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Unbearable fatigue

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Posted 11/15/2016 11:27 AM (GMT -5)
Hello all,

I need natural ways to deal with unbearable fatigue. No matter how much I sleep, it's like I have narcolepsy or something. i can't stay awake. I was sitting at a stop light and fell asleep and rolled into the car in front of me. I sleep ALL the time.

I have been hit hard financially and do not have any way to pay for lyme doctor appointments out here in CA as the LLMDs I found do not take my insurance.

I'm desperate. I tried B-complex but that doesn't do anything.

Thanks,
Elleon
Posted 11/15/2016 11:47 AM (GMT -5)
I know its easier said than done but moving around really helps. I have my unbearable fatigue come in waves. One month will be awful then the other isn't as bad. But i notice the more i sit around and relax the worse my fatigue does get. Just do very subtle movements such as walking around and you will notice the fatigue will become better. Hope this helps :)
Posted 11/15/2016 12:35 PM (GMT -5)
I swear that for 2 months all I did was sleep. My husband would leave for work and I was sleeping and when he got home, I was sleeping. I got up to go the bathroom, take meds or to eat and that was it. I slept all day and all night.

I didn't try and fight it, I just slept a lot. It finally subsided and boy was a glad. It tapered off to where I was just taking a nap every afternoon. Then one day, no nap....
Posted 11/15/2016 12:52 PM (GMT -5)
When I first got bitten by a tick I already had glandular fever. The next few years I slept all the time. I felt so incredibly exhausted. Naturopaths at the time were giving me probiotics and herbs to heal the gut and nothing worked. No-one least of all me had any idea it was lyme. It wasn't until a naturopath gave me a herbal remedy for liver detox that it began to move off.
Posted 11/15/2016 1:37 PM (GMT -5)
Hmm I think I will try liver detox and yeast cleanse.I think those are some big problem areas for me. I can't afford to just sleep all the time until it wears off. I work 40-50 hours a week.
Posted 11/15/2016 2:28 PM (GMT -5)
Yeast cleanse sounds like a good idea.

How's your diet in respects to yeast promoting foods that we're supposed to avoid?

If you've eliminated sugar and carbs already and still falling asleep when you don't want to, I'd look into finding out what your Vit D and B 12 levels are, and maybe a 4 point saliva cortisol test. The later for adrenal fatigue.

I'm speaking out of experiences from every one of these areas.
Posted 11/15/2016 2:38 PM (GMT -5)
Consider bee pollen and bee venom (cheep effective ) bees are 10 c each in california ...also a trick i used when driving was sunflower seeds ..if the mouth is moving you cant sleep
Posted 11/15/2016 2:41 PM (GMT -5)
Elleon. do you know if you have high EBV titers? If so, try adding Lysine to your supplements. I know EBV and other viruses can cause a lot of fatigue.

B-12 never helped with my serious fatigue issues.

Sometimes all you can do is to 'go with it' and sleep more.
Posted 11/15/2016 3:00 PM (GMT -5)
I was like that before ABX- I would dose off standing and catch myself, but still had insomnia at night - a tell take adrenal disaster. Think it was a combination of what these infections do- the infection, adrenal, candida ect. I had to live off Redbull and power naps for years.

B12 or D3 did nothing for me either.

Post abx is better and still improving. The cooler weather seems to help too, even though its dark so much earlier now.

How are your thyroid levels? And you know Free t3 and free t4 (thyroid hormoes) need to be at least 50% up into the ranges, despite your TSH. (tsh is just a signal, not a cell useable hormone.)

Brain chemical methalation pathways can be blocked from this too (per my Dr)- and can add to fatigue. The brain amino acids are widely available and fairly inexpensive but you need to buy small quantities and experiment to see what works.

Post Edited (astroman) : 11/15/2016 1:04:10 PM (GMT-7)

Posted 11/15/2016 3:36 PM (GMT -5)
Have you been tested for any viruses? EBV and HHV6 are often reactivated with Lyme and huge fatiguers.

Yep thyroid can play a part too.

Astroman that's what I'm doing now, trying different amino acids. Thinking about doing IVs. Going to discuss with my doctor on Thursday. He did mention this at my last appointment. Definitely have a gaba deficiency. I've got to pull out my neurotransmitter testing from April. I'm not sure if I need to retest.
Posted 11/15/2016 6:26 PM (GMT -5)
I have been tested for EBV and that was positive. I also had slight hypothyroid, but every time I get my levels checked, they are perfect without taking the medication anymore.

I honestly don't eat great and never had all through treatment. I was diagnosed 3 years ago. I basically live on potato chips which I know is awful. My diet definitely needs to change.

I've never felt THIS crushing fatigue tho thru all my treatment. I haven't taken antibiotics in a year and a half and most of the time I feel okay. I have occasional dizziness and tremors but that's about it. I mean, I can get up on a surfboard every weekend and surf so I can't complain.

Thank you!
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