LLMD in NC or SC

sjsc,

Typed most of this and realized you are new to the forum. This first part is from one of the moderators on the forum. Most of the moderators are unable to answer everyone's questions because they have many things going on this week.

After you read that jump down to the bottom and I'll give you a little more info. Sorry, I don't know how to make the links real links.

So here is Traveler's welcome:
"Trav's Welcome message - please feel free to copy and paste all or parts of it to share with others!

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html


For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send Traveler an email by clicking on her screen name or the small blue envelope under her screen name. She may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and she will be happy to share the names that she has.


You can email the Tick-Borne Disease Alliance at medicalinfo@tbdalliance.org​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/


​ You will want to find an ILADS trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.ilads.org/lyme/treatment-guideline.php"



So this is me (gkamom), sorry to say but we have yet to find a single llmd in NC that takes insurance and really no reliable llmd. There was one in CH but she was sick herself, but didn't take insurance anyway.

There are a few others on the forum from NC. teragram and k07 off the top of my head. I know at least teragram was going to visit a doc in VA, but don't know how that worked out. There are a few LLNDs, but none take insurance either and I don't have a name for you. I visited an ND today but she just wanted to sell me her supplements.

There are some support groups that meet in Raleigh and Apex. I know that they have been branching out lately and I think that one satellite was meeting near Asheville. They probably won't give you names via email, but if you are able to attend some meetings you may be able to get a name that way.

We don't use doctors names on the forum because many get called in front of medical boards if they treat Lyme patients. That's why Traveler's message mentions ILADS.

If you want people to be able to send you information you need to go into your settings and turn on your email option. The blue envelope under your name will light up and then people can send you information. You can email me (just click on the envelope under my name) and I can send you a link to the support groups.

As far as trying the cat's claw and having your neuro symptoms get really bad, it may be a combination of doing to much to soon and not detoxing. If you go to the "New to Lyme?" thread (always at the very top) there is a lot to read and detoxing is one of the most important things. There is also a site called tiredoflyme.com that has a lot of info about detoxing.

We tend to have a lot of difficulty with meds (even herbs) and most people need to start slow taking maybe a quarter dose and working up to a full dose. It sometimes is only one drop at a time. Everyone responds differently.

I hoped this helps. Read and post questions. Everyone will do their best to answer questions. Also be aware that this is a mixed group. Some use only herbs and others abx. What works for one may not work for another.

Kim

i know of 2 lyme docs in NC there both in Asheville E-mail me n i will send you both there names and both there websites.

Hi sjsc! I am also from NC. I am currently seeing an Integrative Practice in Winston. They are Lyme Friendly but not totally Lyme Literate, which they told me upfront. They are $200 a visit which was a good deal lower than others so I decided to give it a try. If you are interested feel free to email me and I can share my protocol and other info.

When I first became ill I saw a LLNP in Greensboro. I do feel the integrative practice is better than she was. They are very interested in learning and seem to be open to my suggestions. The main doctor has attended several ILADS conferences recently.

I really haven't searched very hard for a LLMD that takes insurance. I felt like that would be like searching for a needle in a haystack! I did however have a doctor in Ohio (where I'm from) who was considered Lyme Literate that did take insurance. He is moving away from standard ILADS treatment and favors LDI (low dose immunotherapy) instead of antibiotics/herbals though. I personally wanted to try antibiotic/herbal therapy so I chose to go this route, but did do the LDI for a short period.

Have you thought of starting with Japanese Knotweed instead of Cat's Claw? Just a thought. Maybe it would be easier for you to tolerate.

I actually think we are talking about the same people.I am sorry.I wasnt sure if they took insurance or not.I just know of them havnt really went to either yet.

bleepitybleep said...
k07,
I am wondering if you might contact me about your experience w/integrative docs in WS. Think I've had Lyme since 2013 at least and finally was diagnosed w/rickettsia (RMSF) and Lyme by WB this past summer. 20 days of doxy has left me w/dizziness & vertigo for 4 months. Barely able to function b/c of it.
I'm in Greensboro-HP-WS area, but would consider traveling much further.

Thank you.

You will have to enable email so I can email you. I only saw them for a short time so I'm not sure how much help I'll be. I was also positive for RMSF (were you IGG or IGM positive?). I think it must be very prevalent in that area. I lived in Greensboro and got sick the first summer we moved there. I am no longer there - just moved this summer to Ohio.

I know of a few other docs in the area that you may want to research too.

bump for k07