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New symptom...heel pain

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Posted 2/3/2017 11:15 AM (GMT -5)
Going on 3 weeks off of abx and I think symptoms are starting to come back.

The last few nights, I get very bad pains in my heels while sleeping (right at the spot where you would get a blister from new shoes lol). I can't even let them touch the bed because of the pain; I have to change positions.
Has anyone else had this?

The front of my legs/thighs ache today a lot (like when you have mono). Everything else seems to be happening in my shoulders, neck, and head still. I now feel like I have arthritis in my head (maybe C1-C2?). Certain movements are excruciating.

My appt with the new dr is on the 16th. I can not wait to finally (hopefully) have an answer to what's going on with my head!
Posted 2/3/2017 11:32 AM (GMT -5)
The heel pain is definitely a Bartonella symptom. All the other symptoms you are experiencing can be Bart or Lyme..
Posted 2/3/2017 12:08 PM (GMT -5)
I'm so sorry, Pmm!! This is one of my most bothersome symptoms -the only one that's higher on my list is by Barty bladder!! And that's because it's a pain to deal with!

I too have to be careful to not allow much pressure on that part of my heal, even when in bed. I usually have to sleep on my side to avoid it, with a pillow between my knees to avoid massive hip pain the next day, and a pillow between my arms to help the cervical spine stay just a little bit straighter too.

I use heat and ice packs regularly on my cervical and thoracic spine, depending on if I think the pain is more from inflammation or from those muscles getting tight and pulling on my spine. I get muscle cramps in that area too.

Keep trying different things to bring you just a bit of relief until your appt.
And best of luck at that appt!!
Posted 2/3/2017 12:17 PM (GMT -5)
Barty bladder?
Posted 2/3/2017 12:23 PM (GMT -5)

Traveler said...

I too have to be careful to not allow much pressure on that part of my heal, even when in bed. I usually have to sleep on my side to avoid it, with a pillow between my knees to avoid massive hip pain the next day, and a pillow between my arms to help the cervical spine stay just a little bit straighter too.

Sorry to hear you have it too! It's so uncomfortable. I have to keep shifting on to my side to sleep (with a pillow between my knees, too, for hips smile ). But I can't sleep on my sides for too long because my shoulders start to hurt. I think I move around more at night trying to sleep than I do all day long!! lol
Posted 2/3/2017 12:30 PM (GMT -5)
LOL! Yep, Barty bladder - that's what I call my Bart bladder symptoms (interstitial cystitis), as it's a lot easier to type and to say!! LOL!

PMM - try using a "neck roll" right below your pillow. This first article in this series shows and explains it pretty well. You can use a towel to see if it will help, but a pillow that is made to support the neck while sleeping is much more effective.

I went the extra mile and bought a special pillow that would support my neck properly while laying on my back so my neck wasn't at an usual angle, and while I sleep on my side and it's been a real huge help to me. I started out using 'neck rolls' to see if it would actually help me though.

I've found that on my bad days, if I will use heat first on my neck for 20 - 30 minutes, then about an hour later, using ice when I go to bed, and use my pillow, I usually do much better with pain levels in the cervical spine area at least!
Posted 2/3/2017 1:14 PM (GMT -5)

Traveler said...
LOL! Yep, Barty bladder - that's what I call my Bart bladder symptoms (interstitial cystitis), as it's a lot easier to type and to say!! LOL!

PMM - try using a "neck roll" right below your pillow. This first article in this series shows and explains it pretty well. You can use a towel to see if it will help, but a pillow that is made to support the neck while sleeping is much more effective.

I went the extra mile and bought a special pillow that would support my neck properly while laying on my back so my neck wasn't at an usual angle, and while I sleep on my side and it's been a real huge help to me. I started out using 'neck rolls' to see if it would actually help me though.

I've found that on my bad days, if I will use heat first on my neck for 20 - 30 minutes, then about an hour later, using ice when I go to bed, and use my pillow, I usually do much better with pain levels in the cervical spine area at least!

Traveler, do you have ongoing I/C symptoms? I still can't comprehend that my urologist was in denial or totally ignorant of the IC/BART connection.
Posted 2/3/2017 1:28 PM (GMT -5)
Unfortunately, yes. I have ongoing I/C issues. =( I get sooo frustrated with it!!

And I know that it's directly connected to my Bart infection. It IS amazing that doctors that know so much can't comprehend that these bacteria can do these things. They are definitely closed minded.
Posted 2/3/2017 1:49 PM (GMT -5)
Traveler, I ran across this article while looking up a lyme/gall bladder issue for my daughter this morning.
This is on the bladder cystitis issue.

lymemd.blogspot.com/2009/06/interstital-cystitis-and-lyme.html


Unfortunately the article offers no helpful suggestions at all, IMO. Esp. since he keeps harping on abx therapy.

At least it's conclusive they're connected.

Post Edited (julymorning) : 2/3/2017 11:52:23 AM (GMT-7)

Posted 2/3/2017 3:19 PM (GMT -5)
July, even though he's a pharma abx doc, I do like his blogs! They are very revealing for finding information.
Posted 2/3/2017 4:06 PM (GMT -5)
Count me in for brutal heel pain. In a boot for 2 months I think. It's much, much better in the last few weeks, and although bad moments come & go, it is now tolerable when I try to work out and when Ii walk. I still have pain with any weight bearing, but it doesn't get worse when I am actively on it now. It would just keep hurting before, weight on or weight off when I was trying to sleep/relax... the boot didn't even help at first, but it allowed me a bit better mobility simply with cushioning... it sucks. It started for me very badly 10 months ago.

Honestly, I never even considered it to be Bartonella until I talked to you all on this board... now that I am healing with treatment and feeling better in most ways, I can definitely say that it is related to this crappy bacteria.

I'm actually happy to know now what it is... it was freaking me out...
Posted 2/3/2017 4:38 PM (GMT -5)
My left heel is so inflamed and sore today I can't put weight on it. The inflammation is also causing the blood vessels in my ankle to rupture and bleed under the skin.

Bartonella? After feeling symptom improvement away from home, I decided my problems were likely due to mold. I did an ERMI test on the house and got 22.5 (way high). Also did an HLA DR test on myself and came up with low MSH and Multisusceptible / Chronic fatigue. I am going away from home again tomorrow for a longer period of time to test my theory that my house is making me sick... I hope I don't have bartonella to deal with as well.
Posted 2/3/2017 5:34 PM (GMT -5)
bdavis, I hope so, too... I never thought about mold causing that but I've learned that anything seems possible with us.

I know my issues are not mold. We tested our home and work and all was well... I too struggle with basically no MSH and multi susceptible HLA DR... but it has been pretty well laid out that it is Lyme & Co-Infections for me... Bart seems to be my biggest nemesis at present... I was confirmed no fungal issues/no mold ... and positive Lyme/Bart/Myco/parasite. Since working on those things, my heel pain has diminished.
Posted 2/3/2017 5:51 PM (GMT -5)
3HC, do you know if the multi susceptible HLA DR haplotypes have to do with detoxing in genereal, or just mold / lyme? I am wondering if this could also be a reason why some people (me included) accumulate heavy metals.
Posted 2/3/2017 6:29 PM (GMT -5)
Not sure but I've been having bad pain in my ankles since I've been taking amox
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