Hi 10. What are you being treated for? I have Lyme, Bart and Babs, and unrelenting headaches have been, by far, my worst symptom.

I didn't see a change in my headache pattern until I started treating for Babs. After treating with Mepron and Zith for 3 months, I have days without headaches. That said, when I do get headaches now, they're different.

Like you, a lot of my headache pain is now frontal, around and behind my eyes. I, too, have occipital bone pain. My LLMD thinks these new headaches are more representative of Bart, which I'll be treating next.

In the meantime, I find Excedrine Migraine, which I've never used before, helpful for these headaches. Ibuprofen also helps me in high doses. When that doesn't work, I have a prescription for Fioricet that I use when only absolutely necessary (contemplating a trip to the ER-type headache).

Have you ever tried CBD oil? It's legal cannabis oil -- without the THC. It's not a cure-all, but it does dull the pain and it doesn't eat away at my stomach like NSAIDs.

My LLMD also suggested Pinella Brain Nerve Cleanse. I use that regularly. I'm not sure how much it helps with headaches, but it is supposed to help with toxin removal.

My ND suggested Chinese Skullcap, which I didn't get relief from, but some have. I know some here have also found relief with Kudzu Root.

I hope you feel better soon. Headaches can be so debilitating ... and demoralizing. You will get better!
Kelly

I also had horrible head pain. It was not like my life long migraines, it was not like a hangover, it was not like a sinus headache. This is horrible and unrelenting.

Treatment was the only thing that made it go away. I tried everything!!!! I tried narcotics and it did not even touch it. I got some relief from Benadryl, but it was only as long as a long nap, but that was worth it. I did Children's liquid - gross cherry stuff, but hey, it worked.

Then one day we went to an alpine lake and went swimming. Oh my gosh that cold water on my head stopped the pain. Then I was the cold shower queen. I took 5 quick cold showers one day just to get rid of the head pain.

Just keep searching and you will find something that works. I think it is different for each one of us. Lyme treatments are a hide and seek game in my opinion.

I sincerely hope you find relief because I remember this pain so well and I really do feel for you.

Imitrex was only good for me if I did it immediately when I got the migraine. I would get migraines in the middle of the night, so my doctor gave me maxalt. You can take that anytime during a migraine and it is awesome!!!

But neither would touch my lyme head pain.

10LymeB since your periods coincide with your cycle, have you considered progesterone cream?

Dr. John R. Lee's book and website were very helpful to me for hormone problems. He has a list of companies that produce the "real" thing. Mostly bio identical.

I used it when I went through menopause for the transition and I highly recommend it. I wish I had of used it all those years when I was estrogen dominate, but not diagnosed as such. I would have had a lot lovelier life.

I also love Susan S. Weed -- she says this:

Herbs that help relieve headache without a drug-like action - such as dandelion, yellow dock, milk thistle, burdock, garden sage, skullcap, and St. John's/Joan's wort - are generally considered safe to take with hormones.

~ Chinese herbalists say headaches are caused by liver stress. My favorite liver-strengthening herbs are dandelion, yellow dock, milk thistle seed, and burdock. I use one at a time, a 15-25 drops of the tincture several times a day, for two weeks. If symptoms continue, I switch to a different herb.
~ A strong tea of garden sage leaves (Salvia officinalis) offers immediate relief from headaches and helps prevent future ones. It also reduces night sweats.
~ Tinctures of skullcap (Scutellaria lateriflora) and St. Joan's/John's wort (Hypericum perforatum) ease pain and relieve muscle spasms. Use 5-20 drops of skullcap and a dropperful of St.J's at the very first sign - no, the very first thought - of a headache. Repeat the doses every five minutes until pain free. Skullcap can be quite sedative, especially in large doses.

I suffered so long before any of this was available.... I will surely make sure that my grand-daughters don't suffer like I did. Horrible menstrual pains. I actually passed out once in high school - embarrassing. There was no ibuprofen in my day, imagine that. I will never forget getting my first pill called Anaprox. What a lifesaver.

I'm so sorry.... I know this pain all too well....

But you did make me laugh. Murder your pillow, okay?

I told hubby once that I was going to go in his garage and put my head in his vice.

i have heard some say that alinia got rid of their headaches for me it was bvt

Early on after my diagnosis, I was suffering from daily headaches. While not at a migraine level, they were certainly strong enough to really wear on me.

At the suggestion of a few folks, I tried chiropractic treatment. After being adjusted twice, the headaches simply disappeared. While I can't necessarily point to chiropractic as the sole reason for my headaches resolving (I was also treating Lyme with minocycline at the time), the timing between adjustments and near-immediate resolution leads me to believe that the chiro sessions certainly helped.

I hate to be the negative nancy... I've had a headache 24/7 for about 4 years straight. I've tried most things stated in this thread and nothing has changed mine.

I second using Kudzu tincture. I had been having ongoing headaches with my relapse for over a year. Like getting smacked repeatedly with a 2x4, back of head, top, front, where ever. I'd wake up with it.

Kudzu tincture not only has stopped the severity of them even starting, but shuts all headaches I have down in less than 30 minutes after taking it.

Cheap enough to try and I think it has other benefits.

1000Daisies, send me an email.