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FINALLY! Blood test results from IGENEX are in! Bicillin, Bactrin, Zithro, Malaron

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Posted 7/8/2016 1:05 PM (GMT -5)
Since my last post I had booked an appointment with an LLMD in NYC. He had said it sounded like I definitely had Lyme Disease as well as either babesia or Bartonella co-infection. He took a ton of blood and sent it to Igenex and 4 weeks later voila! The test are as follows:

Igenex IGM Result: POSITIVE
CDC/NYS Result: POSITIVE
18 kDa. -
23-25 kDa. +
28 kDa. -
30 kDa. +
31 kDa. -
34 kDa. -
39 kDa. -
41 KDa. ++
45 kDa. -
58 kDa. -
66 kDa. -
83-93 kDa. IND

Igenex IGG Result: NEGATIVE
CDC/NYS Result: NEGATIVE
18 kDa. -
23-25 kDa. -
28 kDa. -
30 kDa. -
31 kDa. IND
34 kDa. -
39 kDa. -
41 KDa. +
45 kDa. -
58 kDa. -
66 kDa. -
83-93 kDa.-

B. Mictroti: NEGATIVE
B. Duncani: NEGATIVE

B. henselae <20
B. henselae 80 (POSITIVE)

I cried tears of relief when I got a positive result, up until now I felt like people thought I was making it up and there were times where I would wonder if I was doing it to myself or even going crazy. So YES! I am Lyme positive and have a Bartonella co-infection as well.

The dr prescribed antibiotics for me but I have to have surgery next week to remove my nasal polyps before starting. Can anyone tell me if they have taken any of these and how well it worked for them as well as any side effects? I know every body is different and will react differently but, just so I have an idea.
Thanks!

These are the antibiotics he prescribed:
Bicillin L.A. Injection twice a week once in each buttock for 12 weeks
(it was this or a IV treatment for 3 months and I opted for the shots)

Bactrim 800 mg 1 pill 2x daily 8 weeks
Zithromax 1x daily for 8 weeks
Mepron 750 mg (5ml) for 8 weeks (I am taking malaron instead due to my insurance not covering mepron)

Thank you so so much in advance!
Posted 7/8/2016 1:45 PM (GMT -5)
Congratulations on your diagnosis, Kay! Now you know and can proceed with treatments! turn

Did your doc talk to you about probiotics? You will need to be on a good one with as many strains as you can afford. Many people find they need at least 30,000 units a day of a really good probiotic to help keep things okay in our intestines.

I've not used any of those abx, but I can tell you to not start them all at once, and start off on low 'starter' doses. Too large of a dose and you will really increase your chances of herxing badly. Build up to the full dose slowly to control herxing.

Also be sure you detox, detox, detox! Healing is a careful balance of killing and detoxing. Each of us requires different amounts of detoxing, so you will have to increase what you do for detoxing until you find the right balance.
Posted 7/8/2016 2:01 PM (GMT -5)
Hi kay0313!-

I am so glad that you have tested positive!!! At least you know what you are fighting now!!!

When I tested positive, I was also very happy. I also no longer felt "crazy"! :)

If you haven't , please take a look at the"New To Lyme?.... Start Here!" thread at the top of this forum. It has a lot of great information about probiotics (you will really need these because of the antibiotics), how to detox (got to get rid of the toxins from killing the bacteria), and so much more helpful information.

I hope that your surgery goes well with removing the nasal polyps. Please keep in mind that a surgical procedure might "stir" up more Lyme symptoms. I am not saying this to scare you, or to not have the procedure done. I am just saying that you might feel worse after the procedure.

I am happy to hear that you are seeing a LLMD! YAY!!

Are you going to be starting this protocol all at once? It sounds like a lot of attacking for the Lyme, Bart, and Babs all at once.

I know that you are excited, and want to get rid of all of your symptoms as soon as possible. I just don't want you to have a serious herx!

Please start with detoxing as soon as possible!! And use multiple ways!

I hope you stay around. There are a lot of friendly and knowledgeable people here. We all try to help each other as much as we can!

Best Wishes!
Posted 7/8/2016 2:04 PM (GMT -5)
Ha ha ha! Looks like Traveler pretty much covered it, while I was posting. :)

She is a lot faster at typing than I am. :)
Posted 7/8/2016 2:10 PM (GMT -5)

Little Bear (LB) said...
Ha ha ha! Looks like Traveler pretty much covered it, while I was posting. :)

She is a lot faster at typing than I am. :)

Ha ha ha, Little Bear!! I've been doing this for a while. You're really helpful here too, thank you!!
Posted 7/8/2016 5:08 PM (GMT -5)
Take lots of fat with your Malarone.

The more fat you take with it, the more Malarone is absorbed into your body (up to 5x more with 23g of fat vs no-fat).
Posted 7/8/2016 6:10 PM (GMT -5)
Kay wishing you much success in your treatment! I know it feels good to finally have proof.
Posted 7/8/2016 9:53 PM (GMT -5)
Kay, avocado is a good healthy fat - FYI
Posted 7/9/2016 9:22 AM (GMT -5)
Thank you all!
Yes! I'm so sorry there were a few details I forgot to mention as I was so excited while typing everything out. He told me to start the Malarone (with food/fat) and then on the 5th day start the Zithromax and on the 8th day take the bactrim. I am assuming I start the bicillin shot when I start the malarone. He gave me a list of nutritional supplements to take with my antibiotics from Research Nutritionals (those things are expensive!) I feel like some of them I don't necessarily NEED but I feel if he's treating me and recommending them to me I should just take them as he knows best and I want to get to feeling better ASAP!

These are the supplements he recommended as well, for the inquiring mind ;0)

From Emersonecologics:
Acetyl-l-carnitine 500mg (pure encapsulations) (Nervous System/Brain)
Magnesium Taurate 125 mg (Ecological Formulas)
N-Acetyl-Cysteine 600mg (pure encapsulations)
Pregnenolone 150mg (allergy research) (memory and mood)

From Research Nutritionals:
Artemisinin SOD (Immune)
C-RLA (Liposomal Vitamin C & R-Lipoic Acid) (Antioxidant)
CogniCare (Cognitive Function)
Prescript-Assist Pro (Probiotic) **This is the only probiotic recommended, would I need more?**
Transfer Factor Multi Immune (NK Cell Support)
Ubiquinol Super 200 (Antioxidant/Cardio)

As far as surgery, my finace's aunt had surgery on a disc in her neck (shes a seamstress and it had gotten worse over the years) and apparently had Lyme and it had soon put her in a wheel chair. She still isn't 100% but is getting better. She has also helped me with a lot of Lyme information as well. She had been telling me that the surgery she had pretty much just stirred up the spirochetes and that's why she ended up the way she did. So, yes I am a tad nervous about it and my fiance even more so but I did get the OK from the doctor that is doing the nasal surgery to start the lyme antibiotics 3 days from surgery so by next Saturday I will be on the road to feeling better!

Thank you all so much for your kind words and well wishes! I hope you are all feeling well ;0)
Posted 7/9/2016 1:18 PM (GMT -5)
Kay-Did your doctor explain how bicillin injections work? They are not standard injections. The medicine is injected and balls up in tiny balls under your skin so that it can disperse over time. This makes the injection much more painful than a standard shot. I'm not trying to scare you, just prepare you. Personally I would opt for the IV option.
You can do a site search for bicillin injections here and see other users comments. To do that go to just below "join healing well" and type in bicillin injections lyme.
Posted 7/9/2016 1:29 PM (GMT -5)
And remember you can alternate with side and the site in which you inject. I was doing B-12 injections for several months and looked up those things. Heat after the injection may be of help, but I don't know if it would push the bicillin to "open up" sooner, so be sure to ask a good pharmacist, or better yet, your LLMD before trying it.
Posted 7/9/2016 5:21 PM (GMT -5)
Thank you! He in fact did not inform me about the shots. My mother used to work in Dr. Burrascano's office when he was practicing and she knew how painful they were and asked him to write a prescription for licocaine as well. I've had the iv antibiotics for a month and wasn't a huge fan just for the fact that I'm a personal trainer and was informed I can't lift over 10lbs. Also, insurance only covers 1 month of treatment and the other two months would be out of pocket (somewhere around $17,000) the bicillin isn't covered either but I'd prefer to pay $3,400 for that than the $17,000 it's just personal preference. Thank you very much! Any other information you have is greatly appreciated I value all of your input and suggestions.
Posted 7/9/2016 5:52 PM (GMT -5)
Hi Kay, I know the relief of finally knowing what is going on and then to be able to do something about it...I am glad to see you are with an LLMD taking action. Stay on the hunt and learn as much as you can. I have re-read the new to lymes section numerous times, good information and good caring people here.

I dont know what to comment on the costs of healing. I am trying to figure that out too.

All the best and hang in there!
Posted 7/9/2016 7:50 PM (GMT -5)
Kay-I avoided bicillin IM injections due to an error by the nurses at my LLNDs office but I did do other IM injections. I used reusable ice packs to really ice the area of injection prior to getting the shot. The lidocane helps but halfway freezing the area helps even more. After the injection was given I used personal heat pads, the type you would use for camping. I tucked those into the waistband of the pants I was wearing so they laid against the injection site. The heat helped hide the pain of the injection and increase blood flow to the area. I'd double check that heat is ok with bicillin injections.
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