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Lyme disease fluid retention/ all over swelling/ puffiness

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Posted 10/28/2017 11:36 PM (GMT -5)
Hi, I have just been diagnosed with lyme disease. One of my worst symptoms that has plagued me since getting sick has been all over fluid retention and swelling, like a puffy layer on the outside of my skin and more so in certain areas- Face, breasts, arms, neck, legs everywhere! I am certain this is a symptom of the lyme/possibly bartonella, and it has gotten slightly worse since starting treatment and going through herxing. I have not seen many people with this same symptom? Would love to speak to anyone who has something similar!!

Ps it is not from thyroid or minerals or anything like that it is a direct symptom of the infections! Its so very uncomfortable.
Posted 10/29/2017 2:01 AM (GMT -5)
Hi Maggie - welcome to our forum.

I was just noticing the other day that my arms look like they have some swelling - like maybe retaining water. Not the rest of me though.

I wouldn't doubt this symptom is from lyme and/or coinfections.

Do you have a LLMD to treat you?

We encourage our new members to read through the information in the thread - at the top of the page: "New to Lyme?..Start Here!" It's packed full of useful information.

I hope you find this community to be a knowledgeable and supportive group.


BTW - If Maggiesmith is your real name - you should change it. We aren't supposed to display our contact information.
Posted 10/29/2017 9:48 AM (GMT -5)
Hey Maggie.
Yes I also have the puffiness. Mainly just in my legs and knees now on occasion. I did a parasite cleanse several years ago with Himalayan sea salt and black walnut hull capsules. It really worked well for intestinal parasites. Before I did that I was very puffy and bloated all the time. I believe it was a crucial part in getting better in my treatment at the time. I should probably do another cleanse since its been a while.
Posted 10/29/2017 10:04 AM (GMT -5)
I am again dealing with edema of my lower legs. In the past it occurred on my face, too. With treatment it will subside. For now, no pretty flats.

Patty
Posted 10/29/2017 12:52 PM (GMT -5)
Hi Maggie, I've also had this symptom before. Still do to some extent, but not like it was before.

It was so bad at one point that if I pressed a finger on my lower legs it would leave an imprint temporarily. The same doctor who finally agreed to test me for Lyme thought I had gout too. (But I didn't)

It majorly reduced with my change in diet ( i.e., natural whole foods based ketogenic diet w/ some extra restrictions) and a lot of lifestyle changes. - I'm not saying that that's the only answer, I'm sure different things work for different people...

I saw further reduction with beginning herbal Lyme treatments. I still have more puffiness than normal, but it's not nearly what it was before.

Sometimes it's worse than others though. Maybe it is part of herxing for me too & I just never put it together...?...

I do agree that it's a symptom of eaither Lyme or one of the coinfections...
Posted 10/29/2017 7:24 PM (GMT -5)
What's your salt intake like? Table salt is the devil. If you haven't already, switch to sea salt.

Dehydration can cause puffiness, greasy food, carbs, fatty foods, take out food, MSG, eating heavy meals, etc. I notice I get way puffy when I stray from the diet and don't drink enough water. Making paleo crock pot meals has helped a lot. Like, I had fries today. I expect to be puffy tomorrow.
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