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Posted 1/21/2017 8:49 AM (GMT -5)
Hey everyone! I am new here and had a question about some supplements. Backstory- I have been having neck pain/headaches and fatigue for 10 years- seeing neurologist and primary care doctor for it. Got diagnosed with Fibro, have been treating that for the past 10 years with medications, shots, painkillers, muscle relaxers. The past couple years it has been going down hill and the neck pain has been getting worse to where it is hard to function and it is constant. I was tested in 2014 for the normal lyme test at my doctor, only IGg 41 was positive. I was tested beginning of January again and again only IGg 41 was positive.

I have basically every symptom of lyme, so I decided to pursue this further than the above unreliable bloodwork from my doctor. I found a LLMD and saw her yesterday. She wanted to do tests from IGenex for lyme and co-infections so that was ordered and is being done.

My question is- She gave me a huge list of supplements to start now- many are exensive (one being the tri-fortify). Are these beneficial now if I really do not have lyme? I have no problem doing them once I hear back with the results. She also wanted me to start on a detox diet of sugar and gluten free. Below are what she wants me to take.

similax 425 mg- one twice daily
cilantro 15 drops 3 times a day
activated charcoal 250 mg nightly every other night
flora ultra-strength one daily
omega-3 fish oil 1tbs twice daily
b-complex one daily
alpha-lipolic acid 250 mg one daily
tri-fortify 1tsp daily

Thanks!

Cindy
Posted 1/21/2017 11:16 AM (GMT -5)
Cindy your doctor is trying to detox your body and make it as strong as she can. I see nothing wrong with her suggestions.

Yes, it can get expensive. Discuss the financial part with your doctor. Maybe there is something she can suggest. We sometimes have to educate our doctors on the cost of all of this healing.
Posted 1/21/2017 11:36 AM (GMT -5)
You might ask your doctor if she has checked your vitamin D levels. Couple other things I used during detox was vitamin C and NAC. You might ask your doctor about those. They are not very costly.
Posted 1/21/2017 12:05 PM (GMT -5)
Hi Cindy!
Welcome to our community! I'm so glad you found us.

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

​ And, here's another good place to find helpful detoxing routines: ​http://www.tiredoflyme.com/detox-methods.html​​

​ You said that you have every symptom of Lyme, and were diagnosed with Fibro for a long time - that sounds like quite a few members here, including me - yet we really had these infections all along. As PeteZa has said, your doctor is trying to get your body prepared for treatments. Detoxing and eliminating sugar are two big steps in that direction.

Keep asking questions! The learning curve for these infections is incredibly steep! We are here to help you as much as we can.
Posted 1/21/2017 1:38 PM (GMT -5)
Cindy,
Welcome to the community. Good for you for seeing an LLMD. Unfortunately, in my experience, getting health back if lyme or "probable" lyme is in the cards is really costly. You might want to ask your Dr. what the least costly plan of action is to achieve what she thinks needs to be achieved. I spent around $5,000 on my health out of pocket last year. Blew through my savings and deferred my student loans for a year.
Posted 1/22/2017 11:23 AM (GMT -5)
Thanks everyone. I appreciate the feedback.
Posted 1/22/2017 11:37 AM (GMT -5)
Another question. She said to get Similax- I cant find that when I search, does anyone know what that is and where to get it? thanks.
Posted 1/22/2017 12:11 PM (GMT -5)
Hello welcome, similax is also sarsaparilla if im not mistaken, woodland essence should have it woodlandessence.com its actually in my herbal tincture i take mcbar 1,.
Posted 1/22/2017 12:51 PM (GMT -5)
Ahhh you are correct! I have been reading it incorrectly the whole time.. It is Smilax.. not Similax.

Thank you!
Posted 1/22/2017 12:54 PM (GMT -5)
Welcome. Here's hoping you will see improvements in your health.
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