Never ending head pain

I hate waking up because I wake up with terrible head pain nearly everyday. I've had my current run with no real breaks for over a week now. Feels like there's an iron band wrapped around my head. Even the base of my skull is tender. It's awful but not unusual. Migraines, pressure, pain.., always for years and years. I've gone in to the ER for intractable migraine pain before and even had spinal taps to test for meningitis (long before Lyme was even suspect) and I get relief for a short time from the hospital but it's $$$ and it always comes back. Always!
I feel like my joint and muscle pain would be bearable if my brain wasn't being scratched to shreds by my skull goblin. (He lives in the base of my skull and likes to feed on my grey matter).

Have you ever seen a biological dds?

I'm so sorry you struggle in the morning too july. I wish no one had to deal with this. It's awful. I think I'm pms'ing too so I feel super emotional about everything and really sorry for myself. I just want an hour without my head feeling like it will burst. Just an hour! I've been pretty much a lump all day. I've been wrangling my kids from my comfy chair, trying to keep them on task with homeschool. I'm going to try an imitrex and see if it helps.

I have the going to bed dread too...full stings of bvt has helped my goblin ..when i did c1 ..he was pissed ...alinia kinda helps too but i get emo and wonky on it

multifacetedme said...
Mister Mike - great share!

ChickNorris, how long have you been doing a lyme protocol? It has taken 11 months and a brain aneurysm repair for my headaches from hell to finally lose their hold.

I have a document I prepared for my Dr. that collates research on every type of headache there is, and then I make notes on how my headache was like/dislike. If you want me to dig that document up I can.

Have you had an MRA of the brain? An MRI wasn't good enough for looking at blood vessels.

Does your headache get worse with exertion?

Do you have feelings of being faint/dizzy/woozy?

Does your headache get worse when you bend over?

Have you had any poor balance issues?

These were the key things for me for the brain aneurysm.

Great resource Mister Mike! I have been giving CBD a try and it just makes me sleepy but still in pain. I will check out the others.

I would love to see that document from you multifaceted! I have told my llnd that I feel like I get different types of headaches but I don't know how to describe them accurately. My headaches definitely get worse the more I move, especially bending over, that causes extreme pounding. I am prone to nausea all the time but I don't faint or get vertigo with my pain, just lightheaded.

I've had an MRI in the past, about 8 years ago. It was clear. I had it because I was really dizzy and also migraines. Ended up being my thyroid running amok.

I keep trying alternative stuff to get control over my dang head and nothing helps. I even got both my ears pierced with a daith piercing because there was speculation that it helped. Diet, exercise, supplements, herbs (feverfew), vitamins, antidepressants, migraine abortives, peppermint oil, ice... I will keep trying.

If I had daily headaches like you describe, I'd be taking some serious anti-parasitic meds and eating a very restrictive diet. I wouldn't know the cause but I could sure rule some things out.

Georgia Hunter said...
If I had daily headaches like you describe, I'd be taking some serious anti-parasitic meds and eating a very restrictive diet. I wouldn't know the cause but I could sure rule some things out.

I've been on restrictive diets a few times over the years and the only diet change that ever helped a little is eliminating gluten 100%. Cutting dairy did nothing. I have given that one a try a few times, most recently this fall. I've cut out stuff from the food allergy panel like eggs too and no improvement. I've eaten paleo in the past.

I have been dealing with severe headaches (front and back of head). The only thing that seems to touch them is getting acupuncture. Even after my first appt my headaches were greatly reduced. I know that what works for one person may not work for others, but it has made that part of my symptoms much more bearable. I hope you find something that works for you soon!!!

I get awful headaches too. They can last for weeks, which is very debilitating. Even if the pain isn't awful, just the duration makes things very difficult. And before I knew I had Lyme, I tried all the pain meds - none of them worked.

My old LLND recommended I try butterbur for them, said it was mostly a preventative. I didn't try it, because I found a solution that works for me.

Since mine are migraines, my go-tos are caffeine (I only drink it when I have the headaches) and an essential oil blend of ginger, peppermint, cypress & copaiba. They are vasoconstricting oils (which are good for migraines), plus anti-inflammatory & analgesic oils. If I use both of them, I can usually manage it down to a minor ache that will go away by the next morning. If I let it go too long, it's much more difficult to get rid of.