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Lyme Disease
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Posted 8/16/2017 9:53 AM (GMT -5)
Hey all, I saw DR MR in Seattle last month and have my next appointment with him today. Anyway, he confirmed my Lyme diagnoses and also suspected Bart, so I started the ABX bart of mino and rifampin.
Throwing this email out for some of the experienced veterans here as I would love your advice on my protocl and answers to the questions below.

After the first three days I herxed pretty bad, then it evened out. Then after a week I felt pretty good, then after two weeks I felt like crap. Now I feel aches and pains all over and my neuro symptoms are elevating. It's all I can do to sleep 6 - 7 hours and I feel my anxiety and stress building. Also, he had me take the IGenix Lyme test and I was positive on 3 bands IGM and 1 band IGG (All double positive). Does this mean anything?

Hmm, so I'm starting to look into the classical pearls as an option of treatment if this pain keeps up. Anybody know how long you feel like a garbage while on ABX? Also, I have 4 kids who are mostly asymptomatic and my wife who is asymptomatic...but should they start prophylactic treatment of herbs plus astragalus?

What are the best sleep ideas without getting addicted to sleep meds? Also, anyone have any questions or things I should be thinking about? Yes, I take probiotics daily, along with detoxing tea, curcumin and charcoal at night. I also detox bath and work out 3 x a week.

Last thoughts: I am also taking an herbal biotic that includes teasel along with the buhner core and bart at about 1/3 strength just to keep these demons down. GF DF diet as well.
Posted 8/16/2017 10:07 AM (GMT -5)
The one thing that no one told me right off the bat was, Patience! Lyme takes some time. It is not like a disease where you take the meds and you begin to feel better. You will go through ups and downs as the bacteria waxes and wanes and as you create dead bacteria the toxins build and are eliminated.

It takes patience. And for me, that was the hardest pill to swallow.

Sleepwise, you are going to get a lot of answers. You will get a lot of answers to any lyme questions really. There are not absolute treatments with lyme. We all search and search and try and try until we find what works for us. It is a highly individual disease. No one with the same body, symptoms or same treatment.

I had to use Benadryl children's liquid on and off for about a month. I took the amount for an 11 yr old and it was terrific for me to get to sleep. I also did a lot of other things too. Meditation, breathing exercises, herbs.

Sometimes it is not just one thing, it can be a combo.

We are our own guinea pigs.
Posted 8/16/2017 2:42 PM (GMT -5)
I have herxes that come out weeks after treating. So I'll herx, get better and then herx again two weeks later. Usually by a month there's no more surprises. It's annoying but hang in there
Posted 8/16/2017 6:06 PM (GMT -5)
Minocycline and Rifampin is a good treatment for Bartonella.

You have been diagnosed with lyme and bart per LLMD MR.

Which bands were you positive on?

Some sleep aids that may or may not work:

L-Theanine, Melatonin, Valerian, Holy Basil, Magnesium

Sometimes a combination of two or more is needed.
Posted 8/16/2017 8:43 PM (GMT -5)
Thanks for the replies, yes it looks like all is on point for now. We'll see how I feel in 3 weeks, if it's Bart, the neuro symptoms should be clearing up by then. The Lyme part will take longer, but I feel great about the progress I'm making even if I don't feel much better, I have faith it's just around the corner.

Great visit, llmd is very positive and extremely knowledable....like a computer almost. But we had a great visit.

I haven't tried melatonin in awhile so I may add that to the mix.
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