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Posted 1/4/2017 1:49 PM (GMT -5)
Been lurking long enough. Out of the shadows I come smile.

My knees are quite swollen and painful. I was wondering if this this symptom ever resolves itself over time?

I was diagnosed May of 2015 with lyme only. I suspect I've had lyme for at least 20 years.

I was just tested for mold and retested for co-infections (quest) . All negative! My cd57nk count (done by labcore) is 138 up from 38 (18mo. Ago) I have had 18 months of oral antibiotics. Now I'm doing Cowden protocol. So far so good but everyone knows this is a crapshoot.

Thanks for your help. Candy
Posted 1/4/2017 1:52 PM (GMT -5)
Lyme spirochetes have a reputation for causing that to happen to many people.

It will resolve eventually, if you get the Lyme under control to where you have no symptoms of any kind. That is unless real damage was done to your cartilage, etc. An MRI should be able to detect that.

Is this the last symptom you have left? You might need an alternative form of treatment to get the bacteria out of your deeper tissues where abx doesn't reach, and continue treatment for at least 2 months past your last symptom.

ETA: The swelling is likely due to inflammation, bringing in excess fluids. So herbal treatment such as Japanese Knotweed, and other herbs can help deal with inflammation, but you might also benefit from detoxing.

If you haven't already, we want to encourage you to read our first topic "New to LYme?...start here", in there is a section on easy de-tox methods that really help.

Post Edited (julymorning) : 1/4/2017 11:55:59 AM (GMT-7)

Posted 1/4/2017 2:09 PM (GMT -5)
Hi Purrisankitty - welcome to our community!

I am also wondering the same as julymorning - if this is the last symptom to leave.

Were you on several different antibiotics during the 18 months of treatment?

Just an FYI - the testing for co-infections is not reliable/accurate...so testing negative...doesn't mean a whole lot...you could still have a co-infection.
Hopefully you don't - since you only have the one symptom left.
Posted 1/4/2017 2:53 PM (GMT -5)
Hi Julymorning. What treatment is most effective against deep tissue? Thank you.

julymorning said...
Lyme spirochetes have a reputation for causing that to happen to many people.

It will resolve eventually, if you get the Lyme under control to where you have no symptoms of any kind. That is unless real damage was done to your cartilage, etc. An MRI should be able to detect that.

Is this the last symptom you have left? You might need an alternative form of treatment to get the bacteria out of your deeper tissues where abx doesn't reach, and continue treatment for at least 2 months past your last symptom.

ETA: The swelling is likely due to inflammation, bringing in excess fluids. So herbal treatment such as Japanese Knotweed, and other herbs can help deal with inflammation, but you might also benefit from detoxing.

If you haven't already, we want to encourage you to read our first topic "New to LYme?...start here", in there is a section on easy de-tox methods that really help.

Posted 1/4/2017 4:07 PM (GMT -5)
I do have some remaining issues..
Insomia, fatigue, although some days are better than others, the swollen knees, and the head hummmmm. I hate that! Heart palps are getting less frequent.

The 2nd day on cowdens protocol, I took the detox parsley/Pinella/burbur and 3 minutes later the head buzz pitch increased dramatically. Later in the day, the buzz died off to almost nothing.

Cowdens has me drinking 3 to 4 quarts a day...So that's got me detoxing for sure. Cowdens does use several detoxing herbs.Also, Cowdens herbs hit lyme and most all coinfections.

My 18 months of oral ABX were azith/doxy/ceftin with a short term of dapsone (recommended by DrH) for the "persisters." My gut cannot take any more antibiotics, as I recently lost half my intestine and went through chemo that almost killed me. Pretty sure the lyme caused the cancer....

The most recent testing that showed for the 2nd time negative for coinfections....surprised me too as well as llmd, but she does think based on my remaining symptoms, she wants to stay after the lyme and feels confident we may just truly be dealing with lyme.😊Thanking God, I have none of what would stand out as co infection symptoms.

I do believe I am making progress. My last C4a done by quest was 2963..A short way to go to "in range" at 2830. Come on immune system!!!

Oh yes...My last lyme band test (igenix igm) showed me positive double ++ on band 41 and + on 83-93. ONLY

My appetite is sort of coming back. I am strictly staying SF/GF. I don't react to dairy but I do kekir.

Thanks for the responses and any input to the above is appreciated...Candy
Posted 1/4/2017 6:29 PM (GMT -5)
My knees are my most debilitating symptom and there have been many times I have barely been able to walk due to the pain and inflammation. I avoid the foods that increase inflammation for me, but the biggest help for them has come from acupuncture which I started last July.

my acupuncture doctor is a medical doctor as well as a long term practicing acupuncturist and herbalist. And he had lyme a decade ago so he understands. He works on my knees and my immune system and for me this is helping immensely.

I can even sit with no pain much of the time now and i am sure you understand what a huge huge achievement that is!! I am not healed by a long shot but I feel so much better a lot of the time.
Posted 1/4/2017 6:30 PM (GMT -5)
Hi Purrrsiankitty, I have swollen knee and foot. Knee since May, foot more than one year. Nothing helped me so far, only antiflammatory drugs are able to reduce pain and inflammation. This is so devastating...
Posted 1/4/2017 6:48 PM (GMT -5)
So if h pylori ,a spirochete can cause stomach cancer i totally agree that borrelia is the cause of many others ..hpv and ebv cmv may all play a role too at the conference the lady from ny showed one of her lyme patients that had huge swollen knees ...then the after pics (after 3 months of bee stings )and the weird deformities were down 3 inches !..

Bee venom is anti carciniginc too ...immune boosting ,antiviral ,antilyme pain relief and inflammation reducing ..consider adding it to your herbs ..also rife has brought back people from stage 4 ..plasma rife ...

the lady at www.dnafrequecies.com has a list of illness and pathogens and has been right for me 2x..welcome you are quite a warrior
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