her to pack up and move either, 'cause, one, doubt she'd believe the seriousness of it, if I tried to convey, and, two, she's old. Her and my grandfather bought the house in like the 60's. She ain't leaving. lol

I'd say, let's give fixing it a try ourselves, but I don't know anything about carpentry to be tearing our roof apart to get at it.

Too expensive to move as well. I'd hoped to be able to get back into school, get a little education, work my way into a decent field, earning me more money, then get a little more education, then more advancement followed by even more money, and keep building. So on and so on.

I could not get a job to make living on my own and affording treatment a reality right now, unless I started putting in like 50 - 60 hour weeks, which would just be even more damaging. I barely make it through half of that.

But, anyway, sorry to be ranting about my crap. Mold's been on my mind this morning, saw your post, and.. yeah. Totally know how you feel.

Some of my most-used phrases:

"It's always something."

"Too many problems, so few answers."

"Give me a ****ing break." lol

Funfunfun, life.. huh?
Posted 9/21/2015 3:06 PM (GMT -5)
Peteza – boyfriend’s parents’ house isn’t an option – they already have way too many people living in that house. This was my very last option – my disability payments are too low to even afford to meet my basic needs without having to pay rent – even living in the cheapest place we could find he was losing money because I couldn’t pay my share. And stupidly with the way they calculate benefits I get even LESS money if I live in an apartment – the way it works is literally this: because they don’t give me enough money every month to pay EXACTLY one half of my share of the rent, they won’t give me extra money for rent, but because my rent at my parents’ is only $250 a month, they give me the extra money to pay my rent. It’s insane.

Mister Mike – I’ve had the testing done, my parents know all about it, my mother even took me to Maryland (we’re in NJ) to see a mold specialist over 10 years ago – he told her flat out that I wouldn’t get better unless they moved. They wouldn’t, so just like with Lyme, when they couldn’t afford the treatment, they basically just decided I was no longer allowed to have the diseases that I have.

Notquiteantonio- the house isn’t “new” – it’s new to them – ironically the reason they moved is because the government bought the out of their house and a bunch in the neighborhood because it flooded so often that it was costing too much to reimburse the flood insurance all the time. Unfortunately my father doesn’t care about literally anything in this world, and my mother just refuses to deal with any problem and just screams and whines whenever anyone suggests that she need to do so.

Luckily my space is downstairs and the mold is upstairs - although my bathroom and the kitchen I spend hours every day in is upstairs - it's getting worse and worse and just smells horrendous when you walk in. I don't know how these people don't value being clean or sanitary or healthy. Then again this is also the same mother who agreed to pay my college tuition (I wouldn't have gone otherwise) and then when she found out how much it actually costs to pay back the loans she's just decided she doesn't want to and now because she won't even pay the minimum payment almost 10 years later the debt is actually higher than when I graduated! And she openly admits that the plan is to pay the minimum until she dies because "they can't go after her then" even though she knows that means I'll inherit the debt.

There are so many ways these people have been nothing but an obstacle in my life...I'm pretty ashamed and disappointed and heartbroken by them but it's what I'm used to - I've managed to make some progress in the last couple months even though I'm living here, so I'm hoping it's possible for that to continue, I'm just afraid that if the problem keeps getting worse I'll be so sick that I can't even get out of bed again.
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