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Posted 11/2/2016 12:08 PM (GMT -5)
Hello all. So, I am four months into treatment and doing better. I would say barely herxing at all. Most of the brain fog has lifted. Somethings linger from time to time (like now I have ear pain), but not as bad. So maybe there is hope.
My latest concern is with my voice. It is very wraspy and I sound sick. It does not hurt much but is hard to talk etc. There is a nasty cough going around my parts that lasts for months and I got it of course but most people don't get the wraspy voice. Everytime I talk to someone they are like you sound awful.

I do coach hockey and find it makes it worse, but wondering if anyone else had this as a symptom. All of my symptoms are not gone but I am getting better!!!

Thanks
Posted 11/2/2016 12:42 PM (GMT -5)
Well, first of all, congratulations on feeling better!!! turn

Is it possible that during your time of coaching you may be yelling a lot? That could stress your vocal cords and encourage a raspy voice. I was at a protest over some shenanigans that have happened with the voting here in my state, and noticed with only 2 hours of yelling (lol!), my voice was trashed for the rest of that day and was raspy and sore the next day as well.

The other possibility that I'm aware of is from Bartonella - it can affect some people's throats and make them sore and have a raspy voice as well.

Just a couple of thoughts.
Posted 11/2/2016 12:44 PM (GMT -5)
Bowdren,

I have lost my voice except for a whisper. If I try to talk normal it is quite difficult and squeeky sounding. Just in the past few days, even a whisper seems to be a struggle and I feel I have to work to get that much. I also seem to be choking on pills now too.

It started a week after my last llmd visit...a month ago. So I sat on it figuring it will go away eventually. I wasn't really concerned actually. It doesn't hurt and I haven't been sick with anything other than the lyme stuff. No cold or anything like that. Many Years ago I had this same thing but not as severe. At that time I saw my ent who did a scope and found nothing. Now I know it was lyme.

Well, I saw my llmd yesterday. He was quite concerned about my voice. He called it a bells palsy of the nerve that innervates the voice box. If I can remember correctly it is cranial nerves 9 and 10 the glossopharyngeal and vagus nerves.


I have been in treatment for 7 months, but infected for 8 years. These past 7 months have been difficult. He offered last month to give me a referral to dr J in DC. I told him I would think about it. (the dr I am currently seeing is brilliant. He is a member of ILADS and I was very happy with his care so not sure if I should switch)

Well, the choice has been made and he made it for me. He is adamant that I need to start IV antibiotics (which he doesn't do) and wants me to see dr J in DC asap. He is fearful if I don't get on this quickly I may lose my voice permanently.

I don't mean to scare you....but you may want to call your dr and get their opinion.

Post Edited (joee) : 11/2/2016 11:51:20 AM (GMT-6)

Posted 11/2/2016 1:07 PM (GMT -5)
I went through a period for about a year or more where I could barely keep a conversation up before the rasping would kick in, and if I didn't stop, I would lose it altogether.

I got to hate getting phone calls of the kind where people never wanted to hang up.
Eventually my voice changed completely, it is deeper and I often have problems speaking loudly without actually shouting.

I had my Internist check my throat out but couldn't see anything conclusive. At least there were no tumors in there, which was what I feared.
He blamed it on my short stint with Fosamax, but seeing this I am inclined to blame the Lyme.

ETA: this is all before I ever started any kind of treatment.
Posted 11/2/2016 1:37 PM (GMT -5)
Congrats on your improvements!
Posted 11/2/2016 2:44 PM (GMT -5)
I'm loving these quick recovering post popping up lately. I recovered rather quickly initially as well, but just be aware getting the last bit of lyme out seem to take the longest. Healing the body and keeping the bugs at bay is a slower process, then that first shock and awe assault on lyme.

The raspy voice? Yes. It very randomly comes and goes for no reason. And yes it's harder to talk, like you have to try harder to produce a smooth sound from your voice box.

I never know what to say when people ask "are you getting sick". I don't really want to broadcast to everyone "oh the raspy voice, no that's not a cold that's simply my awful systemic bacterial infection that can wreak havoc on my body and it can take years to successfully treat, called lyme disease".

Pretty long winded. So I just say "maybe, but I hope not"
Posted 11/2/2016 4:54 PM (GMT -5)
Hey! Congrats on feeling better! Always so inspiring to read :) -- raspy voice a big YES! Every one whoo calls on the phone thinks I am my hubby.... sigh. It's always raspy and if I go to a concert or something where I yell, it's lost for days. Don't know if it will ever return to whatever normal was, LoL...
Posted 11/2/2016 5:57 PM (GMT -5)
Thank you all for your reply. Yes I am not 100% by any means I am seeing a uptrend. Some days completely forgetting I had it. But times like now remind me I do. lol. Neck got stiff this afternoon and brain fog come and went. Well here's to the good fight
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