2 years ago today I started treatment for Lyme.

Hi Greenie024 -

Thanks for posting and sharing. I'm sorry you're still treating - many of us have had a much longer journey than anticipated. The acceptance eventually comes but it never really gets any easier.

I finally figured out that the less I do or try to accomplish or force, the faster I recover. And it took me about a year to realize how much I had to slow down in order to reach that "healing" pace. I hated every step of the way - I felt useless, lazy, behind schedule, and like I was wasting time.

But it helped and 3-4 yrs later I finally can see a major difference between all these stages of healing.

You'll reach your goal - but probably not on your terms. Lyme & Co doesn't give us that.

Hang in there - please continue posting and letting us know how you're doing.

-p

greenie sounds like my story except i'm over 2 1/2 years into treatment, probably saw 25-30 doctors, had quite a few exams, all sorts of cardio stuff, blah blah blah.

no one understands this disease except those that have or had it. that's why boards like this are important we can't connect with anyone that truly gets it except others in the same boat.

be persistent, stay at it, stay positive and know that during those valleys where the herxes feel like the end of the world and seem to last as long as your life itself that its another step forward to reducing the colony of invaders in our body and taking it back. you and your body are in a fight against these critters and that 's how one needs to look at it not as a sprint but as a protracted war.

happy thanksgiving to all and please be good to yourself there's enough in the world and in our own minds/bodies to bring us down.

Hey Rikky,

Thanks, it is helpful to hear. I hope you keep seeking healing as well. It is so hard to get up and move and keep going. I know I need to process the grief... I started getting very sick just out of college and have lost the time I thought would be my prime. It is so hard to understand that loss and grief unless you've gone through an illness too, just like you said. I have good friends who saw how active and hardworking I was before I fell sick, so they see the toll this has had on my life. But there are also discouraging people who think I am lazy and it breaks my heart. I fight every day just to keep up. I do not want to bring my sadness to the dinner table, so thanks truly for listening. I found out the day before Thanksgiving I did have lyme, so it is a hard holiday for me personally.

10LymeB,
I have been very sick for over seven years. I loss the use of my arm for an entire year, I was effectively housebound for over five months. I could barely walk, brush my teeth or hair... Each one of those things I listed I am doing is after clawing my way back out of Lyme's grasp. It may not be the right time for you to hear it, but it breaks my heart that you could say I should just be grateful for what I have. All of us are suffering, that's why we are on this forum. As a 28 year old, I have only blurred memories of the first five years of my marriage, lost my first job out of college, was unable to work for years, and am finally getting things back together. Not one day is easy.