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Posted 4/15/2016 8:05 AM (GMT -5)
So I was supposed to see my LLMD last Wed but she's out and I have to wait another 2 weeks. I'm having increased heart palpitations/lymph node swelling/numbness in extremities of late. The feeling is there all day and it spikes up 3-5 times a day lasting a half hour. I'm currently on Rifampin/Doxy. I was thinking of lowering the Doxy from 2x/day to 1x/day to see if it calms down.

The theory is that less abx = less bug killing = less symptoms at least in the short term. Then again if these aren't herxes but are flareup's than lowering my abx may make things worse (which I can't imagine dealing with).

My LLMD is unreachable so I need to make this up for the next 2 weeks. Thoughts? Thx.
Posted 4/15/2016 8:40 AM (GMT -5)
Hi Rikky,

about a month ago, I attempted Rif and Doxy together. I went through a hellish week. So, I decided to stop and revisit that in the future.

Are you on Hawthorne? I have had palps for years now and finally started Hawthorne. It's been a miracle for me.

The only thing I have to offer for the Lymphs is red root. It's pretty efficient too. Oh, and I started doing lymph massages while doing the epsom baths. That has worked well to bring the swelling down. Just search on youtube.
Posted 4/15/2016 8:54 AM (GMT -5)
Leilex suggested just what I took for palps and for lymph.

As for the massage, the video I watched said to do it 50 times and that was too much for me. I should have started out with 10 times and worked up.

Just a helpful hint.
Posted 4/15/2016 9:58 AM (GMT -5)
I am a firm believer in slow & steady. I think when the body gets overwhelmed with inflammation, it seems to end up attacking itself. So I am with you re your thoughts on lowering dosage until you can revisit your doc (tho how does one know if it shoud be the rifampin or the doxy or both?). Serraptase (for biofilms, blood flow/heart) is good, too, if you've not tried.

Post Edited (happyjo) : 4/15/2016 9:06:20 AM (GMT-6)

Posted 4/15/2016 10:57 AM (GMT -5)
Thanks for the replies. The problem with trying all sorts of new things is you have to go slow and steady and I can't do that right now. I was taking a bunch of Buhner Bart herbs but I'm cutting them all out for now to see if I can lessen the inflammation.

For detoxing I'm taking Pekana which I think is working pretty good. The Rifampin is doing wonders for my head inflammation but it could also be stirring up the bugs in my chest. All I can tell you is the Biaxin and Doxy are both having the same effect on my chest which really sucks.
Posted 4/15/2016 11:01 AM (GMT -5)
Only one detox method?
Posted 4/15/2016 12:20 PM (GMT -5)
I would lower the doxy or stop it for a few days...see how you feel.

Also, up your detox.
Posted 4/15/2016 1:28 PM (GMT -5)
The Pekana line of Detox products is excellent. For Lymphatic swelling I've been seeing over and over again recently that the best way to keep those moving is to use a personal trampoline. It was in the Lyme Summit and I've seen it mentioned on TV.
Posted 4/15/2016 1:52 PM (GMT -5)
Silly question but how often and for how long is one supposed to jump?
Posted 4/15/2016 3:14 PM (GMT -5)
My detoxing consists of lemon water, activated charcoal and/or alka seltzer gold, daily epson salt baths, dry skin brushing.

I also have a personal trampoline. I've heard you should start by doing it 5 minutes a day. Just keep your arms swinging around and your feet going in and out. I do jumping jack type movements on it. Not sure if its helping but it sure can't hurt.

I cut the doxy down to 1x a day. I can't cut it in half because its the powdered capsule form. We'll see how it goes. Since Doxy half life is 18-22 hours taking it 1x a day will keep sufficient levels in my system to be effective. I hope its not my Rifampin because that's done good stuff for my head.

By the way I heard a story from a long time veteran nurse who became an expert in treating Lyme patients over the years and she said in every situation where lyme was present Rifampin worked really well. Go figure.
Posted 4/15/2016 4:37 PM (GMT -5)
You can look on Youtube. I saw one doctor recommended starting with 5 minutes a day and building to ten minutes. You only need to jump lightly, nothing fancy. For those with balance issues they are selling mini trampolines (now also called rebounders) with a bar which would provide a nice comfort level.
Posted 4/15/2016 6:16 PM (GMT -5)
You can add apple cider vinegar, it is all natural and good for detox
Posted 4/16/2016 12:15 PM (GMT -5)
Rikky1

I hope you'll consider sticking with Buhner's supportive herbs since stuff like Hawthorn protects your heart....Red Root helps clear lymph fluid and the RBC rouleaux created by Babesia....Japanese Knotweed is a potent anti-inflammatory and clears neurotoxins.

In fact, increasing your dose of Japanese Knotweed could very well help with your current herx.

And, upping your detoxing significantly will eventually help. You need to get ahead of the killing and stay ahead of it - it's our only hope of minimizing herxing.
Posted 4/16/2016 10:35 AM (GMT -5)
My plan has always been to get rid of the dead bugs faster than I kill them. Heck of a lot less inflammation that way. Detox just makes so much sense. Keep the freeways (elimination paths) clean so stuff can get the heck out!
Posted 4/16/2016 11:37 AM (GMT -5)
cd3764 my situation seems a bit complicated at the moment. i've figured out that the doxy or biaxin in the doses prescribed by my LLMD is causing the severe heart palpitations. that's cause i halved the doses and it got much better. now it could be a side effect or too much bug die off. i see my LLMD in 2 weeks so don't want to complicate the diagnosis. i may just need to stay on half dose for a while or switch to something else. one thing i can tell you i'm not getting off the rifampin cause its helping my head issues.

rifampin is also complicating things. if rifampin is helping my head issues which appear to be related to bart (after a year of trying other combos and getting nowhere) then why isn't it working on my chest issues?

i hate these bugs! ;)
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