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Igenex Results -Need Help Please with Interpretation

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Posted 2/1/2016 3:08 PM (GMT -5)
Hi, Just got my son's IGENEX test results and need some help, is he Lyme positive? My son is very very ill, got sick in late August with swollen glands, fatigue, weakness, sensitive to heat, restless legs, cognitive issues, moody, anxiety. All standard lab work through regular doctor has been normal.

IFA, B Burgdorferi GMA 80 (= or over 80 Positive)

Lyme IGM Western Blot IGENEX Positive, CDC negative

18KDA -
23-25KDA IND
28KDA -
30KDA -
31KDA +++
34KDA -
39KDA -
41KDA +
45KDA +
58KDA +
66KDA -
83-93KDA +

Lyme IGG Western Blot IGENEX negative, CDC negative
All bands - except
31KDA IND
41KDA IND

DNA tests not detected

Thank you so much for any insight.

Post Edited (Calimom) : 2/1/2016 1:36:38 PM (GMT-7)

Posted 2/1/2016 3:31 PM (GMT -5)
Hi Calimom,

Can you edit your post to give this a subject like "Igenex Results" so more people will read it?

The 31 band is specific for Lyme disease, and those results show it on both IGM and IGG. So is 93, which he is positive on the IGM for.

lymetwistontherocks.blogspot.com/2011/01/western-blots-what-do-all-of-those-darn.html

You should find a LLMD for your son.
Do you need help? Where did you live?
Posted 2/1/2016 3:39 PM (GMT -5)
Thank you Sarah. That link is very helpful-thank you so much! I do need help as I don't know about any of this. I stumbled on Lyme out of sheer accident. I live in Southern California.

Thank you!
Posted 2/1/2016 3:46 PM (GMT -5)
Welcome to our community, Calimom!

As Sarah has stated, your son should see a LLMD and be evaluated...he certainly has enough showing on those Igenex test results - along with symptoms to be diagnosed with Lyme disease.

To find a LLMD, please start a new thread titled; "Looking for LLMD in Southern California"

Is your son young - that he needs a pediatric LLMD? You could add that : " Looking for Pediatric LLMD in Southern California".

Then enable your email option so members can send you names privately. We don't post names of LLMD's on here - for privacy. We don't want them to be investigated/persecuted for treating Lyme patients long-term.

Also, it would be helpful for you to read through the thread at the top of the page titled: "New to Lyme?..Start here!" It's full of good information - including a section on detoxing ideas.

Your son could start detoxing now...and get on top of the toxins. As once treatment starts, his body will become overloaded with the toxins that are created when the bacteria dies off. Effective detoxing can help alleviate the symptoms that the toxins create.
Posted 2/1/2016 3:55 PM (GMT -5)
Thanks Girlie. My son is 18 and in high school so I guess he may need a regular doctor not pediatric. I failed to mention that. Ok, thanks I will figure out how to enable the email option!
Posted 2/1/2016 3:57 PM (GMT -5)
To enable:

Click on 'my profile' (upper blue bar - to the left)
Click on 'edit profile'
Click on 'show my email address'
Click on 'submit'
Posted 2/1/2016 4:29 PM (GMT -5)
I don't have any LLMD names for Southern California, but you can start by putting in a physician referral request to ILADS: ilads.org/ilads_media/physician-referral/
Posted 2/1/2016 4:36 PM (GMT -5)
Thank you Sarah.
Posted 2/1/2016 7:35 PM (GMT -5)
Calimom I am way up in Northern Cali so I am of no help, but wish you tons of luck. I stumbled on this site and it has been the most helpful in my journey to good health.

Good luck and ask questions.
Posted 2/1/2016 8:53 PM (GMT -5)
Thanks PeteZa. Has anyone had results like this? Just wondering why the DNA is negative. Feeling very stressed about all of this!
Posted 2/1/2016 9:28 PM (GMT -5)
Calimom - I'm thinking that you had the PCR test done? It looks for dna of the Borellia bacteria in the blood sample.
So this is how I understood it: because the sample of blood taken may not happen to have any of the dna in that sample..it will be negative...but if it does show there is dna, then it's for sure a positive.

I'm thinking there are a lot of negatives because the blood sample is a relatively small amount, and the bacteria might not be in that sample...
Posted 2/1/2016 9:30 PM (GMT -5)
A LLMD will accept the Igenex positive Western Blot. - many of us don't get the PCR test done. (I'm thinking most of us don't)
Posted 2/1/2016 10:12 PM (GMT -5)
Yes Girlie it was the PCR, that makes sense about it being a small sample. Girlie , Did you get the IFA- wondering how reliable or customary is that to have done? Thanks, this is all a shock to me still.
Posted 2/1/2016 10:38 PM (GMT -5)
I didn't get the IFA - I didn't have a LL Dr when I decided to test...so I called around and found a LLND who agreed to do the blood draw on the tests I chose. I just did the Lyme WB IgM and IgG.

Your IFA is also positive.

I don't know how often the IFA is done...I know that the WB is the one everyone gets from Igenex (well - maybe not everyone...but just about!)
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