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New symptom- nueropathy in feet

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Posted 8/25/2016 2:41 PM (GMT -5)
Anyone else experiencing nueropathy effects in their feet? I have been doing the detox baths and foot soaks. 5th wk. of Abx. If you have, what treatments? I really hope this is tempoary.
Posted 8/25/2016 3:05 PM (GMT -5)
I have tingling in the heels of my feet sometimes. It has started since my babesia treatment.

I believe it is inflammation and/or damage to my nerves.

I am continuing to treat with antibiotics, herbs. Also, am taking support herbs that Buhner recommends for the nervous system: Kudzu and Greater Celandine.
Have restarted my ALA.

It should be temporary...I'm banking on it.
Posted 8/25/2016 3:06 PM (GMT -5)
Lisa, I am sorry you are dealing with this. It can be quite uncomfortable and downright miserable sometimes.

Some of the nerve damage can last but I have read of many who have gotten relief from it. I myself have with consistent treatment. It is getting better, but it was so bad for awhile.

I have been doing Buhner's protocol for 6 months. I started with the core protocol and then added in others herbs for different symptoms. (Specifically Sida Acuta and Cat's Claw for neuropathy) It can take a long time to heal but the last month has seen great improvement for me. I am beginning to have hope.

I also have taken Gabapentin for quite awhile which helps but it took along time. It wasn't until after I started the herbs that I really got consistent relief.

Wishing you relief from these symptoms.
Posted 8/25/2016 3:08 PM (GMT -5)
I am on week six of one antibiotic and just started a second as well as numerous supplements. I have numbness in my foot, leg, and hand on one side of my body. I think it could be a herx reaction.
Posted 8/25/2016 5:56 PM (GMT -5)
Girlie, what is your banesia treatment?

This painful nerve firing in the bottom of my feet came gradually. At first I just had pins & needles intermittantly.
I'm thinking about asking dr for nuerantin script.

I don't consider myself at chronic LD, but maybe this is a sign.
I was bit the end of May- bulls eye rash- positive bw- classic beginning symptoms - doxy. 5 wks.
Plan to continue another 10 days.

To be honest all the forum's talk of herbs and protocols is overwhelming. I can barely take the 2 pills a day.
Posted 8/25/2016 6:07 PM (GMT -5)
Lisa - if you're symptoms aren't gone with 10 more days of doxy - then please keep treating.

For Babesia I am doing rounds of Artemisinin. It's an herbal supplement - comes from the Aremisia annua plant.

because your intestines can develop an enzyme over time to kill it, it is recommended that you don't stay on it for long periods .
Doctors all seem to have their own idea of how long that is.
I take it for just 4 days in a row and take 10 days off.

I have herxed on it - the first round I herxed in the middle of the night - it woke me up.
Posted 8/25/2016 6:22 PM (GMT -5)
By treating , do you mean with continued Abx or on to something else?
Posted 8/25/2016 6:30 PM (GMT -5)
Either abx, herbals..or both.

Is the neuropathy your only symptom now?

If you could continue with abx a few more weeks - msybe the neuropathy will subside...and you could also add an herbal protocol to it which you could continue for a few more months.
Posted 8/25/2016 7:32 PM (GMT -5)
No, not my only symptom. I 've got joint swelling- especially knees and fingers, headaches, fatigue(less than before). And hot flashes.

Happy that the rash is gone anyway.
Posted 8/25/2016 9:14 PM (GMT -5)
i had very painful neuropathy in my hands and feet. One day it felt like I was walking on glass with electric charge and my hands were paralyzed with crippling nerve pain. I couldn't grip even a toothbrush. That scare lead me to my dx journey and I still have neuropathy pain but nothing like it was.
I juice daily with tons of greens and beets. I also take vitamin B6n12. Praying this nerve pain leaves me for good.
Posted 8/25/2016 9:17 PM (GMT -5)
Me too, AzerilA

I've had muscle pain, joint pain...and nerve pain.

The nerve pain is the worst...by far. And, the muscle pain was the first to leave...and the joint pain is like 80% better...but the nerve pain...still hanging on in full force.
Posted 8/27/2016 8:07 AM (GMT -5)
Have you tried Nuerantin? Any side effects?
Posted 8/27/2016 10:22 AM (GMT -5)
Lisa - do you mean Neurontin? (Gabapentin?)

No, I haven't tried any pharmaceuticals for it. If I could take it now and then (as needed) I would consider it, but my GP said it's a medication that you need to take daily for it to work.

I decided I didn't want it. Yes, it has side effects.
Posted 8/27/2016 12:16 PM (GMT -5)
That's what I meant ... Terrible speller ...
Posted 8/27/2016 4:43 PM (GMT -5)
Burning pain in the feet is one of the most common signs of Bartonella.

I'd mention this to your LLMD.
Posted 8/29/2016 6:40 AM (GMT -5)
Hi, my worst symptom to date has been peripheral neuropathy. Currently it's just in my feet, toes and calves which is an improvement since it used to happen all over my body. If I don't have neuropathy then the soles of my feet burn and it feels like I'm walking on glass. My llmd wanted to put me on levaquin but I refused since all the "floxie drugs" can cause permanent neuropathy. The FDA recently labeled it a black box drug which is it's strongest warning.

I have been in treatment for almost one year. Since I have an old infection it could take awhile for me to recover and I pray that it takes away the neuropathy. I'm not sure how I make it through some nights it gets that bad.

The LLMD took me off abx for three weeks. I was hoping I would feel better but that didn't happen. I'm now just taking Bactrim until I see him next week, horrible herxes despite major detoxing. I am taking Gabapentin at the highest dose possible and was just prescribed Low Dose Naltrexone. Those don't seem to help much but i heard the LDN needs time to build up.

I couldn't find if it was allowed to talk about this in this forum. If not please accept my apologies and delete. I have found only two things that help with the god awful pain. Kratom (red strain) and marijuana. Medical marijuana is legal in Michigan and kratom is too. I grew up in the 70's when pot was prevalent and I hated the feeling I had with it, which was getting the munchies and falling right to sleep. Now I don't get the munchies but I do fall right to sleep.

Best of luck to you, neuropathy is the most painful thing I have ever experienced.
Posted 8/29/2016 12:05 PM (GMT -5)

Laker7491 said...


I couldn't find if it was allowed to talk about this in this forum. If not please accept my apologies and delete. I have found only two things that help with the god awful pain. Kratom (red strain) and marijuana. Medical marijuana is legal in Michigan and kratom is too. I grew up in the 70's when pot was prevalent and I hated the feeling I had with it, which was getting the munchies and falling right to sleep. Now I don't get the munchies but I do fall right to sleep.

Best of luck to you, neuropathy is the most painful thing I have ever experienced.

i don't know what Kratom is - but I know it's fine to talk about marijuana on here. I don't see any reason why kratom can't be discussed, too.

I'm glad you have found something to help you sleep.

I tried the LDN, too...before i was diagnosed....and it didn't help me. I can't remember now how long I tried it - but i started low and slowly ramped up. I think I gave it 6-8 weeks.
Maybe that wasn't long enough.
Posted 8/29/2016 2:32 PM (GMT -5)
Girlie, I guess if Kratom is okay to talk about, I highly recommend it to people who have pain with no relief. It's a natural opiate and easy on your liver. The bad part of taking it is that it tastes horrible. Some people put in capsules but I don't have the patience. If anyone is interested in learning more about it, you can just let me know.
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