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Severe scalp/brain burning

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Posted 12/9/2017 6:47 PM (GMT -5)
Hello everyone,

As the title suggests, I am struggling with terrible burning on the top left side of my head. I am in the process of trying to cut down on antibiotics due to hearing loss and tinnitus. The issue is that whenever I try to reduce azithromycin for example, my head feels like it's burning. In addition, I have left eye pain and a nasty headache. I have been battling Lyme, bartonella and Babesia for the last 4.5 years. As a result I have taken many antibiotics, 16 to be precise.

So, if it were not for the hearing loss and tinnitus, I would certainly continue on my current regimen as it allow me to function at about 60%. I started nortriptyline last night to see if this we'll help with the neuropathy. I have been on lyrica and gabapentin in the past when my neuropathy was not nearly this bad. I am wondering if anyone here has experienced the burning on top of their head and or the eye pain. If so, did you find anything to help ease these symptoms? If so, I certainly would love to hear about your experiences. Thank you for sharing.
Posted 12/9/2017 6:51 PM (GMT -5)
Have you been checked by a biological dds?
Posted 12/9/2017 7:03 PM (GMT -5)
Magoo

I have not been checked by a biological dds. I did not know that they existed. Are you thinking there may be a relationship between my dental health and the burning?
Posted 12/9/2017 7:10 PM (GMT -5)
Eye pain I had and oh boy did I have the headaches. The headaches slowly diminished with treatment. Because I was on herbs, I can't say for sure what was the biggest help. I always suspected that Red Root was the icing on the cake, so to speak.

Both my eye pain and my headaches were inflammation.

I have a good friend that is a brain injury nurse and she said that blueberries were good for brain inflammation. So I ate blueberries now and then.

Along with my Buhner herb protocol, I did turmeric, bromelain, Devil's Claw, japanese knotweed (which is in the protocol) and White Willow. I probably left out some.

Most herbs are medicine and not just bark, leaves and flowers. So if you try herbs, check for contraindication with any pharmaceuticals you are taking and always read any potential side effects.
Posted 12/9/2017 7:20 PM (GMT -5)
Peteza,

Thank you for sharing. I have had the eye pain off and on for the last 4 years. It so strange that it is only in one eye. Right now, the burning and headaches are the worst. Thank you for the list of herbals that you used. one day I will hopefully be able to say that I have made the transition from antibiotics to herbals. You give me hope that despite my symptoms, herbal treatment could work for me.

Interesting about the blueberries...wish I could eat a bowl full!
Posted 12/9/2017 7:25 PM (GMT -5)
My eye pain was only in one eye also. Weird huh?

Because of the sugar in the blueberries I really had to limit myself.
Posted 12/9/2017 7:53 PM (GMT -5)
That is bizarre Petza. Thought I was the only one smile. Are you treating for Bart and Lyme by any chance?
Posted 12/9/2017 7:56 PM (GMT -5)
Auroa- yes I would bet big on dental. Many lyme docs start at the jaw.
Do you have much dental work? implants-root canals-crowns?
Posted 12/9/2017 8:04 PM (GMT -5)
I have one route canal and two fillings. I have been having sporadic pain in my jaw but I am not exactly sure what is causing it. Sometimes I wonder if it's TMj and others times I wonder if it gas something to do with my tinnitus and hearing loss. I also have sporadic haw pain. Again not sure how it is all connected or if its connected at all...either way it's not the best of times that's for sure...,
Posted 12/9/2017 8:29 PM (GMT -5)
often root canals or poor wisdom teeth extractions cause this type of issue.
Was the root canals upper or lower? left or right?
Did you have your wisdom teeth pulled?
Posted 12/9/2017 8:36 PM (GMT -5)
I see. My root canal is done on my front tooth. Still have wisdom teeth. Interesting that it could cause burning on my head although there are so many things we do not know about Lyme and friends that anything is possible.
Posted 12/9/2017 8:49 PM (GMT -5)
Many things are unknown.
TCM would relate the front tooth to the bladder meridian. You may google bladder meridian image and see if it sheds any light. I believe it goes right over your head.

Root canals can be a major source of infection-including a dental spirochete. I always wonder if the dental spirochete flags the lyme test?
Posted 12/9/2017 8:59 PM (GMT -5)
Will do Magoo. You know I never thought about that possibility. I don't see why its not possible as far as a dental spirochete flagging the Lyme test but then again, the tests are poor on a good day. Hoping with the new working group some positive changes are coming our way.
Posted 12/9/2017 9:11 PM (GMT -5)
Most don't think of it-but many really good docs do.

The root canal research about harboring infections has been around for many 80 years-one to two inches from brain.

The meridian chart has been around for thousands of years-for me its been spot on. bladder meridian would relate to top of head-it may just be spot on for you
Posted 12/9/2017 9:57 PM (GMT -5)
I don't have burning on top of my head. I get tingling and pressure on the top of my head. I have never had a root canal but I have had crowns. Could that be related?
Posted 12/9/2017 10:12 PM (GMT -5)
Something is causing it.

Crowns sometime simply cover infection.

If you have been fighting this for a while I would suggest seeing a biological dds for a checkup.

I remember how hard it was to live with the tingling and feeling of movement on my scalp. It was a crappy way to live and yes it went away when I cleared my dental infection
Posted 12/10/2017 3:39 AM (GMT -5)
Hi Aurora, I had that for years and kept having tests and scans and everything came back negative. This was before I knew I had Lyme, the pressure and burning on my scalp, my head felt so heavy and swollen in areas, my eye pain was mainly in the right eye.

The tinnitus and loss of hearing started a couple of years after that and still comes back if I get really stressed or overtired. Abx didn't relieve any of the above, I am now back working full time with a 2.5 hour commute each day - I can't really do a lot of other things which I why I don't get on here as much as I would like but I am just so happy to be back at work, and need to be able to earn some money to afford the herbs etc. as I am still taking quite a lot and high doses as when I try and cut back the symptoms start to reappear.
I take the Buhner lyme and Bart protocol, have acupuncture - weekly at first and now monthly and massage the 11 essential essentials oils that help fight Lyme disease.

Frankincense, Tea Tree, Cinnamon, Thyme, Marjoram, Oregano, Clove Oil and
Rosemary, Lavender, Rose, Geranium – These four essential oils in particular are known for their ability to stop the infectious borrelia from communicating with each other. Therefore, they are helpful in preventing relapse or reactivity in the long run.

I mix the oils with a bit of good olive oil as the carrier oil and just rub a bit onto the soles of my feet each morning. One day I will be courageous enough to ingest a drop !

I have found that Isatis, Houttuynia, Alchornea Cordifolia and Sida Acuta really helped push these symptoms away, it took a good few months but I noticed the difference and some relief almost immediately. Gou Teng for the neuro symptoms has been a must for me too as well as vinpocetine for the hearing and huperzine-A.

Post Edited (Suzee) : 12/10/2017 1:42:40 AM (GMT-7)

Posted 12/10/2017 9:27 AM (GMT -5)
Good morning Suzee,

So interesting that you have had similar symptoms. There has to be a connection between the eye/burning scalp/headache symptoms.

Glad to see you were able to return to work although that commute sounds brutal.

Has the acupuncture helped much with your neuro issues? I have had a couple of doctors suggest that I try acupuncture. I am certainly not opposed to giving it a shot, just a tad concerned about the possibility of infection. Given the amount of antibiotics I have taken, I would just be concerned about getting an infection that would not respond to the antibiotics. Probably paranoid on my end.

The Buhner Lyme and Bart protocol seems like something I should check out. I just started doing beyond balance mc bb 2 and will need to weave in mc bar 2 soon. Basically, I am willing to try just about anything to relieve the burning scalp, eye pain and headaches as I too have to work. I have been lucky enough to do this over the last 4.5 years but would hate to not be able to function enough to get to work.

Where do you source the essentials oils and herbs? I am just wondering if it's something the local health food store may carry or is it from a particular company that I should be looking into? Thank you so much for the detailed post. It gives me hope that I may be able to make this switch from antibiotics to herbals in time.
Posted 12/10/2017 2:59 PM (GMT -5)
I source my essential oils from a supplier here in the UK. Are you in USA ?? Acupuncture has helped but I wouldn't have wanted to try it until I got to a certain level of healing and strength. Some weeks it does wipe me out and I have gone from weekly appointments to every 3 weeks and find it better.
Posted 12/10/2017 5:39 PM (GMT -5)
I see. I am in the states. I have heard that about acupuncture, some people swear by it and others report lots of herxing. I am just looking to try new things because it is clear that antibiotics alone will not get me beyond 65%.
Posted 12/10/2017 9:05 PM (GMT -5)
I did acupuncture for about a year and it did not help my head tingling at all. But everybody is different. It might help you!!
Posted 12/10/2017 9:15 PM (GMT -5)
Thank you aphysicalwreck. Love your name btw....it reflects what I feel oftentimes. It's a long road but one worth traveling. At this point I am thinking what have I got to lose? Some of the treatments out there I would not have considered pre-Lyme. Now, I look forward to giving them a shot. If nothing else this disease has forced me to be more open minded and for that I am grateful.
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