Posted 12/17/2017 3:01 PM (GMT -5)
I feel like I know many of you, as I have been reading posts and learning from all of you for the year and a half since I was diagnosed. I won’t creep you out by mentioning names, but you have all been a source of comfort (sometimes just by knowing I am not the only out here).
In the beginning, I could not focus very long or very well...but I wrote things down and looked them up whenever I had a halfway decent brain day.
I do not have an LLMD. Was diagnosed cdc pos. by western blot and was treated by the only ID that was willing to, in the Miami area (because “Lyme does not exist here” and “Lyme patients tend to be ‘difficult people’). 30 days oral doxy followed by 30days IV rocephin.
They were worried by some vitamin deficiencies and anemia that my blood work showed but, as soon as they pulled my pic line, I LITERALLY never heard from them again—except for calls from billing 😩
Since then, 5/2016, I have been managing and maintaining with a modified Buhner protocol and supplements (plus no gluten, as much organic/non gmo as I can and low sugar). A lot of internet research— often leading me here, to see your posts about whatever I was looking up. I have good days and I have flares...but I felt compelled to let you ALL know how helpful you have been on my journey.