Feeling very low, would love some help

Hi Everyone,

I posted a few weeks ago. Here's an update, please help if you can. I've been battling lyme and BLO (Igenex, Stonybrook and Fry Labs positive) for almost three years now. I've been to two highly regarded LLMDs and been through the antibiotic and herbal rounds. I was doing really well at about 80 to 90% on abbreviated Buhner's lyme and bart protocols.

I got pregnant and immediately made an appt. with my LLMD who put me on Amox (I saw him before I even saw my ob/gyn). I also stopped my Buhner herbs.

I miscarried at eight weeks, that was about 5 weeks ago and it's been holy hell ever since. The worst is this unrelenting headache. It started as a stabbing sharp pain on my left top of head, it's mostly left sided but it does migrate to the right side. Sometimes the back of my head will feel pressure and tightness and sometimes I feel it in my eye sockets. My eyes feel a little funny. I don't really know how to explain it but if I turn my head or look up quickly it takes them a beat to focus. But this doesn't always happen either, maybe twice a day and then goes away. In the last two and a half weeks I had 4 days where the headaches were super mild almost gone and then I had a stressful day with my ailing parents and they are back full blown again. One woke me up at 2am last night.

I called my GP, so freaked out and afraid it's a brain tumor and he sent me to a neurologist . I had an MRI w/o contrast and an EEG, both were fine except a small cyst in my left sinus (btw these don't feel like sinus headaches, I don't have them in my forehead/face). What was strange was that I had an MRI two years ago when my lyme was causing me all kinds of neuro problems and on that MRI the neurologist told me that everything was fine but that I had an arachnoid cyst that was probably congenital. The arachnoid cyst didn't show up on this MRI which I thought was weird and a bit distressing (does anyone have any experience with this).

My big question though is that is this my lyme back again. When I first got lyme I had terrible headaches but they were all back of the head, I don't remember having this ice pick kind of thing and it all migrating so much. It's scarring the heck out of me to be honest and if anyone can help I'd really appreciate it.

Also, I started my Buhner herbs again and am seeing my LLMD in a week. I thought I'd ask you guys since you're all so knowledgable.

Thanks so much

Thanks P so much for you kindness. I got Buhner's new book so I'm going to add Gou Teng as well (if I can find it).

I know I'm supposed to learn something from all of this but I find these infections to be so cruel. The way they mimic all these other horrible things creating so much fear and anxiety.

Did you have similar headaches? (I'm almost afraid to go to sleep).

Thanks for your response Girlie. I also have all over body muscle twitches and vibrations. Sometimes they are very intense and sometimes not but always in the background playing their little symphony.

I'm tired and I've had to take more deep breaths lately but I'm not sure if it's all the anxiety (and yes my anxiety has gone way up).

Anyone else with these types of daily headaches and what did you do.

I've upped my Japanese Knotweed.

Thanks everyone

Thanks PeteZa, I still have the roaming headaches. Can you describe what yours were like? And anyone else out there if you can chime in I'd greatly appreciate it.

Mine was a pain behind by ear and down just a tad. I had it for a very long time. Always on the right side. Some days it was tolerable and then at times I just had tears rolling down my cheeks. That was the major head pain I had. But as a little girl that lymph node area was always swollen with any infection or virus. So it is another of my weak spots.

But for a couple of days I got lightening bolts of pain on the top of my head. I called them that because they were sharp, stabbing and gone as quickly as they came. They made me freeze, hold my breath and wince in pain but gone so very fast. Scary because they came out of the blue and I never knew when they would come.

My biggest fear is having head pain again. Not one other symptom made me cry, well maybe the depression with a load of anxiety had me in tears, but the head pain was horrible and honestly I have a high pain threshold.

I looked back in my notes and I wonder if mine weren't a combo of high blood pressure, swollen lymph nodes and of course, just lyme. Because first I addressed the blood pressure (Hawthorn and Motherwort) then lyme (Japanese Knotweed) and then did the lymph (Red Root). Plus in there was Cat's Claw and Astragalas. Was it the combination of the herbs? Or was it one specific herb?

I know your post was about the headaches, but just wanted to let you know that I have the twitches and vibrations in my body.

Thank you all so much for your input. Jrpsf, I had my hormones tested as I wondered about their role in all of this but they are back to normal. And thank you Project and I agree with you about herbals and abx not fully wiping out these infections. Please let us know how you do with the rife machine, I'm very interested.

I do have other symptoms but they're mild compared with these headaches. They're ice pick like and then pressure and sometimes if I move my head quickly I feel like my eyballs are in a pinball machine. Anyone else with anything similar?

Thanks again CD and Girlie for responding.

Yes!!!

IM an old friend to headaches: tension headaches, aching tenderness where the lymphs are just behind ear, sqeezing like vice-grip over the head pain, sudden lightning bolts, pounding heartbeat in my head w/all over pain, eye socket pain w/forehead pain.. December and January Id gotten a nasty flu bug from my grandson and I had such a strange mushy sensation inside my head feeling w/headaches.

Im currently dealing w/very annoying once weekly sinus and eye socket burning pain that develops into a stinging sensation on top of head. I get the achy muscle tension headaches once per week....

Uhg! Sorry I have no advice on what helps as it depends on WHAT TYPE of headache I may be having. Oh, except keeping vitamin d levels up does help!