Went to see my primary (only seen him 2 times) for my yearly lab results, lyme through quest came back neg so he said I dont have lyme, he said it could be fibrom or CFS, so he wants me to start gabapentin 300 mg twice daily. I already take nortrypt 50 mg at night, and around 2007-08 tried cymbalta and lyrica and could not tolerate them. My main symptoms are fatigue, no stamina, some days when is not fatigue is pain all over, some days nervous or anxious with tachic or not. My right hand recently is getting numb when sleeping and that wakes me up.
What do u think about this medication, I research it here and there are not many lymers who use it.
Thanks for any advice.

mibella, definitely look at the side affects. I use it. My neuro started me on it before I knew I had lyme. I can't say it took the nerve pain away in my feet, but it did make the buzzing at night a little less intense. It also helps me a lot to sleep.

The problem is that it is hard to get off of. I researched it a lot and I think that is the biggest complaint. I am on a very low dose and when I try to eliminate it the buzzing (for lack of a better word) and sleeplessness happen immediately and are worse than before. Its a catch 22.

I think that Sida Acuta helped me more than the Gabapentin...I just can't go off of it even with the sida.

I hope this helps. Just be informed before you start it. It is quite helpful for a lot of people. Even Buhner recommends it for nerve pain.

Post Edited (Denikeef) : 9/2/2016 2:02:31 PM (GMT-6)

Gabapentin seems to help a few people with Lyme, but not many.

And I agree to not trust your test results. Why not do an herbal protocol if your doctor won't listen?

If you wish, I can link to articles that you can take to your doctor showing reasons why a person may test negative even though they still have Lyme. Just let me/us know.

I use Gabapentin for intense nerve pain. It has been the best of the pain meds I have tried. That being said, there are days where my pain gets really bad in spite of pain meds. For the most part, I have found it to work well for me. It made me somewhat sleepy at first, but I adjusted to it. It does not make me sleepy anymore.

I previously took Gabapentin for non-Lyme reasons. I slowly tapered off it without any major issues. However, everyone is different.

Gabapentin is also sometimes used for anxiety. When I first started it, it has a slightly calming effect. However, it did not touch my anxiety, which has been pretty bad.

I tried Cymbalta for a while. I did not tolerate it very well.

Gabapentin is a medicine that has to be taken regularly. If your pain is more intermittent (not sure), then maybe a different med might work better for you. I also find anti-inflammatories very useful.