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Update: I can't handle this off abx

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Posted 8/10/2016 6:17 AM (GMT -5)
I posted a few weeks ago saying I wanted to try life off abx (after being on for 2 years, oral). I am....not good. The symptoms that have returned in full force

-twitching
-muscle fatigue (even gentle yoga is hard right now)
-joint pain....oh the joint pain. It's awful
-more tired

I'm doing herbals under the direction of my LLMD -mostly nutramedix products. Also doing the freedom parasite cleanse. I am doing a little more than normal (normally constipated) but even the max dose isn't making me eliminate like I thought it would.

I got a call with my LLMD today but any words of wisdom or advice? I'm seriously considering going back on abx, maybe pulsed this time.
Posted 8/10/2016 8:19 AM (GMT -5)
So sorry to hear of these developments!

What herbals are you doing? Herbs can pack quite the punch and it's entirely possible you are herxing (sorry).

How is your detoxing going?
Posted 8/10/2016 8:39 AM (GMT -5)
cappuccinocurls, it sounds like what happens to me when I get off abx. I like to take a break from abx every now and then to give my body a break. Last week I was off abx and by the end of the week many symptoms came back "full force" as you say. I know it is because I am off abx because within an hour of taking the abx again some symptoms begin to subside. By the next day the symptoms have mostly/completely dissipated.

I take herbals along with the abx but they don't seem to have the strength to stop the symptoms from coming back when I stop taking the abx.

I have been on oral abx for 4 years now and herbals for about two years. My life on abx is 80-90% normal. But stopping them brings back the symptoms. Some that I had even forgotten about :-(
Posted 8/10/2016 9:59 AM (GMT -5)
Hi cappuccinourls!-

I am so sorry that your symptoms are coming back. (((Hugs!)))

I am kinda in the same boat. I stopped all antibiotics the end of June 2016.

I am on Byron White herbal formulas, vitamins, supplements, and thyroid meds. yet.

The Byron White formulas that I am currently taking are: A-BAB, A-Inflam (for inflammation), Detox1 (my body has a hard time detoxing properly), and A-P (for parasites).

My LLMD said that A-P is used to treat: parasites, lung fluke's, tapeworms, Candida, and mold. I know that Candida and mold are not parasites, but I think that some of the herbs help with these issues. I can't find any information online that can confirm what my LLMD told me about A-P.

I have been on A-BAB for almost a year, and still stuck at 6 drops a day.

I have been on A-Inflam for a while. When I got up to 26 drops a day, I started to talk normal again and didn't stutter anymore.

I started Detox1 in June 2016.

I started A-P (for parasites) in July.

A couple of weeks ago, I got out of my sauna, and I smelled terrible. I have never smelled so bad after my daily sauna. I asked my husband to smell me. He said,"You smell like an old, wet, moldy shoe".

Just the other night, I had to leave my sauna early. It smelled like a bunch of cats urinated all over in my sauna. The smell of Ammonia was terrible. My eyes and nose were burning and watering.

I think that my body is finally starting to detox. I don't know if it is from stopping the antibiotics, or if the A-P and Detox1 are helping me.

I have an appointment with my LLMD soon. I have no idea what we are going to try next.

I don't know if she will want to get me back on antibiotics or if I will still have to work on my detoxing.

Since I have stopped antibiotics, I have noticed more pressure in my head again, severe headaches, "Alzheimer's" symptoms are raging, and some other symptoms are creeping back in.

I am still trying to put all the pieces together! It is so hard to know what is going on!

Best Wishes!
Posted 8/10/2016 11:31 AM (GMT -5)
capp - While on antibiotics, are you 100% - symptom free?


You mentioned pulsing the abx. I have recently switched over from daily abx to pulsing. Kinda following what Dr. J. prescribes.
M/W/Th/F abx S/S off. Two weeks on and 1 week off.

I haven't taken the one week off regularly though. I am also pulsing Artemisinin ...so that kind of messes with my schedule - due to the fact that I don't want to take Rifampin with it (because of the Cytochrome P450)

I do not feel any worse symptom wise..but do feel better emotionally/psychologically doing the pulsed approach.

The theory is that the pulsed approach allows your immune system to kick in and start fighting the bacteria.
Posted 8/10/2016 5:25 PM (GMT -5)
I have heard of a synergy of bvt with abx ..going to try this approach too..sorry capp were are you doing a cyst buster like flagyl,tini,or alinia? The ******s can still replicate in cyst form and inside cells ...
Posted 8/10/2016 7:25 PM (GMT -5)
A link to this article was posted today on Global Lyme Alliance. For those who rebound once off abx's this may hit home. Consider adding Ozone Therapy or another immune boosting therapy. I'm still finding I backslide when I have a gap in those therapies.

www.huffingtonpost.com/mary-beth-pfeiffer/lyme-landscape-rocked-by-_b_10929038.html
Posted 8/11/2016 8:39 AM (GMT -5)
Have you been treating with a cyst buster ? If not, you may just be encouraging a dormant form while on abx, only to reemerge after you stop abx.

What abx have you been using and how?
Posted 8/11/2016 8:05 PM (GMT -5)
To answer some questions, my LLMD wants me to continue antibiotics. Tindamax pulsed M - TH, a different abx on F, S & S. After 3 weeks I will add dapsone (supposed to have great effects according to Dr Horowoitz).

I feel like my flare was very Bart. But that could be in my head. I've had many issues handling riphamphin before so that could be why.

I do want to get a second opinion because of my mold and mycoplasma (tested for both, but not shoemaker). But yes, my pain went down a good 50 % taking a tindamax about 15 hrs later I noticed a difference. So I guess that was my answer.

I'm on a lot of herbals. Mostly nutramedix. Still continuing he parasite cleanse (she said she has no idea why the bottles would say you can't be on abx). I'm also adding more immune enhancing stuff including colostrum pills.

I'm not totally better on abx. It just takes the edge off. Totally forgot what life felt like before.
Posted 8/12/2016 2:08 PM (GMT -5)
atermix-Placebo could not account for definitive lab improvement with children & Alzheimer's infections.

Each person does have different pathogens, different immune systems & different genetics so one size does not fit all (herbal or abx pursued).

If you've not read, one person's journey:
/willtherebecake.org/2016/01/08/why-i-chose-antibiotics/
Posted 8/12/2016 5:02 PM (GMT -5)

happyjo said...
If you've not read, one person's journey:
/willtherebecake.org/2016/01/08/why-i-chose-antibiotics/

EXCELLENT blog happyjo!! I was reading it and kept thinking to myself... I could have written this almost verbatim. Except that I'm not studying microbiology or any of the "-ologies". But it's a really well-written description of the process in decision-making for such an important decision.

-p
Posted 8/13/2016 1:24 AM (GMT -5)
Yes, great blog! I also have found antibiotics necessary to keep me going but am trying to stay off them whenever possible. I wonder why I bother, rather than the yeast issues, since it feels like a roller coaster, starting back on antibiotics when I hit the rock bottom cycle. Especially the last couple of years, it has been much worse.
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