Help need hope

Please help. I'm suffering so badly today. Seems to come around every 7 days. Wake up depressed, day goes down hill from there. Everything flares, Lyme, POTS. I just need support and hope. Thank you.

Limey- this post struck me as kind of coincidental because today i was in such a bad mood, and I felt my day going downhill as soon as I walked out of the door to go to work.  I was stressed, incredibly exhausted, getting down on myself, and just saw it being a bad day.  I watched a few uplifting and funny videos on youtube to elevate my mood, and it helped.  I also listened to some lectures on lyme by very prominent practictioners in the field, this also helped.  I don't know what your treatment protocol looks like, your diet, your lifestyle, detoxing, etc.  That may all very well play into how you are feeling, but regardless, I think it's really beneficial and important to find something to pick you up when you feel down.  Whether it's calling a family member, friend, co-worker to talk things out, have a good cry or just *****/vent to people about how much this all sucks.  If you can find a way to get your spirits up a little, I think that will help create a better mood for the rest of the day.  I thougt today was going to really suck, but here I am at work, trying to be happy, and no one is the wiser.

Only been treating the Lyme 5-6 weeks. I have POTS so do as much detoxing as I can (can't get hot basically). Dr is sure I have babs but trying to get neurotransmitters under control so I can sleep more than 3-4 hours per night. I've been sick 13 months, probably had Lyme and company for years. Been housebound since January. Just so tired of doing everything every Dr tells me and seeing little improvement. These down days have started since I started the Lyme treatment. I try to keep busy, read funny stuff and that works on better days. Can't really manage phone calls either. My husband is a trooper but not too empathetic. Has anyone else been this bad (POTS, housebound, etc) and recovered? Thank you all.

Thanks, travel. What I needed to hear. Will ask Dr about MTHFR.

Limey I try and focus on the good days and remember them. When the bad ones come I let them run my life and it is usually curled up napping with the tv on for sound.

I have had to learn to pace myself because the good days come and I think of all the things I need to do and then I overdo it and pay dearly for it.

I have done this twice now and I get so mad at myself.

Thank you all. Today is better. You all know how hard this is and I take great comfort that I can reach out when needed and am very, very inspired to hear others have recovered from the same things. Pictureofhealth you sound just like me. Thank you all.