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Posted 12/12/2017 5:24 PM (GMT -5)
Hi everyone i need some feedback or oponions .....i have been hanging on by a string literally not able to eat ,naseau,lost so much drastic weight ,insomnia,heart racing shaking ,gasping for air in my sleep ,mind racing ,pacing back and forth not able to think straight so i went to get a second oponion she was a ikads trained pschiatrist i paid 800.00 to walk through the door she said she did not like igenix labs that they come back false positives and that mdl labs out of nj is wsy better an accurate ...she said she believes i had lyme but now it is the aftermath of my neurotransmitters being off even though it shows i have babesia and bart i believe as coinfections through igenix....so i went back to my old dr because i was deseperate asked to be put on flagyl low dose to start 250 mgs i stopped all other abx which were clindamycin,bactrim,cefdinir and diflucan ...my old llmd said i do have babesia and bart but the llmd before him said no bart just babs i am so confused can not get a straight answer from anyone do these drs even know!Any way staryed flagyl one pill yesterday and for the first time last night slept like a baby were before i would just pace all night....can anyone explain this is this hitting something ?? Or do i have a bad parasite infection??
Posted 12/12/2017 7:41 PM (GMT -5)
Scooterbug - sounds like you are getting mixed messages..that must be so frustrating.

No - I wouldn't listen about the Igenex and false positives.

I don't know how the one LLMD can say for sure no bart?

What made you stop the clindamycin, bactrim, cefdinir?
Was that the old llmd that had prescribed those?

You might want to try a trial of Mepron for Babesia. How you react to that may be an indication of whether you do have Babesia or not.

I don't know why just one pill of flagyl helped you sleep. Does it have side effects of causing drowsiness?
Posted 12/12/2017 8:08 PM (GMT -5)
Thanks girlie yes i do not know but my heart palpitations went away weird...do not want to jinx myself yes it can make you tired
Posted 12/13/2017 2:47 AM (GMT -5)
Scooterbug-If it were me I'd go with the assumption that you have Lyme, Bart, and Babs. That you tested positive to co infections early on in your journey is a pretty indication that you've got multiple layers to peal. Don't be overwhelmed by that. Most of us either tested negative for co's or didn't test for them to start and have ended up testing positive or reacting strongly to trial doses so we've been in the same boat.

It's not that the dr's don't know. The tests are still not good enough. Babesia for example- the test only tests for 2 strains and yet there are 100's of strains. Dr's have to be cautious of what they say as in some states their not protected enough.

Pick the dr you feel the most comfortable with, and the staff you feel the most comfortable with. Make sure the doctor is willing to listen to your input. That's important. Then continue treating.

My guess is stress helped with your sleep. If good sleep doesn't continue there are some other things you can take that will help. Valerian root, Magnesium, Somno pro and you can have your cortisol levels checked. Mine were upside down so I was the most awake at night. Taking Phosphatidyl Serine Powder has made a world of difference. I actually sleep really well.
Posted 12/13/2017 3:38 AM (GMT -5)
I take that all back was gasping in my sleep again tonight maybe i need to go slower with it every couple days ..

Need some advice?
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