I was diagnosed with Anaplasmosis in 2014 and a few months later with Lyme. I was treated on & off w/doxy for months which never really did much for me. I had IV rocephin for 1 month & oral cephin for 1 month. I was told that I was in the 33% category of patients who did not get better by my infectious disease Dr.
I was off all meds for 2 months and was so sick I thought I was going to die. My pcp was useless & so rude to me that I walked out and vowed that from that day forward I would get better on my own accord. I ordered several supplements and for 6 weeks I followed a protocal that I thought would help me. I became so sick
that I stopped taking them. I made my own appointment w/a Dr. that was 3 1/2 hrs from my home who saw me on a consult basis. He prescribed 500 mg of Biaxin twice daily and 200 mg of plaquenil twice daily. I took this for six weeks and broke out in a rash and had severe swelling all over my body. I immediately stopped all drugs.
I had to find a new LLMD as the one I went to retired shortly after my appointment. I drove another 3 hrs to see another dr who charged $850.00 for 10 minutes of his time and 1/2 hr from his assistant who asked me the same questions I had emailed to them prior to my appointment. I resumed the initial protocol and added 200 mg of penicillan 3 times daily. I took all of the meds for 7 weeks. I felt so sick & coudn't tell if it was Lyme or the medication. I stopped everything in August.
I actually feel OK. I have a few issues-exhaustion at days end, dizziness, confusion & headaches. But it is such an improvement from where I was a year ago that I am certain if I take the combo of drugs again that it will cure me.
I had zero hope of ever feeling just ok a few months ago. The list of what was wrong with me was overwhelming and it caused depression and hoplessness and such apathy & joylessness.
I read so many posts from those suffering so much and my only advice is not to give up or give in to this horrible disease that can rob one of all that life has to offer.
After I started the round of meds in April, I posted that I was hopeful. I still am........
Post Edited (mtlassor) : 9/24/2015 8:27:44 PM (GMT-6)