Detox issues or time to go to MD?

I always ask myself "what do I think the doctor will do?" I contemplate that question and usually end up not going. But, that is because my MD is not lyme savvy.

Because it came on with the vanco, I would assume herx. I would go less vanco and detox more. Let your body catch up to the toxin load.

So sorry I am of not better help. These symptoms sound horrible, especially if your headache is anything like mine. I never found anything that cures the lyme headache and I have lots of experience with headaches.

Feel better soon.

Thanks PeteZa!
That is exactly what I normally say to myself, "what is so-and-so gonna do for me?" but thanks for the reminder. I don't think I'm thinking clearly, so that points to detox issues. I'm thinking it's more detox and less herxing because these aren't my typical bart sx but as with anything, infections and the treatment affecting them cause changes.

My regular home health care nurse hurt her back and is "out"... it's taken me a year to get her up to speed on this treatment and all its complexities. I don't have the energy to talk someone else through it right now.

My LLMD won't be back in town until Fri so if I did seek help it would be to go to ER to rule out encephalitis or meningitis, which I think if present I would be more severely affected... not that this isn't miserable but here it is day 4 and I'm not comatose yet. But that's how we lymies do - we function even though maybe we should really be down and out so I don't always trust my perception of my symptoms. The LAST place I want to be is the ER, but I also don't want to mess with anything in the brain.

Also, the vanco is a very, very powerful abx and is prescribed for c-diff and MRSA and various other infections that typical abx is ineffective for so if I did have meningitis or another type of infection, I think it makes sense that the vanco would manage it, right?

So, if it's not a bacterial issue it's a viral overload, which just has to work itself out. I could increase antivirals but if I'm having trouble detoxing that might create additional problems on the detoxing end.

I agree that the next step is to pull back on the infusions but the pharmacy sends a week's worth in advance and they expire very quickly so I need to be sure of this decision because I will be wasting meds.


Sayyadina -

Thanks for the ideas - I will look into the red root/red sage tincture.

I do dry brushing and I take grapeseed for circulatory support. I don't massage because my hands/fingers are hurting right now.

For regular detox:
- drinking like a fish (water and herbal teas - upwards of 80 oz/day)
- Alka Seltzer Gold
- detox cocktail twice/day: 15 drops ea of parsley, bur bur, pinella and 30 drops ea of burdock root and milk thistle seed
- 1.5 dropper of japanese knotweed twice/day
- L-5-MTHF sublingually for methylation
- bike ride to sweat (every other day although w/ exhaustion lately haven't been too active)
- last thing I do before going to bed is take 4g pure cholestyramine with a chaser of 2 Tbsp bentonite clay and 8 oz water
- and since starting the vanco my bowel mvmts have been regular to the hour (literally 1 hr after I start my BID infusion) and they are more firm and regular, whereas before they would be mushy/or I'd have diarrhea and would be intermittent - so it's improved.

Any ideas are greatly appreciated -

p

Post Edited (Pirouette) : 4/25/2016 11:32:42 AM (GMT-6)

Hi hrz & blueberry muffin -

Thanks for the suggestions. I am definitely going to add a lymph-specific detox component to my protocol. After I see how that goes, I've also been thinking about adding ACV back and/or ITIRES, which is a Pekana tincture--I had taken it for awhile last year then stopped because it had expired and didn't replace it. Might be good to add back in.

I was able to get rid of the headache by drinking some caffeine, which I can't do every day but I desperately needed some relief today. I'm also going to increase the IMN-V-II for the viral load to 2 drops to see if that helps.

One thing at a time... the funny thing is, by the time I figure this out I'll probably be off the vanco.

-p

Venex cream, red root for lymph, pekana, back down on vanco ? Sounds like bart putting up a fight ...have you had panels done latley? Hugs to u

I get those headaches in the back of my neck with Bart....they're really bad and I'm so sorry you're experiencing this. I don't get the node swelling on the outside, but you can feel it if you press around in there under the skin. One thing that helps me to get things moving back there is to use a warm, moist compress - I have one of those bean bags you heat in the microwave and it really helps me. Once the area is warm and the pain starts to subside, I gently rub downwards, clearing the icky stuff and helping the drainage. This usually brings me relief within an hour....it doesn't last forever if I'm having a really bad attack, but I re-do the whole routine when it comes hurling back (it rarely sneaks up - one second I'm find and the next second I'm in excruciating pain).

Now, word of warning, most of the time when I do this I end up getting a terrible, ugly Bart rash where the bean bag was - I believe it really stirs up and pisses the Bart bugs off - they must not like heat. It took me a while to figure out what was going on, but I just figure that if they're that mad about the heat, good, because it must be killing them to some degree or something....let's make their little lives as miserable as they make mine! Ha! The rash goes away in about 12 hours, though.

I hope you get to feeling better,

Jenny

Thanks so much cd & Jenny!

cd -
You're right about the cycling not being the best exercise. Right now, I'm literally using it as my main mode of transportation (so I bike to the store, pharmacy, etc.) not for aerobic exercise, but it's also very warm here so even a little bit of physical exertion brings on sweat. I try very hard to keep it below aerobic activity. It's also not an ideal exercise because I'm sitting and doesn't really include a lot of arm movement... but too much walking and my hips start hurting. I have weights that I try to do every now and then to get my arms going.

Jenny -
I woke up this AM and didn't have the headache and my neck didn't feel like it's on fire like previous days but the nodes are still very swollen. I think I'll try the warm compresses again - they made my headaches worse before but maybe I have a little give there today.

-p