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Posted 11/15/2016 10:25 AM (GMT -5)
I just ranted yesterday about Lymes. Lol. I guess I am coming to terms that this is what I have. What do you think?
Tick bite in mid 90s, bulls eye rash, 2 weeks of antibiotics. Then in 2010 I was diagnosed with fibro. Since then I have been focused on that until recently. Would you think it was lymes?

What do I do next? I am on disability, so I do not have a lot of money to play with. Should I try to get tested at igenix? I have been researching lymes a little and found out you can see the spirochete under a microscope. I would love to try this, and it may be cheaper than igenix.

My next concern is treatment. Since I have had this for 19 years, is it worth getting on antibiotics? I have read a lot of horror stories from taking those to long. After 19 years, I'm kinda thinking it's going too be be to hard to get rid of. Also, does disability recognize lymes like fibro? If I WAS diagnosed with lymes, would they drop me?

I am located in Virginia. Maybe I can locate a lymes doctor near me.

Thanks for all of your help. This all feels like a dream and I can't believe I was not proactive years ago and demanded more treatment. I didn't know and I was fairly young, and naive. I trusted what my doctor said.
Posted 11/15/2016 12:09 PM (GMT -5)
I fully believe you have these infections, likely not just Lyme.

Some LLMD's will accept Medicare payments as 'payment in full', so if you wish to use a LLMD or LLND, I would look into this option - unless you wish to treat on your own. There are herbalists that can help you through Buhner's protocol, and depending on where you live, you may have some local herbalists that will help.

Abx (antibiotic/antibiotics) treatment is a personal choice. I used it for one year and called it quits because I was much, much worse than I had been previous to treatment. When I went with herbs and supported my whole body and detoxed, I healed very well - although I got reinfected.

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) or Lyme Literate Naturopathic Doctor (LLND) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at medicalinfo@tbdalliance.org​ for LLMD referrals.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And www.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf
Posted 11/15/2016 2:47 PM (GMT -5)
Consider bee venom therapy ...read the ellie lobel story ...you can use a private lab like dna connexions just to confirm coinfections and have for your records ...you probabky could get a ms diagnosis if you tried ...still need to address the infection ...
my teacher has it for 40 yrs use abx for 1 ,h202 for 1 year and bvt for the last 4 ..she got rid of uc and is working again at 70...
Posted 11/15/2016 2:59 PM (GMT -5)
If you remember a tick bite, and got a bulls eye rash, I'd skip all the testing; it's safe to assume you have Lyme.

Now as far as co-infections go, tests seem to rarely pick up on those anyway, so if you don't have a ton of money, it'll be a waste.

Traveler gave you good information about finding an LLMD, if you choose to go that route. It's probably a good idea if you can afford it. You'll get access to antibiotics, as well as great information on detoxing, herbs, supplements if your LLMD is a good one.

If that route is too expensive, you can treat yourself with herbals. Do Buhner, Cowden, Zhang, Beyond Balance... there's a bunch of different programs out there and you can order the herbs yourself. There'll be tons of information about these protocols online, as well as tons of information on detoxing, endocrine issues, candida issues, parasites, viruses, molds, fungi, etc.

Edit: You can go the microscope route as well. I've done it, and not only is it helpful, but it's pretty fun. You'd be looking at spending about 200-300 on a very basic microscope, and you'd have to read other threads and watch a bunch of youtube videos on how to do a blood smear, and what exactly you're looking for under the scope. You can post any specific questions for that here:

www.healingwell.com/community/default.aspx?f=30&m=3711230

Post Edited (Mustard Seed) : 11/15/2016 1:02:41 PM (GMT-7)

Posted 11/15/2016 4:55 PM (GMT -5)
wow, thanks soooo much to everyone! I really appreciate it!!!
Traveler, thanks so much for your links and info! I will be looking into all that you gave me.

blue lyme...it gives me hope that your teacher is well again.

Mustard seed
Yes, I do remember the tick itself, and feeling sick within a week or two after the bite. And I remember my arm was so itchy, and one day it just popped up, a round ring. I remember thinking oh no..lol I have lymes. BUT I thought it was treatable back then.
Im going to get a microscope. I love that stuff anyway. and I will be looking into treatments.

Will herbal treatments kill ALL infections?
Posted 11/15/2016 5:04 PM (GMT -5)
Yes. I had herbal/natural treatments only heal my 40 year old infections - and I'm not the only one that has healed with herbals alone.

Keep asking questions and we will do our best to be of help to you!
Posted 11/15/2016 5:36 PM (GMT -5)
Alot of the herbs amelorate sx ,reduce inflammation ..only a handfull actually kill bug ...fibro pain is thought to be caused from lack of blood flow ...hypercoagulatuon is common with these infections ...

check out the microscope thread on lymenet flash.they can help too..i cried when i first saw the spirochete that was causing so much destruction...again when i did my first stain and saw bartonella rmsf

helpful killing herbs have been smilax ,andrographis ,houttynia ,teasel ,lomatium ,
its a kill build kill game ...eva sapi is supposda be releasing a paper on the efficacy of bee venom
Posted 11/15/2016 5:47 PM (GMT -5)
about how long do I need to do daily detox baths? And how did I know when I rid my body of all infection?
Posted 11/15/2016 6:09 PM (GMT -5)
Unfortunately 2 weeks of antibiotics is not long enough to eradicate a systemic wide, sophisticated, highly evolved bacteria such as lyme and co. 2 weeks can't even clear up a bad sinus or ear infection.

So slowly but surely the lyme and co has continue to grow and live within your system and is now manifesting itself in lymie symptoms.

And with all due respect, please call it "lyme" not "lymeS".
Posted 11/15/2016 6:33 PM (GMT -5)

Klambert1 said...
about how long do I need to do daily detox baths? And how did I know when I rid my body of all infection?

You do the detoxing baths - as long as you are fighting lyme disease....and even after you're healed for good measure.

You will know when you are in remission - when your symptoms are gone.
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