Well I may have *one* clue now to my jaw issues...

Hey Friends,
Just wanted to update on my dental cavitation surgery/disaster/crazy-ville/twilight zone situation. And it was a turn I definitely was not expecting.

Quick recap: Cavitation surgery last Dec. on 2 past root canal extraction sites, and 2 wisdom teeth extraction sites with a biological DDS in the US. Surgery started off poorly with a non-reaction to local anesthesia. Felt the whole procedure and was not able to get the pain under control for at least 24 hours. I think this was the key to the failure. It sent this already weak body into a stress immune response. I developed Aphthous(viral) ulcers at the sites a week later, a secondary jaw infection 3 weeks later, and then a systemic viral infection which left me in bed for months. I was told the ulcers would go away in a few weeks. I still have them.

When I returned home I followed up my LLMD. (this is the one I was going to fire, but now am having second thoughts?). He swabbed one of the ulcers. The ONLY doctor to do this. A DDS, 2 Oral surgeons, and another LLMD didn't think to.

Fast forward to yesterday. I had an appt with the Oral/Maxillofacial Team concerning my case. They didn't even LOOK in my mouth, at the ulcers, the still inflamed extraction sites. They looked at a CT scan and said nothing is wrong with me. I just need braces. Deja vu. They told me this 2 years ago. I reminded them of that and that I actually DID have a raging infection in my jaw that I had to go the US to get treated. They said, "well you don't now". And booked me for an appt for physical therapy for my TMJ muscle. I left in angry tears, but honestly what was I expecting? This university hospital my LLMD calls "an institution practicing medieval medicine run by teenagers." LOL

Later yesterday evening I had an appt with my LLMD for my results/lab work and culture swab from last month. Wasn't expecting much. Before hubby and I even had our rears in the chair, he said, " You have HHV7 and it's the highest number I have ever seen." What now, wha? I have heard of HH6, but not HHV7. He said, besides HIV it's one of the highest immune suppressing viruses out there. And it co-infects with mycoplasma. And since my ulcers are at my surgical sites it's a very good possibility that the virus has taken up shop in my jaw. So we are starting an anti-viral, azithromycin (for mycoplasma), and Lysine. And I will be doing some herbal antivirals on my own. I guess I can't fire him just yet.

As strange as it sounds, I am happy to know, ONCE AGAIN, it's not all in my head. We were making plans to find another bio dentist to go through this all over again. And if this doesn't help, or the jaw pain continues, at least we have time to save up for that cost again. I almost want to take these findings to the oral surgeons and rub it in their faces. Especially since they didn't even look in my mouth. Ugh. Haha. But I suppose I'll take the higher ground.

I'll look thru past threads about it. ;)

We keep fighting!!

@blue- ha, yep!! :/

Here is a site I used for finding a biological dentist. /iabdm.org/location/

Hope it is helpful and so glad you have some answers.

Love the medieval facility run by teenagers .... I had to look up diligaf and then spewed coffee on my monitor laughing so hard.

Ha mah bad peteza ...its like the mantra of the millenial teenagers and the healthcare sx as a whole

I am still amazed at how many dds and oral surgeons missed a massive infection in your jaw! That must happen to thousands of sick people-who never treat it and never get better.

Interesting-Dr M couldn't num me one big surgery (sinus lift). rough day!
Let us know if treating virus helps-bust of luck

Yes!!! That hopeless feeling sets in with me regularly still! Fortunately, it's not as often most of the time now though.

But, what we have to understand is that unraveling all of this is the only way we will heal, so it's good to know the name of your "monsters", so that you can do battle with them effectively and not be swinging your 'sword' wildly trying to just hit 'something'. Targeting the specific mix of infections in your body will have you able to heal much faster.

So, as hard as it is to hear that you have yet another infection - it's really something to celebrate, as you now have another name of an infection that you can treat to get you healed!

That's it! One foot in front of the other - because we KNOW how horrid we feel if we do nothing, so moving forward (however slow it may be) will bring some relief at least, and will get us that much closer to healing!

If I'm able to resonate with you - it's because you and I have had the same issue to deal with, and since there's so many to choose from (), we can help each other as we face some of these trials! That's the beauty of forums like this one - no matter where we live, we can find others going through the same things and give and receive help!!

So, one foot in front of another for both of us - and many others too. Every great journey begins with taking one step, then another, then another. Together we can conquer these monsters!!