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Posted 12/8/2015 1:43 PM (GMT -5)
help-for the last few months i have been waking up with a tight feeling around my head and pulsating ears, i am waiting for an appointment for a ct scan I've been told by my gp its probably sinusitis,but its beginning to affect me mentally,it seems to be getting worse, i have parkinsons diesease and i don't need the stress has anybody had these symptoms
Posted 12/8/2015 2:27 PM (GMT -5)
Hi westham1966 - welcome to our community!

While I don't have a tight feeling around my head, I do have pulsatile tinnitus. (I can hear my heartbeat in my ears) - I also have a feeling of pressure inside my head behind my eyes...

Both those symptoms have improved greatly since treatment.

How long have you been diagnosed with Parkinson's disease?
Have you ever been tested through the Igenex lab for Lyme disease? And have you knowingly had a tick bite you...or a bulls eye rash?

I know when I first got symptoms, Parkinson's Disease was one thing I thought I might have. I had tremors and stiffness...

I think it's wise for you to be questioning whether you might have Lyme Disease. Not just because of the head symptoms, but other symptoms you have as a result of the PD diagnosis.
Posted 12/8/2015 2:31 PM (GMT -5)
Hi westham 1966!-

Welcome to our community!So sorry to hear about all of your suffering and symptoms. This forum has a lot of friendly and knowledgeable people. I hope you stay around and ask any questions that you might have.

Since you are new here, might I suggest that you look at the thread titled "New to Lyme?...start here!" This is found at the top of the forum. There is a lot of great information including: symptoms, testing, and so much more!

Have you ever been tested for Lyme disease? Unfortunately due to lack of accuracy, these tests can sometimes show that you are "negative ",but that doesn't mean don't have it.

I would suggest that you find a Lyme Literate Medical Doctor (LLMD). They can help you just based on your symptoms.

What are all of your symptoms for Parkinson's? A lot of times Lyme disease can mimic the same symptoms as Parkinson's.

I also feel pressure in my head daily. It feels like my brain is swollen and pressing on my skull. I don' t have the pulsating in my ears, but I have read others here suffer with that. My ears feel like they are plugged daily as if I have water in them.

Hopefully some more people will give you more advice.

Best wishes!
Posted 12/8/2015 4:04 PM (GMT -5)
One of my first symptoms was "stuffed up ears" and I had one heck of a head pain at the back of my head. I always have called it head pain instead of a headache because I have had numerous headaches, including migraines, and this was not what I had. Try telling a doctor that. They still always said I had a migraine. I knew better.

My recommendation is take one of the numerous tests online for lyme symptoms. That is what I did. I ended up on each and everyone as having lyme based solely on my symptoms. Then went to a doctor and said I think I have lyme. He gave me the Labcorp lyme test and I was negative. It was only when I had a LLMD doctor give me the Igenex test that I was still negative according to CDC, but I had lyme. Once I accepted it as truth I jumped on treatment. I so wanted a piece of paper to say I was POSITIVE, but lyme is not a piece of paper. Lyme is how you are feeling.

Welcome, sorry you had to look for us, and most of all research and be your own advocate! No one else will fight for you like you do.

~Annette
Posted 12/8/2015 5:05 PM (GMT -5)
thanks for replying,its reasuring to hear from other people with simular symptons,and getting good advice. thanks.
Posted 12/8/2015 5:11 PM (GMT -5)
my symptoms for pd are hand tremor,little or no expression,poker face.and they can tell by the hand movement when i walk.
Posted 12/8/2015 5:14 PM (GMT -5)
Head pressure for me was horrible! Especially in the front of my head! That symptom is all but gone after over a year of treatment! I would get a Igenix test! Then at least you will know!
Posted 12/8/2015 5:35 PM (GMT -5)
Since there is no cure for PD - what have you got to lose by getting an Igenex Lyme Western Blot IgM and IgG done? Costs a little over $200.00 plus any lab fee you might have to pay.

Three weeks, you get the results.

Lyme Disease can and often does affect the nerves - it's possible your PD symptoms could be LD.
Posted 12/8/2015 5:54 PM (GMT -5)
I absolutely agree with Girlie!

You can get the Lyme test done through IGENEX, and post your test results on this forum. There are knowledgeable people here that can tell you what your results mean. Please don't have a Lyme test done by your regular physician. All too often they test wrong and don't understand how to read the results correctly. (Just my opinion)!

Like PeteZa said- you have to be your own advocate!
Posted 12/8/2015 6:43 PM (GMT -5)
I too would encourage you to try Lyme treatments. I had horrid head pressure, Bell's Palsy (although mine was milder) and intention tremors (which were quite bad for a while), among many other symptoms. And you surely wouldn't be the first person misdiagnosed, or the first person misdiagnosed with Parkinson's that actually had Lyme disease!

There are actually over 300 other conditions that Lyme disease mimics: www.lyme-symptoms.com/LymeMimics.html
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