DOCTOR UPDATE

Many of you asked to be updated after I went to the Dr this past Saturday. Here's what happened:

Recap: Positive for Lyme, Parvo, EBV

He put me on Doxy, Zithromax, Famvir (Cuz I have Shingles) and we discussed adding Silver, Curcumin & Magnesium, which I ordered from Amazon. I've been drinking lemon water, and alka seltzer gold (every other day), and doing Epsom Salt baths daily.

MRI is set up for Thursday. I'll get those results either Friday or Monday.

He's going to try to find someone at the University of Miami, but if not, he's sending me to a Doctor in Washington DC that other one of his patients with Lyme goes to. He says he believes that patient is getting stuff put through her insurance with him. Now he IS an infectious disease doctors, but apparently one of the RARE ones that will treat it long term and not just say "post lyme syndrome" and treat each symptom. I know my local doctor would not recommend him if he didn't believe in chronic Lyme, because my doctor was adamant about me getting to the "right" doctor.

My memory and confusion is so much worse than last week. I spell words wrong that I know, I can't think of words several times a day in conversation, and I'm always confused. It's like my brain went from 100mph to 5mph. Does anyone else feel that way?

That's all I know for now! Have a good day!

Sounds like wonderful news, Nikinicole! And yes, there are a small handful of ID docs that 'break from the crowd' and are willing to recognize that these infections are serious and need the treatment that ILADS promotes. Gems for sure!

What all are you doing for detoxing? Your brain issues are a lot like mine, and I know mine are tied to brain toxins like ammonia. There are some things you can to do help, but you must be detoxing a lot and well, in order for them to work much.

If your other detoxing pathways aren't functioning well, and you work to detox the brain, those toxins will just keep recirculating, so it all has to be worked on.

You can find some really good suggestions for detoxing in the "new to Lyme?' thread and here as well: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.

Huddie said...
Niki,

Thanks for the update. Sounds like you found a great LLMD and he is genuinely caring. That goes a long way. We all have brain slow downs. You will get better.

Yogi detox tea, dry brushing and apple cider vinegar are all easy detoxes. You may want to add in activated charcoal for all those meds.

Please keep us posted. Feel better!

Huddie - it's funny you mention the Yogi tea. I looked in the store this weekend, and everything was by herb. I couldn't find anything that said "detox" so I bought the green tea, and have been drinking that. Does it literally say "DETOX"?

P.S. My current doctor is an internal doctor, not an LLMD, but he's amazing and people come from all over because he's amazing at diagnosing. But he's going to refer me out, as this is not his forte'.

Thanks,

Niki

Traveler said...
Sounds like wonderful news, Nikinicole! And yes, there are a small handful of ID docs that 'break from the crowd' and are willing to recognize that these infections are serious and need the treatment that ILADS promotes. Gems for sure!

What all are you doing for detoxing? Your brain issues are a lot like mine, and I know mine are tied to brain toxins like ammonia. There are some things you can to do help, but you must be detoxing a lot and well, in order for them to work much.

If your other detoxing pathways aren't functioning well, and you work to detox the brain, those toxins will just keep recirculating, so it all has to be worked on.

You can find some really good suggestions for detoxing in the "new to Lyme?' thread and here as well: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.

Traveler, I'm doing green tea, alka seltzer and lemon water right now. I'll look into other ways as well. BTW, I forgot (HA HA) to mention that my doctor also ran a co-infection test on Saturday, I think it was for the three B's. It was done by Quest because I can't afford Igenex right now. I'll see what Quest comes back with.

Thank you,

Niki

I had no idea bout the Herx, thank you for that link!