New doctor visit and UVLrx

So I went to see a Dr who has UVLrx.

I thought I'd walk in with my Igenex, and walk out after a UV session..

Well, the Dr walked me thought how I had to treat everything in the world starting with dental cavitations, leaky gut, mitochondria, and more.

he wanted several thousands of dollars on tests before we got started, but assured me I was in the driver seat and could decide what to do or not to do.

While I agree one was to address these areas, and by large I've been doing so, I'm tired to taking tests and in my thinking, it can't hurt for example to take alpha lipoic acid for Mitochondria even if you don't have dysfunction there.

The place was pricey, and it's the kind of place that wants to sell you their supplements. I've got him out stocked in that department :)

I'm curious of your take on this, but If I go back to him, I'd only ask for UV treatment and I can handle other stuff on my own.

ridges on fingernails can have different causes.

Have you done a 4 point saliva cortisol test to check what your levels are?

I have had them since Lyme...and I found out that Iron deficiency can cause them..I have low ferritin levels...so that may be my reason.

How low is your bp?

If you don't want the other 'tests' for thousands of dollars, then don't let them pressure you into it.
Like you said - you're in the driver seat...and want the UVLrx from him...nothing else.

Caramba, it sounds like your guy is well rounded and trying to do things very systematically. In my OCD nature, I appreciate that whether I choose to do expensive tests or not. I appreciate thorough. This is where we have to advocate for ourself, especially since all of these tests are out of pocket and hard to swallow the costs... you are doing the right thing by research and knowing your body.

I hope you find some help from UVLrx.

Right on, Krimpet. I had fantastic success with UBI straight away. I always did much detox... have for many years before Lyme. I made 2 mistakes that I see very clearly now.

1. I stopped when I became symptom free, and i should have continued on for another few months.

2. I wasn't supporting certain things like the cytokine storm and organ systems strongly enough. i was detoxing and taking supplements, but, I was not aware that it wasn't enough.

I thought symptom free was good enough, but it was a tease.

I am now doing UVLrx with herbs and lots of detox methods, and I can feel a powerful difference. I can get a hard herx but it dissipates as it should.

jennydancingfish said...
Your guy sounds smart. Where is he? Hehe

Jenny - I'll come with you...lol....we can do a tour - and include stops at Jemsek's and Jone's clinics (you talked about him so thinking you're young enough to see him)

>>2. I wasn't supporting certain things like the cytokine storm and organ systems strongly enough. i was detoxing and taking supplements, but, I was not aware that it wasn't enough.

camel can you expound more on what you mean by this and what you did? thx.

Starting with dental cavitations.
Your doc sounds smart

Thanks for the replies!

Don't get me wrong, it liked his approach and overall all the areas he mentioned need to be covered:
Mouth
Leaky Gut
Mitochondria
Adrenals/Thyroid

he didn't mention cytokenes explicitely, but talks about improving the immune system.

he was also upfront I wouldn't get past 90% better.

I'm more in sticker shock for all the tests. I'd just assume I need chelation, gut repair and get on with it without testing. that's my point.

Btw, Thanks to Buhner I'm already doing 80% of the things needed for leaky/mitochondria. so my second point is why do I need an expensive doc to tell me to take protein, collagen, alpha lipoic acid, probiotics etc?


google Dallas uvlrx for info

Caramba

Hi, jennydancingfish - CIRS = Chronic Inflammatory Response Syndrome. Generally speaking, you will hear it in context with mold related illness, but it can also be related to post Lyme issues. In a nutshell, what it means is that you do not detox well and need some help. ~ 25% of people have a genetic marker that shows susceptibility to this type of detox issue. Some have an issue towards mold, some to Lyme (and I am sure related bacteria) and some to both of those things. The result is to take a strong binder. Activated charcoal & the like didn't work for me. Luckily my LLMD is also a CIRS doc, so he naturally checked for those issues.

You can find a lot of great info here: www.survivingmold.com

Basically the blood tests check for HLA (the genetic marker), TGF Beta-1, VEGF, VIP, C4A, C3A, MMP-9, MSH, Leptin and others. They also check for a staph infection in the nose called MARCONS.

One of the easiest things you can do is to test your eyes with the VCS (Visual Contrast Sensitivity) eye test. Basically, can you see very subtle patterns in gray on gray? I have failed it every time thus far, and my blood work indicates a problem. C4A is the mold index marker, and mine has continues to be normal, even thru mold season outdoors. So, my issues are seemingly infection related.

When I started CSM binder, my VCS test improved somewhat. When I was on a very low dose of about 4 support herbs my test improved quite a lot. For me, it seems, a binder wasn't enough. I am still missing pieces to the puzzle. Adding in the herbs hopefully will be another several pieces to my puzzle and I would love to see more improvement when I take this test again in a couple of weeks. Although, I imagine it will be up & down for a while longer due to adding and increasing the herbal protocol.

If you want to know if there is a possibility of being in that 25%, take the VCS test. I think you can find them free online, although I paid for a few on survivingmold.com because it gave me a free month to access all of the articles, etc.

Hope that helped... there's a lot to it, LoL

Thanks so much humpedcamel!!!

MARCONS is a huge find. Hopefully, he gave you the nasal spray that can eliminate it. I did not have the infection in the sinuses ... would have made it simpler if I'd tested + for it... but it's never simple is it?