Does anyone else have burning skin?

Welcome everyone who is new. This is the very best board for getting answers to your many questions and not feeling alone with crazy symptoms. The mods are so wonderful -truly experts at this confusing disease.

I haven't had burning in a while but before I was reinfected and didn't know I had Lyme (was told fibromyalgia) I would have many 'hot' feelings. One time it was from my face and down my neck and arms and I was sent to a neurologist. Who did immediate scan - I was 100% fine :) That one was scary. It seems to have gone away.

You can get better - hang in there everyone.

It could be nerves ...it could be medicine ...for me its bartonella ...what he on ..do you have a llmd ...how old is he ...? Does it feel like matches .. does it feel like pinches ?

Hi John's Mom - welcome to our community!

I'm sorry your son has lyme - but I'm glad you found us here.

You are wise to ask about a Lyme dr. We can help you find one. For members' recommendations, you can start a new thread titled: "Looking for Pediatric LLMD in/near_____" and fill in the blank with the nearest larger city.

(LLLMD = Lyme Literate MD)


We encourage all new members to take a look through the 'New to lyme?.Start Here!" thread (it sits at the top of the page) - lots of good information in there.

So your son was only prescribed one month of antibiotics?
How long do you think he has had lyme disease?

Do you know about detoxing? This is something very important - when the bacteria dies off - it creates endotoxins, which causes inflammation in the body. This results in a herxheimer reaction (a ramping up of current symptoms, and sometimes new ones appear).
The best way to remove those toxins, is to detox.

Here is a link to a site with a lot of great detox ideas:


www.tiredoflyme.com/detox-methods.html


Start with a few methods and every few days add in another one...until he is doing multiple detox methods daily.
Here are some:

- Drink 8 glasses of water daily
- Squeeze fresh lemon juice into some glasses (drink with a straw so not to damage the tooth enamel)
- take warm epsom salt baths
- dry brush the skin before the baths
- support the liver - eg. milk thistle extract

Is your son taking probiotics everyday?
(for gut health)

Hi John's Mom!
Welcome to our community! I'm so glad you found us.

You've been given a lot of really good information already, but let's see if I can add some more, as it really doesn't sound as if your son has had enough treatment for symptoms to be returning so soon.

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at medicalinfo@tbdalliance.org​ for LLMD referrals.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And www.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf

I'm glad that you found this forum to be helpful!

Please ask any questions you have...that's what we're here for!

Hi everyone,

Has the burning skin improved for anyone?

My legs, arms and back are burning since September

I really hope it goes away

KaraNH,

I was not on this original post, but burning was one of my worst symptoms - miserable and anxiety-provoking. Yes, much improved. That doesn’t happen much anymore unless I am exposed to mold. Treating Lyme/co with herbs, mold avoidance, parasite treatment and TUDCA are what I credit for dealing with that, especially the last 2.

Did it go away for you?

Kara NH said...
Hi everyone,

Has the burning skin improved for anyone?

My legs, arms and back are burning since September

I really hope it goes away

Yes - mine has improved immensely over the years of treatment