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Posted 1/19/2017 3:54 PM (GMT -5)
Can everyone please list the core symptoms that you have over and over again with each lyme spell or sickday? Just list the ones that are repetitive. Does anybody have alot if issues on one side of the body? I have had pain on my left side, my foot, my lower leg,my legt side of the abdomen,chest pain on left side etc?just wondering if im strange or if this happens to anyone else.also females do these core symptoms pop up every month prior to starting your period? Please help me,so scared and tired of wondering if other people feel what i do? I need to know to help reduce the fears . I have had a million symptoms over the course of this illness but i have a core group of tbings that happen every time im in " my bad lyme spells". Mine are
Chest pain/irregular heart beats
Severe headaches
Left side pain
Left foot pain/swelling
Left lower leg pain
Neuropathies
Neckpain
Faintness
Dizzy
Brainfog/confusion
Anxiety
Posted 1/19/2017 3:57 PM (GMT -5)
Oh my gosh, Hope2heal, any one of us would fill up a whole page with our repetitive symptoms. Everything you've listed and more.

Welcome to our forum! We have an intro at the top of the threads that says "New to Lyme?....start here", which we encourage all new people to read over.

It actually contains common symptoms of not only Lyme, but links to symptoms of other common tick borne diseases.


I'm so sorry you're having to go through this...Lyme and the co-infections some of us get are miserable...but try not to be scared, because strong emotions are hard on our immune system and will ramp up our bad symptoms.

(((hugs)))
Posted 1/19/2017 4:00 PM (GMT -5)
More of my symptoms are on my left side, too. Here's a sample of mine:

Nerve pain - left shoulder blade/arm/hand
Shivers - entire upper body
pressure in my head behind eyes (had resolved.came back..and getting better again)
left hip (newer symptom..getting better)
left shin nerve pain (newer symptom...getting better)
pulsatile tinnitus - worse on left side
left rib - pretty good now....have periodic episodes
right shoulder - front - pain when arm in certain positions.
sweats - upper body, and back of hands
short term memory loss

I don't have my periods anymore...they stopped completely when Lyme hit me.
Posted 1/19/2017 4:05 PM (GMT -5)
I wanted to ask if you've been on any kind of treatment, or seeing an LLMD? That's a Doctor well versed in Lyme and the beneficial treatments.

Our hormones, the full moons do affect the symptom activity, and the bacteria/organisms have cycles of their own to boot. It's a good idea to be aware of these occurrences and increase our de-toxing methods.
If you aren't familiar with de-toxing there is an excellent section about that in our intro. It's almost vital that some kinds of de-toxing be used in order to help the body operate well enough.
Posted 1/19/2017 4:07 PM (GMT -5)
Oh gosh, I just realized you are a new member!

Welcome to our community, Hope2heal!

We do encourage all new members to take a look through the thread at the top of the page titled: "new to Lyme?..Start Here!'
It's packed full of useful information.

I also wonder, along with julymorning if you are in treatment yet?
Posted 1/19/2017 4:12 PM (GMT -5)
tongue Girlie.


Hope2heal, you're going to get a bunch of welcomes, we're a very supporting group of wonderful people here.
And as you can see, that intro is pretty important.
Posted 1/19/2017 4:35 PM (GMT -5)
Hi Hope2heal!
Welcome to our community! I'm so glad you found us.

Yes! I have groups of symptoms that seem to come back repeatedly, then those will change to another group of symptoms that will come back over and over, then it will change yet again.

Some people have only one side mainly affected, and others (like me) will have both sides affected, although I have more issue with my right hip than my left hip, for example, but both sides are affected.

Please do read through our "new to Lyme?" thread if you haven't yet, it's packed with all kinds of helpful information and detox ideas.

I have the same questions about if you are seeing a LLMD or if you are doing any kind of treatments yet?
Posted 1/19/2017 5:33 PM (GMT -5)
Howdy Hope..
If you've ever seen the Lyme symptom list with a total of 122, I had 109. Of those on the original list I didn't have, brain fog, fatigue, and swollen knees. They got me later. Actually these three are worse than the whole original batch combined. However, many of my originals have gone away, knock on phone screen. OK anyone understand what I just said cos I sure don't! Oh yeah head started buzzing..The worst of them all. 🤐 Oh yeah insomnia, had that for years...And that Cindy Crawford beauty mark turned out to be Bart! Crap!

And welcome 😚
Posted 1/19/2017 7:53 PM (GMT -5)
Just wanted to stop by and welcome you to the forum.
Posted 1/19/2017 10:42 PM (GMT -5)
Welcome to the forum!! Hope this helps you.
recurring symptoms, but I'm only just starting 5th month of treatment tomorrow:
usually these are low level, sometimes only few hrs day now or less, but sometimes strong after suppertime.(530-7pm)
electric/buzz/current in back of lower head/neck
ear thumping(was all gone after 2 months doxy but now back but milder)
twitching in eyes, arms, legs, side
stiffness in legs,soreness in legs, weird sensation in legs.
soreness in right side hips
heat sensation in head
Cabin fever(this winter is dreary need more sun)

Symptoms had but now gone(hopefully for good):
severe heavy numbness in head, arms , legs, torso.
strong waves of thumping/numbness combined in head/neck
head/ears felt blocked
light sensitivity,sore teeth,jaw
throat felt like it would close up from numbness
head pressure on top
heat sensations before numbness would start
extreme feeling like bladder infection/insides felt so sore
fear of dying/being alone almost like the baby blues
Posted 1/20/2017 12:02 AM (GMT -5)
welcome.
my body is not discrimid against with these organisms i get a few of your symptoms on both sides of my body so most if not all of us can relate big time. no, your not crazy each of us are in our our own bubbles being pounded by lyme daily.
we are giant disfuntional family so welcome to the group.
Posted 1/20/2017 1:08 AM (GMT -5)
Welcome!!

I hope you find the community helpful. If you stick around, you'll learn a lot and find you're not alone in this.

I too have more symptoms on my left side! Interesting!!
Left Stuffed ear /tinnitus
Left kidney pain
Left arm/shoulder/neck stiffness
Left foot toenail mysteriously sore, stopped growing now new one growing underneath

I do have a few maladies on the other side however. Jaw pops out on the right and right hip/pelvis joint pain.

On a sick day I have a headache and debilitating fatigue. Symptoms wax and wane.
Posted 1/20/2017 1:42 AM (GMT -5)
Hope2heal welcome to our community and as others have said do read the 'new to lyme' thread where you will find lots of useful information.

My multitude of symptoms were/are evenly dispersed left and right !! Sometimes one side will be bothering me more than the other so it does alternate but is not specific to one side.

Flare up frequency is definitely monthly though and coincides with the full moon each month. I am much better than I was but still notice a dip in energy and an increase in symptoms around the time of the full moon each month so I try and do extra detox, limit stress as much as I can if at all possible round this time. It lasts around 8 days - I have started writing it on the calendar to keep track.
Posted 1/20/2017 3:56 AM (GMT -5)
Welcome ,yes left is affected More so..are you treating bartonella?
Posted 1/20/2017 9:07 AM (GMT -5)
Lightheaded/Tipsy/Woozy/Drunk feeling. Initially was ALL day long. Has decreased but still >50% of the time.

Mental Fatigue. Not physically tired, and although mental fatigue I don't want to nap.

Uncommanded full body muscle twitching. Has decreased DRASTICALLY with exercise.

Old Symptoms

Left Foot - Pins and Needles + sharp pains on bottom. Neuropathy. Both symptoms more pronounced in bed at night.

Extreme chills without fever or sweat.

Muscle pain. Full body, but especially at site of EM rash.

Stabbing pain lower right abdomen. Thought my appendix was on the verge of bursting.

I'm just at the 7 month mark from EM rash, positive CDC test from quest and beginning treatment. I'm not recovered but i'm definitely improved. For a couple months my baseline was about 20%. Now i'm 60-85%.

Treatment was (in order).

1 week doxycycline (100mg x1/day)

5 weeks amoxicillin (500mg x2/day)

4 weeks IV Rocephin

Approx 6 weeks combo of Minocycline/Rifampin (100mg x2/day & 600mg x1/day).

1 month Sida Acuta & Cryptolyptus

2 weeks Doxycycline (100mg x2/day).

***I don't plan on taking any additional antibiotics.
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