HealingWell
Search Close Search
☰

New member

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/31/2017 9:46 PM (GMT -5)
I see you have a tremendous amount of info here. I shall be happy to read it. I was diagnosed with Lyme last year about a year after I became infected. After three weeks of antibiotics, I felt much better. But in a few weeks the symptoms returned. I was retested and told I am clear but I know I am not. So, presently, I am being tested and treated for other things.i see a neurologist the 13th and I am hoping she will at least listen to what I tell her. I love to be outside but for some reason ticks love me. The Summer I got infected, I had six bites! Our dog never had a one!
Posted 3/31/2017 9:57 PM (GMT -5)
Hi Ryman, welcome to our community!

I'm glad you have found your way here (sorry you have Lyme disease, though)

Be prepared for the Neurologist to say you've been sufficiently treated...and don't have Lyme disease anymore.
(Unless she is a Lyme Literate Neuro)


Testing can not be relied on - only symptoms.

Are you interested in finding a LLMD? We can help with that.

Start a new thread titled: "Looking for LLMD in/near______" and fill in the blank.
Then enable your email option so members can send you names privately. We don't post the names on here - for privacy reasons - we need to protect our Dr.'s.

You can also email me and I will look at my list and see if I have a LLMD in your area. Just click on the envelope under my screen name on the left.

Also - you can contact ILADS for LLMD names.

ilads.org/ilads_media/physician-referral/


We encourage all of our new members to read through the thread at the top of the page titled: "New to Lyme?..Start Here!' It's packed full of useful information...

May I ask what other 'things' you are being treated for? I hope it's not an autoimmune disease and they've put you on steroids.
Steroids will suppress your immune system...and this can cause the lyme bacteria to flourish..you don't want that!
Posted 3/31/2017 9:57 PM (GMT -5)
Hello! Did you read our intro "New to Lyme? yet? That's the best place to start.

Glad you have found us.

Yep, you're learning 3 weeks of treatment isn't enough, especially since you were infected that long before the diagnosis, and if you only were given one type of antibiotics.

Warning, unless the Neurologist is trained in Lyme according to ILIAD'S guidelines, you're just going to get a lot of testing done for other things you likely don't have, then get the run around and possibly be told you're suffering from phantom symptoms.

You might want to find an LLMD which is a Lyme Literate Doc. Few and far between unless you live in California where they seem to be able to treat with the 'less conventional' methods CDC doesn't approve of, unimpeded.

Symptoms usually tell a larger story than the test, because of the way the bacteria hide and disguise themselves from our white blood cells.
Posted 3/31/2017 9:57 PM (GMT -5)
lol - julymorning - we were posting at the same time. tongue
Posted 3/31/2017 9:58 PM (GMT -5)
Oh crud, beat me again! LOL!

Ryman, unlike many other groups, we actually race to try to help people.
LOL.
Posted 3/31/2017 10:51 PM (GMT -5)
Thank you all so much for your replies, and so fast. I look forward to reading all the info posted about Lyme. I rather doubt in my rural area there would be a doctor who knows Lyme well, although PA has one of the highest rates for it. They tested me and said I didn't have it, then sent me to neurosurgeon saying I had water on the brain. After more tests, he said I had Lyme and that the number was 5 times what it should have been. He asked my pc if he was treating me and was told that he was. Not! So I changed doctors. The one I have does listen and try to get to the bottom of things. I just may have to push a bit. They have checked for kidney disease, said I have low oxygen level and are doing another brain MRI and a heart monitor halter test before I see the neurologist. But the symptoms are just like before, only worse, so I feel sure it is the Lyme. My problem is that antibiotics themselves are very hard on me. Most medicine is, my whole family is very sensitive to drugs. Thank you all again for the welcome. I know I will need your help and support.
Posted 3/31/2017 11:08 PM (GMT -5)
Ryman - Many people don't treat with antibiotics - there are herbal treatments that you can do.

A couple of the popular protocols:

- Buhner

- Cowden

S. Buhner has books for each infection (Lyme rarely comes alone) with full protocols listed.

Cowden has an online schedule.
Posted 3/31/2017 11:10 PM (GMT -5)
Here's the Cowden schedule:

www.nutramedix.ec/ns/component/content/article/74-program/244-cowden-support-program-schedule

Here is the website where you can see Buhner's basic protocols - but the books are more comprehensive

buhnerhealinglyme.com
Posted 3/31/2017 11:26 PM (GMT -5)
Thank you. I will check these out tomorrow. It would be great not to have to struggle with antibiotics.
Posted 4/1/2017 6:50 AM (GMT -5)
Hello and welcome😊

I am familiar with the cowden protocol. Feel free to ask if you have any questions.
Posted 4/1/2017 8:46 AM (GMT -5)
Hi Ryman!
Welcome to our community! I'm so glad you found us!

Julymorning and Girlie gave you a great amount of information, so I'm just here to say welcome!! And to let you know to ask all the questions you need to, and we will do our best to point you to good information and help where we can!

Many here are using different herbal protocols, so you can get a lot of help with them, plus you can use an herbalist if you get stuck.
✚ New Topic ✚ Reply