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Posted 6/27/2016 1:57 PM (GMT -5)
Ok, so I've been on Amoxy and Flagyl for two months. Most of the joint painand, twitching and muscle burning are gone; but the GI issues, chills and headaches are worse. So LLMD is taking out the Amoxy, and adding Malarone with the Flagyl (for suspected Babesia). Anyone familiar with Malarone?
Posted 6/27/2016 3:03 PM (GMT -5)
Girlie is out today with family business but I think she may be getting a script for this today also. You might want to email her.
Posted 6/27/2016 4:37 PM (GMT -5)
Hi,
DS has been on malarone a couple of months, pulsing it with artemisinin. No real side effects that we have noticed. He takes it with a fatty food to help absorption. He says he notices no breathing improvement but he also has mycoplasma affecting his breathing. We wait patiently and will ask about dapsone (spelling?) when we go in again.
Posted 6/27/2016 4:45 PM (GMT -5)
I was on Malarone for 8 months.

Let me know what questions you have in particular.

As yancync said, make sure you're taking it with lots of fat. 20g + of fat per dose is recommended, but the more the better. Nuts are a great easy source of fat to take with your pills/meal.

Also, be prepared that Malarone is expensive. I don't know what your dosage is, but when I was doing 500mg BID, it cost about 5-7 times as much money as any other single prescription.
Posted 6/27/2016 7:01 PM (GMT -5)
Thanks for the warning, Kirky!

Beeperoni - I am hoping to get a script for Malarone - Mepron is too expensive.

I haven't heard of Flagyl being paired with it....but msybe do some research and see what you find out. I haven't done a lot of research on Babesia treatments yet... Still learning.

I have seen Zithromax and biaxin paired with it.

I will continue with my Artemisinin pulsing as it does seem to be hitting something. But want to have a "backup" .
Posted 6/27/2016 7:07 PM (GMT -5)
What are some good high fat foods - I don't like nuts. And I really couldn't find much on taking Malarone and Flagyl together. LLMD wants me to though.
Posted 6/27/2016 7:18 PM (GMT -5)
Avocado, cheese, dark chocolate, eggs (the whole egg), fish like salmon, trout, mackerel, sardines and herring - they are fatty, nuts, chia seeds, Extra virgin olive oil and coconut oil, and full fat yogurt.

I do avocado with cilantro and some lime - bingo on fats and detox all in one!
Posted 6/27/2016 7:21 PM (GMT -5)
Well if you're not sensitive to it, milk it great. It actually suggests taking it with a milky drink in either the Mepron or Malarone monograph. I used to do 2 glasses of milk with each meal, that would get me up to 10g of fat (2% milk).

Cheese
Eggs are high in fat.
Fatty meats.
Avocados
Veggies loaded with melted butter.
My favorite was home-made popcorn with tons of melted butter.
Also peanut butter (not sure if this counts as nuts to you).
Posted 6/27/2016 11:29 PM (GMT -5)
Hello, Beeperoni
My son and I have both been on (and continue to be on) Malarone with Flagyl (8 mos for him, 3 mos for me). We are on a pulse program (2 weeks on, and 1 or 2 weeks off; plus MWF sort of thing). The Malarone is done on the core days along with most of the other abx -- and the Flagyl is added in on the ThF on one of the 2 weeks. The other abx have been alternated / varied, but cefdinir is the core one taken with the Malarone throughout this time. We've both been pretty good on the malarone; flagyl seems to result in some pretty vivid and whacky dreams. The whole combination of things did a phenomenal job in months 2-4 of shaking out a lot of my son's day/night sweats.
(Interesting username Beeperoni...a story?)
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