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Another positive update

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Posted 10/10/2017 8:51 AM (GMT -5)
Since I found these inspirational when feeling low, I wanted to provide an update. For two months I have been taking the core Buhner protocol as loose, powdered herbs. I mix them all together then scoop out 6G of powder (2G each herb) three times a day. The taste is vile, but I'll keep doing it (sometimes I encapsualte them just to take a break from the taste).

Around the same time I actually got a Bartonella lab that tested positive (first time in 9 years), so we have started ABart, Pekana tinctures, and vital guard. I also had positive MARCoNs (again) so we are treating that with the colloidial silver spray and in a few weeks BEG spray.

Nonetheless, I went from averaging 80-85% and having moderate/severe symptoms off and on daily to 95%-99% minimal symptoms usually just for 30 minutes, if that, in the AM in about 6 weeks.

So far nothing new has happened with 4 drops of the ABart, but I'll keep going slow.

Hopefully this post provides some hope to others. I've been in and out of remission/treatment since 2008 with this last active symptoms cycle starting almost exactly a year ago.

It's "nice" to worry about other normal life things other than Lyme/CoInfections every day. For me the mood/anxiety/depression and constant rumination was worse than any physical symptom.

Jason
Posted 10/10/2017 9:02 AM (GMT -5)

JasonSinis said...


It's "nice" to worry about other normal life things other than Lyme/CoInfections every day. For me the mood/anxiety/depression and constant rumination was worse than any physical symptom.

Jason

Yes! We need encouragement. Finding positive stories was very helpful to me in the beginning. Constantly being bombarded with people's problems instead of solutions was very depressing. And Babs and Bart can cause a lot of mood/anxiety/depression swings.

Glad to hear of your progress, and best of luck!
Posted 10/10/2017 12:51 PM (GMT -5)
Really good to hear. Keep is updated.

Have you used buhner5 before or is this a new protocol for you?
Posted 10/10/2017 12:53 PM (GMT -5)
New to me. First go around was oral antibiotics and shots for 4 years. Second time was the BB1/2 tinctures and other stuff. This time Buhner and ABart.
Posted 10/10/2017 2:38 PM (GMT -5)
Yay, good news, Jason!

Sounds like you're almost there!
Posted 10/12/2017 7:18 AM (GMT -5)
So maybe I jinxed myself. After the 4 weeks of almost no symptoms I've had two days in a row of moderate ones. Guess it's a reminder I'm not out of the woods.

But, I had the 4 very good to excellent weeks!
Jason
Posted 10/12/2017 12:11 PM (GMT -5)
Oh darn! Hope you're back to good days again soon, Jason!

Keep us posted, okay?
Posted 10/12/2017 12:19 PM (GMT -5)
Thanks for the wishes. I think I will be, but it just reminds me how confusing this illness is. I sometimes wonder if the psychological competent of ill-well on again off again is almost as bad as the symptoms.

We'll all get to an area of health that's best for us in the end!
Posted 10/12/2017 12:47 PM (GMT -5)

JasonSinis said...
Thanks for the wishes. I think I will be, but it just reminds me how confusing this illness is. I sometimes wonder if the psychological competent of ill-well on again off again is almost as bad as the symptoms.

We'll all get to an area of health that's best for us in the end!

I sure hope so! I've done this dance long enough!
Posted 10/12/2017 1:58 PM (GMT -5)
You will. Just keep at it and keep searching for the combination that works for you. And, of course, stay with in a while even after you feel 100% better (I find this hard because you feel better and really don't want to take all the medicines any more)

It took me 2 solid years the first go around to see any significant progress with a variety of antibiotics. Then 2 years after that for remission once we found injectable bicillin was helping a lot.

Then the flu shot messed things up again and sent me back for another solid year until I saw some significant improvement. That time it was LDN and BB1/2 that helped the most.

Not sure what caused this go around. But, as I mentioned Buhner seems to help. Not sure yet is ABart is doing anything or is what may have caused this flare up since I increased dosage on Saturday (though I was fine until Tuesday).

The trick is staying well when you get there or at least it is for me.
Posted 10/12/2017 2:41 PM (GMT -5)

JasonSinis said...
You will. Just keep at it and keep searching for the combination that works for you. And, of course, stay with in a while even after you feel 100% better (I find this hard because you feel better and really don't want to take all the medicines any more)

It took me 2 solid years the first go around to see any significant progress with a variety of antibiotics. Then 2 years after that for remission once we found injectable bicillin was helping a lot.

Then the flu shot messed things up again and sent me back for another solid year until I saw some significant improvement. That time it was LDN and BB1/2 that helped the most.

Not sure what caused this go around. But, as I mentioned Buhner seems to help. Not sure yet is ABart is doing anything or is what may have caused this flare up since I increased dosage on Saturday (though I was fine until Tuesday).

The trick is staying well when you get there or at least it is for me.

So your first time it was about 4 years of treatment for you?

One LLMD told his patient (I'm emailing with him) - that most people fail because they just quit too soon...it can take several years.

What was the time frame for that Ranger on Under Our Skin? Someone mentioned 8 years? yikes...
Posted 10/12/2017 4:41 PM (GMT -5)
Yes. April of 2008 to off all meds in apr 2013. But I felt almost 100% in 2013 and the fist few years as I mentioned were filled with ups and downs. Those leveled out and lessened each year.

I do think I stopped too soon that time. The second time I felt I adequately treated. I was symptom free for weeks and if I had anything it was for 5 minutes every few months. My llmd and I felt it was time.

I tend to also it’s time when I begin to forget to take meds because I’m busy “living”. I still take them, just when I remember.

I’ll keep going this time until we’ll after I feel well.

I’m not sure about the ranger. But if it’s bad enough that wouldn’t surprise me.
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