Salicylates and oxalates

Sometimes I wonder if Lyme is even an issue for me these days because these symptoms I experience are weird. Several months ago I started experiencing severe anxiety/panic/fight and flight mode plus neuropathy and tingling all over my body. I saw a doctor who said I have oxalate crystals and wouldn't be able to get any better unless I detox them out. He said to take a bunch of trace minerals which were supposed to help with that or use magnesium oil to pull out the crystals from your skin. That was a disaster along with other things he prescribed. I was reacting severely and ended up even more anxious, with even more pain, and my sense of smell got worse, my sensitivity to chemicals also worsened, my skin sensitivity and heat intolerance also worsened. And taking in any kind of supplement makes me very reactive, so I only take a few. And I became more sensitive to food that I shouldn't be if we're just talking about Lyme.

What helped me with desensitizing my sense of smell was to get rid of all toxic household products and replace them with natural ones and body products too. And acupuncture helped with that too and with the anxiety (though it is still there). I recently started a Lyme treatment with Chinese herbs (Lightning Pearls by Classical Pearls) because I was afraid maybe Lyme got worse. I have a hard time understanding if I am reacting to it or not because food also makes me reactive, the food that never did before cause me any trouble, the food that is supposed to be good for you! But probably I am reacting to these things due to salicylates and oxalates. After I eat, my neuropathy gets worse, the tingling too, and I feel inflamed, my nostrils are inflamed, and I just feel anxious and depressed. I want to just cry (and sometimes I do). I don't know how it got to this point, but I was on antibiotics for a while and then some prescription drugs for other issues and was popping OTC pain meds every time I had pain. Did not help that my diet wasn't 100% clean and the fact that I have MTHFR and other gene mutations.


Tomorrow I will find out if my mast cells are activated, if I have a lot of histamines, and what kind of food sensitivities I may have with an integrative clinic. If the issue is salicylates and/or oxalates, which will mean I'll have to be on a rather restricted diet for a while. I also bought new body products which are salicylate free, just to make sure I am not putting more toxins into my body even though the other products I have are natural. Sorry for my rant. I just feel so frustrated and lost. Not sure if Lyme is bad or if I am dealing with other issues!


Ps: I've no idea what to eat. There's so many contradictions in each source about food.

Post Edited (tepidautumn) : 12/19/2016 1:02:05 PM (GMT-7)

NotQuiteAntonio said...
Your story sounds a lot like mine; I've suffered from chemical sensitivities for the past year, and, like you, I wonder how much I'm even affected by TBI anymore. Now, I won't say that I'd be cured, if not for these sensitivities, because I still experience things that are definite signs of infection, but I do feel as though this is playing a big part in my not being able to get much better.

Though, I can't say I have much insight for you, as I have not been able to see any knowledgeable doctors when it comes to this, or any of my issues.

Basic methylation supplementation has helped a bit.

Mast cell inhibitors may be of use.

Antihistamines might help. Though, the real goal would be to get your methylation cycle up and running again, settle down your immune system, etc.

As for the food, eat what you feel sets off your reactions the least. If you're anything like me, there's not going to be anything that's totally harmless, so you just gotta work with the safest thing available. Chart your intake using an app like MyFitnessPal to make sure you are getting an adequate number of calories, eat fruits and veggies, use a decent quality multivitamin to make up for what you might not get from foods.

Also, consider your gut function - question leaky gut.

I suffer from that. It's a contributing factor to the sensitivities.

It's tough. I hope the doctors help you. I'm kind of just scraping by - been slacking in the research department.

It's sad, but I have almost gotten used to a lot of the milder reactions, as I feel I'm in a constant state of toxicity.

Methylation supplementation, gut function, and detox - get a sauna, if you can afford it.

Goodness, I am so sorry you are suffering from all that! What kind of supplements do you take for methylation? Do you experience any worsening?

I recently started a new probiotic and I am happy to say that the stools are better formed after only a few days (the strains I have are good for the mast cells too), while it is a very low dose. I just don't think I can handle bigger doses (it's 4billion, but it gets into the gut). I am sure my gut has suffered a lot due to antibiotics and then especially antimalerians. It did not help me when I was taking prescription meds and not eating super well (I didn't fully realize the importance of clean diet!).

Do you know any natural mast cell inhibitors? I hear Quercetin with Bromelain is a good one. I have it, I'd like to try it at some point.

I truly hope you'll feel better. I hope the infections are already gone and you just need to boost your immune system.

I've tried many supplements for methylation, and some of them did provoke negative responses, yeah.

Like I tell everyone, it's a very thick subject, and I couldn't even begin to break it down for you. I don't even have much of a grasp on it anymore, as it's been awhile since I've read up on it. I have too much going on with my health, and in life, that I'm very overextended. So, I put in enough research to get something of a protocol together, basing my choice of supplements on my particular mutations, and then went from there, praying that it'd work.

Some things did, some didn't. For example, TMG, Phosphatidyl Choline, and NAC were serious offenders. Terrible. Nauseous. Though, on the other hand, some of the more common, obvious recommendations, like B12 and an activated folate, I definitely notice when I'm not taking them.

Though, I can't write those other items off entirely, because it could just be a matter of wrong place, wrong time, or trying to force a piece of the puzzle in where/when it shouldn't be there. I may need to supplement for other mutations, affecting a different part of the methylation cycle, before I can supplement for mutations with those. I know that NAC is high in sulfur, and some of my mutations combine to act like the CBS gene mutation, so that's probably why I reacted negatively.

There's a lot to it, unfortunately. If you REALLY think you're being impacted by it, you might want to take a look - the cycle as a whole, the genes' places in the cycle, and then determine how your mutations are ****ing things up, basically. If not that, then I'd just go with the usual B12 and folate, making sure you get the proper kind of B12 for your mutations (me, I'm taking adeno/hydroxy b12).

What I'm taking:

Pure Encapsulations Adenosyl/Hydroxy B12
Jarrow 5-MTHF
Pure Encapsulations Multi T/D
Riboflavin
Biotin
Molybdenum
P5P
Lithium orotate
GABA
Vitamin C
CoQ10

Keep in mind that some of these things aren't exactly for direct methylation supplementation as they are just kind of supportive - hard for me to find the wording for what I mean.

I've tried a number of other things, on top of the aforementioned. Definitely not a perfect protocol, by any means. I am missing things. But, again, I do notice, when I go without any of these supplements.

edit: Regarding natural mast cell stabilizers, there are some natural ones - I've tried the Quercetin, but I wasn't impressed. Though, perhaps I required a higher dose or something? I didn't have the money at the time to experiment any more. May try it again.

Though, there's someone here who's suffered from MCAD that spoke of a prescription medication... Cromolyn, I think. I'd like to try that.

Post Edited (NotQuiteAntonio) : 12/19/2016 4:43:26 PM (GMT-7)

NotQuiteAntonio said...
I've tried many supplements for methylation, and some of them did provoke negative responses, yeah.

Like I tell everyone, it's a very thick subject, and I couldn't even begin to break it down for you. I don't even have much of a grasp on it anymore, as it's been awhile since I've read up on it. I have too much going on with my health, and in life, that I'm very overextended. So, I put in enough research to get something of a protocol together, basing my choice of supplements on my particular mutations, and then went from there, praying that it'd work.

Some things did, some didn't. For example, TMG, Phosphatidyl Choline, and NAC were serious offenders. Terrible. Nauseous. Though, on the other hand, some of the more common, obvious recommendations, like B12 and an activated folate, I definitely notice when I'm not taking them.

Though, I can't write those other items off entirely, because it could just be a matter of wrong place, wrong time, or trying to force a piece of the puzzle in where/when it shouldn't be there. I may need to supplement for other mutations, affecting a different part of the methylation cycle, before I can supplement for mutations with those. I know that NAC is high in sulfur, and some of my mutations combine to act like the CBS gene mutation, so that's probably why I reacted negatively.

There's a lot to it, unfortunately. If you REALLY think you're being impacted by it, you might want to take a look - the cycle as a whole, the genes' places in the cycle, and then determine how your mutations are ****ing things up, basically. If not that, then I'd just go with the usual B12 and folate, making sure you get the proper kind of B12 for your mutations (me, I'm taking adeno/hydroxy b12).

What I'm taking:

Pure Encapsulations Adenosyl/Hydroxy B12
Jarrow 5-MTHF
Pure Encapsulations Multi T/D
Riboflavin
Biotin
Molybdenum
P5P
Lithium orotate
GABA
Vitamin C
CoQ10

Keep in mind that some of these things aren't exactly for direct methylation supplementation as they are just kind of supportive - hard for me to find the wording for what I mean.

I've tried a number of other things, on top of the aforementioned. Definitely not a perfect protocol, by any means. I am missing things. But, again, I do notice, when I go without any of these supplements.

edit: Regarding natural mast cell stabilizers, there are some natural ones - I've tried the Quercetin, but I wasn't impressed. Though, perhaps I required a higher dose or something? I didn't have the money at the time to experiment any more. May try it again.

Though, there's someone here who's suffered from MCAD that spoke of a prescription medication... Cromolyn, I think. I'd like to try that.

Thank you so much for your insight! I hope you keep getting better and better. Were you taking Quercetin by itself? It is hard to absorb by itself, but Quercetin with Bromelain gets into your system better. I think Activated Quercetin does too.