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Posted 4/22/2016 11:24 AM (GMT -5)
My LLND wants me to start on LDI, more to help get my mast cell issue to calm down than anything else. I have my first dose here, but its just sitting in the fridge. Right now, I'm in the process of getting back up to my full dose of alchornea. I ran out in January, and the tincture I bought was bad...so I've been off it. I have been herxing quite a bit, but its fairly tolerable.

I have to be extremely careful about detoxing, since it can bring on an anaphylactic like reaction. I can take daily liver and kidney support herbs, plus methylation support supplements. I also drink a lot of water w/ ACV and lemon juice. Eat a clean, mostly organic diet. Take chlorella. Drink filtered water. I can take 2 capsules of activated charcoal, but then I have to wait a week before drinking detox tea. Detox baths are out completely...I had a very severe mast cell episode after the last one I took. So I'm kinda afraid to start up with those again.

Should I wait until I'm up to my full dose of alchornea before starting the LDI, or does it not matter? I wasn't told to stop anything I'm on...just to take the first dose of LDI and monitor how I feel after.

Some basic info about the mast cell issue and how it relates to Lyme lymemd.blogspot.com/2015/06/mast-cell-activation-disorder-mcad-new.html
Posted 4/22/2016 11:37 AM (GMT -5)
How much alchornea are you currently taking and how long have you been on it?

What is your gut feeling on this? You know your body so much better than anyone. What instinct do you have? I would trust my instinct.
Posted 4/22/2016 1:00 PM (GMT -5)
Are you a member of LDI froup on facebook. There are some with mast cell issues on there. Maybe they could give feedback on how LDI affected them.
Posted 4/22/2016 2:40 PM (GMT -5)
I've been trying to get back on alchornea for 4-5 days now. I'm on about 1/2 a dropper. I tried a full dropper last night and herxed a lot. Herxes aren't much fun on 1/2 dropper. Kinda surprised me, since I didn't get much herx at all the first time I was on it. But even a full dropper wasn't as bad as 1 artemisia can be, as far as herxes go...and I've been on artemisia (3 days on 4 off) for over 6 months now. I'm thinking of just going up to a full dropper twice a day and getting through the herxing. I had been on alchornea for over a year and a half and was off it for almost 4 months.

It's 3:30pm, and I'm pretty much done for the day, energy wise. Did my usual morning stuff and have been watching tv. Kinda want to take a nap, but I know I won't be able to fall asleep when I lie down. Which is the way it always is.

I am in the LDI for Lyme group on facebook. I've just had to deal with too much nastiness from people there (in a couple other groups, not the LDI group)...and I just need a break from facebook.
Posted 4/23/2016 7:42 AM (GMT -5)
Your experience with alchornea reminds me of Bryan Rosner's writings in "Beating Lyme Disease". He said that treatments can sometimes be more effective further down the line than they were when used earlier in treatment.

I don't know how bad your herxes are but, it somehow seems better to slowly work yourself up to the full dropper. No need to kill yourself while trying to kill the bugs.

And, best of luck to you with the LDI!!! I think it would be appropriate for your LLND to clarify whether or not you should be continuing with your other types of treatment.

My understanding is that no abx should be taken when doing LDI. I know some of the herbs you take are anti something and it just seems safer to clarify.

Hope you get some relief soon!!!
Posted 4/23/2016 11:06 AM (GMT -5)
Thanks cd3764.

After a day and a half of 1/2 a dropper alchornea twice a day, things are pretty manageable. Going to finish off today and tomorrow at that dose, and then go to a full dropper on monday.

I take notes during my appointments, since my memory is better but still iffy. I don't see anything in my notes about stopping herbs, and there's nothing in my notes from my LLND about stopping herbs (she knows everything I'm on). I can take a week for her to get back to me, and I'm still waiting on an answer.

I am a little impatient right now, since I want to make sure I'm pretty stable with babesia and MCAD before starting heavy metal detox.
Posted 4/23/2016 11:18 PM (GMT -5)
Have you tried lyme md coctail of antihistamines? ...or considered frequecy medicine...
Posted 4/24/2016 11:10 AM (GMT -5)
I have a funny problem...I'm kinda allergic to some antihistamines. Claritin gives me a rash. Benadryl make my stomach upset and very bloated (the dye free kind).

I've heard of rife machines, but they're way too expensive from what I've seen. X-ray machines, metal detectors and MRIs drive me crazy (extremely uncomfortable), so I'm not into electrical and electromagnetic fields.
Posted 4/28/2016 12:16 PM (GMT -5)
So, I decided to bite the bullet and take the LDI 4 days ago. I went through this 'cycling' of symptoms. The most/worst ones were babesia related (air hunger, chills, etc), then some bartonella and a couple Lyme. I've also had tiny mast cell flares every day for the past 3 days after I take herbs (face gets hot/burns), but that's gotten less each day. Didn't have that happen at all today.

The good news is I think it might be doing what it was supposed to (regulate my immune system, so it doesn't freak out when I take herbs). Bad news is my old Lyme knee is flaring and the wrist injury that had come so far in healing is now an issue again. No real help for fatigue. My gut issues are either getting better or the old gastroparesis is flaring. I am actually experiencing hunger again, which hasn't happened in a while.

I'm almost thinking the fatigue and weakness is a babesia herx. I feel ok, and then the fatigue and weakness kick in after I take my herbs.
Posted 4/28/2016 1:06 PM (GMT -5)
Dang - the up and down ride that this journey can mean!!

The good news is important because it does sound like the LDI is doing what it's supposed to do. Of course, we can all do without the physical/mental/emotional price we pay for that in the form of symptoms.

I'm inclined to agree with you about the Babesia herx - most especially because of the timing of the symptoms and the herbs.

You are very much in tune with your body - you'll get there.
Posted 4/29/2016 4:58 PM (GMT -5)
Sayyadina,I just started LDI today. My LLND started me at a very weak dose (50c) since I have such severe herx reactions to everything. Please keep us posted on how you are doing.
Posted 5/1/2016 1:51 PM (GMT -5)
Thanks.

So far brain clarity is still a lot better. And mast cell stuff has been calmer too. The bad news is my joint pain issues are worse. Wrist is a problem again. My knee and shoulder haven't bothered me in a long time, but they've been very sore the past few days. Fatigue is a bit better, muscle weakness is more of a problem.

I started out with a 17c dose.
Posted 5/1/2016 3:22 PM (GMT -5)
Sayya - you could change to a lower dose to start...and see if you feel better.
Posted 5/1/2016 3:23 PM (GMT -5)
dmw52 - how are you doing? Did you get a reaction at all?
Posted 5/1/2016 3:32 PM (GMT -5)
My LLND said this is a very low dose. Its just a bit of a shock, having all this joint stuff come roaring back. Its been several months (or maybe longer...not good with time) since my knee was this bad. I just tried some DMSO on it per my LLND's suggestion...it helped, but its made my stomach upset.
Posted 5/1/2016 4:07 PM (GMT -5)
The idea is to find the 'sweet spot' with it...you don't want to herx badly on it.

If you find the herx doesn't alleviate within a short time - you could lower it a little for your next dose....and see what happens...maybe not as low as dmw52 (maybe try 20c)
Posted 5/1/2016 4:57 PM (GMT -5)
Girlie, I did have a herx that day, even though my dose was super weak. I felt good the day after but today was not a good day....joint pain everywhere and depression. My LLND is never going to believe I had a herx off of that weak dose. I am super sensitive.
Posted 5/1/2016 5:04 PM (GMT -5)
You are definitely on a low dose, dmw52. It is wonderful that your LLND started you off on such a low dose...just imagine if you'd done the 15c instead!!!!


When do you take the next one? Is it 7 weeks from the first one?
Posted 5/1/2016 5:32 PM (GMT -5)
Hmmm...I don't know yet. I email him and then he will decide. I can't imagine starting with any higher a dose. He said when he first started using LDI he would have started me on 25. I am glad I didn't try it then.
Posted 5/1/2016 5:54 PM (GMT -5)
Assuming LDI works the same way homeopathy does, 17c is a weaker dose than 50c. The link explains how homeopathic potencies work.

www.1-800homeopathy.com/blog/what-potency-should-you-take


And its not really a herx...it feels different from a herx. More like "yeah, there's still Lyme in my knee and they just woke up and are a bit unhappy". The symptom cycling I went through right after I took my first dose was also very different from a herx. More like my immune system being aware of what the issues are, if that makes any sense at all.
Posted 5/1/2016 6:06 PM (GMT -5)
The higher "c" number with LDI is weaker. I started with 17 or 16c, can't remember.

Some are taking higher doses of vit d when they get an LDI flare and it seems to tame it.
Posted 5/1/2016 7:31 PM (GMT -5)
Yes, k07 - the higher number is weaker - more diluted.
Posted 1/27/2017 11:43 AM (GMT -5)
Sayyadina, Just wondering how the LDI worked for you? Any help with MCAD?
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