Posted 11/8/2016 7:35 AM (GMT -5)
My doctor wanted me to start treating methylation, since I tested positive for the polymorphisms.
I started on just 500mcg of Methyl-B12 for several days and had a severe crash. I got impatient and went up to 5mg and the crash was actually no worse than 500mcg. Then I added in an activated B-Complex (Jarrow's) and all my symptoms have been 1000x worse .. dizzy, balance problems 1000x worse, POTS worse, hunger worse.
My impression was that 500mcg wasn't a huge dose, so don't understand why I reacted so badly.
I have read on phoenixrising that some people say adding in low doses of Methylfolate can actually make things worse because you create a paradoxical deficiency, and people end up titrating the folate very quickly (which scares me).
I'm getting sick of this cr*p. I can't even tolerate tiny doses of vitamins, but it's not like my condition is 'stable' -- if I don't take anything, I'm completely agitated, fatigue, depressed, suicidal. So I don't understand how I'm meant to have the patience to titrate up crumbs of B-vitamins over the course of months.
I have an infection in my gut (Streptococcus) and saw a gastroenterologist who offers a program to kill the infection (with antibiotics) and restore the gut.
It's expensive, but I wonder if I won't get anywhere until I treat the infection.
My chronic fatigue doctor said she doesn't believe I will tolerate antibiotics at this stage. But I don't know what to do anymore. I really can't live like this.