PCP Received Igenx Results/ Lyme, Mold Or Both?

I was just becoming more confident of the lyme and Bart diagnosis I received too. Now the doubts are back and more confused then ever.

Also I believe if you call IGeneX they will mail you a copy. But by then you will have results from doc.

what has worked for me for mold is reduced glutathione capsules, citrus pectin, and now I am experimenting with nebulizing H2O2

also google 'mold + cholestryramine'

Lapis_29 said...
free vision test for mold exposure

http://www.survivingmold.com/store1/online-screening-test

I took this test at home and failed. Took last week at practitioner and passed. My symptoms have not changed. The practitioner did not use test on computer but instead used an eye patch and test was attached to a pole that i held against chin. This made sure I was at the proper distance.

ChickenArise said...
I failed VCS test a while ago. ERMI test is not that much but can only compare indoor environment vs outdoor.

I often wonder if its all Mold or if Bart is at play. It is likely both since it took Doxycycline to make my eyes white again even if only temporarily.

Many different treatments were effective for different aspects of the toxicity. Modified Citrus Pectin is recommended for mold poisoning but its only one piece of the puzzle.

Air sample tests can only compare outside to inside levels of mold. ERMI test is the best test for your indoor environment and well worth the money IMO, especially if you know there has been or currently is a moisture or mold problem.
--------------
Mergirl,

I know you're confused and frustrated. You are where I was a year ago. In all honesty, I believe it's possible to treat all of this on your own without a doctor. All those tests really aren't necessary. There is plenty you can do on your own to deal with the mold, the Lyme, and the coinfections. If I had known a year ago what I know now, I would have done things a lot differently. If you want to know more, just tell me.

Hi Lapis,


Thanks, I did take the online VCS test and did fail. My vision was always perfect up until the last year, Thats when the episodes of blurring, redness, etc started.The results were that it said I did have some kind of mycotoxins or Lyme but it couldn't tell me which. This was even before I saw the LLMD and was still going nuts then trying to figure this all out.

and how would I get a doc to prescribe the cholestryramine. My pcp won't and my llmd won't even listen to my mold exposure concerns. And would that even help if I am still being exposed? I just know nothing for sure here at all. I feel like I'm going to lose my mind soon.

Hi everyone,

So I'm revisiting this thread as there has been some recent developments and still looking for some answers a couple of months later.

First, as some of you may or may not know, I did end up testing positive for Lyme through Igenx after my original post. Been treating for a little over 3 months now.

However, I still strongly believe now more then ever that something else or a few things have caused my final crash. For 3 months now the brain fog, cognitive problems, etc have been horrific. I did end up getting a worsening of a lot of my symptoms which now a few seem to be improving slightly.

However the feeling out of it, memory loss etc is still present most of the time. Tinnitus, etc.

I'm still believing that due to my past and current possible exposure that mold is a big issue for me. The doc's I'm seeing still aren't listening to this especially my current Llmd. I have no choice but to stick with him right now because of my location and my financial situation which is very very dire. I'm now having problems affording food and supplements.

Still living in relatives house because it's still my only option. Recently, some part of the ceiling plaster fell down revealing water stains on the ceiling. This is the same location of the house where I put one of those home mold testing kits a few months ago and some green and white looking mold grew in it. I never sent it in for testing because then I was diagnosed for sure with lyme and I honestly didn't have the 40 bucks even to spend on it when I needed it for meds, herbs, food, etc.

A roofer was called holes in the roof were found and patched up but the plaster has yet to be fixed and don't know when that will happen. My family member does not understand how this could be potentially making me sicker and honestly can't afford to do much about it right now herself. Her priority was to patch job the roof before we get more snow and rain.

I know I had undiagnosed lyme for many years but something caused things to become much more Neuro the last couple of years. This correlates with the roof issue and finding out I was sleeping next to a moldy a.c. over the summer after getting dizzy, even more spacey, etc which had dark colored mold in it. There were other factors too around the same time like a bad reaction to steroids in which I was never the same after before I found out I had lyme. The doc's I was seeing for answers nearly killed me giving me meds to "help ". I believe now my thyroid is also a problem.

I'm trying to save up to see a naturopath but it's taking me much longer then I've wanted.

So for the last few months, I invested in a hepa air purifier for my bedroom and I try to stay in there as much as possible with it. But this is also the same room where I found the moldy a.c. of course that's gone and cleaned around it as best as I could. There's no visible mold but I know that doesn't mean it's not there.

Got a hepa filter for the kitchen , waiting for that to arrive. Also have an essential oil defuser I'm starting to use in both the bedroom and kitchen. I believe the water damage on the roof is more extensive however.

For mold that s probably in my body, been using modified citrus although some days it's hard to fit in it so it was kind of sporatic, recently though I try to take it once a day and doing activated charcoal at night. I believe some of the mold is in my gut but without a doc's opinion I'm only guessing. Definitely has had an affect on my brain and that's what scares me the most.

I feel very anxious and trapped here. I can't leave without money, nowhere to go, etc. I'm so worried I won't get better living in this house. I need a chance here, I need help and no one around me to help.

I still can't remember things or function and when I take my and the fog gets even worse. My llmd told me it's still early for me and I'll get better but again, he's not listening to the situation with the environment I'm living in. He just says mold is everywhere and that's the end of that.

Please anyone, someone, can you help? Maybe I'm just expecting to recover from all of this too quickly? I'm trying to piece everything together. Just came from a sleep study last night because there's definitely issues there though don't know yet if it's caused by these illnesses.

I tried to see if i felt any difference at the study lab in how I feel but only one night. My brain fog was so severe last night I almost canceled and bad while I was there too. Little better there this morning but that s not unusual for me lately.

Walkingbyfaith, if you are still out there and should see this can you tell me how you got through this? I noticed that you mentioned before that you could give me some advice. I'd appreciate it so much. ( I forgot I had even made this thread. I'm scared)

Please can someone help? I'm trying to stay calm but next to impossible lately.

Hi Meregirl,
I would call Medicare and see if mold testing is covered. I would also call your local housing authority to see if they can get you on a housing program since you are on disability and the mold issue where you live now.

It is worth a try.

Try to search this website that might offer some financial help too:

/lymelightfoundation.org/about-lyme/resources-adults-lyme-disease/


I'm glad you have had some improvement and I hope they continue.

Don't give up and remember we are here to talk to.

Take care,Jo

Post Edited (goshawk) : 1/19/2018 3:42:13 AM (GMT-7)

Mergirl said...
Btw, as far as taking the mold tests. I only have Medicare now since I'm on disability and couldn't afford to pay out of pocket for my other insurance. Anyone know if Medicare would cover? Thanks.

My mother has Medicare as she is retired and Social Security age. Medicare did pay for her test through Realtime Labs. When we got tested, the only insurance that covered it was Medicare and Tricare.

BTW, I replied to your other post last night.

i've met a ton of people with tick borne infections who thought they had mold holding them back and i can think of 1 or 2 where it was actually a problem. anecdotal yes but my point is don't hang your hat on it for too long if you can't get solid near irrefutable evidence its a major thing holding you back.

yes alli can not be good if you're underweight. it also sucks with that yucky orange oily discharge!

WalkingbyFaith said...

Mergirl said...
Btw, as far as taking the mold tests. I only have Medicare now since I'm on disability and couldn't afford to pay out of pocket for my other insurance. Anyone know if Medicare would cover? Thanks.

My mother has Medicare as she is retired and Social Security age. Medicare did pay for her test through Realtime Labs. When we got tested, the only insurance that covered it was Medicare and Tricare.

BTW, I replied to your other post last night.

Thanks Walkingby,


Just responded to your post on my other thread. I made a new one since I didn't think anyone would see this one and then I forgot to check off "notify" I guess.

My new name should be Zombiegirl.

That's good to know that medicare covered the test. In full? IS this a test than that I can order myself?

Rikky1 said...
having issues due to mold is a very tricky area to figure out.

bringing in a mold testing company is a waste of time i spent over $4,000 for useless information. the tests only tell you levels and type it doesn't tell you whether they are impacting your health or not. the whole industry is one giant scam.

if you were to ever bring someone in it should be an industrial hygenist. these guys have to get advanced degrees in college to properly evaluate whether mold species in your house will affect human health and most work in the commercial/industrial sector which is where the 'professionals' work.

also doing the mycotoxin testing is also spotty in that if you have levels in your body is it because your body is effectively clearing them or are they backing up? another useless $800 i spent.

i find most people who chase down mold issues are in fact wrong and its something else especially when you have lyme and co-infections. candida is a problem also for those treating with antibiotics in that it produces gliotoxins as a byproduct.

if you want to try an inexpensive way to clear potential mold toxins in your body, try the weight loss supplement Alli its over the counter. does same thing as welchol and cholestyramine but cheaper and OTC.

mold toxins hit the intestinal tract and go right back into circulation unless they bind to fat. that's what these drugs do they prevent your body from absorbing some fat and leaves it in liquid form. the mold binds to these fat molecules and you expel it via your stool.

eat some fat cause that's what will bind to the mold toxins.

its worth a try if you're out of ideas it can't hurt you as all it does is prevent some of the fat in what you eat from being absorbed by your body. you do get some orange oily type discharge in your stools cause that's the unprocessed fat but along with that are mold toxins attached to it.

i'd take a pill 2x/day with fatty food for a few weeks and see if it helps. once again can't hurt you as its primarily a weight loss supplement but the mechanism of action helps to clear mold toxins.

note if you have a problem in your house this won't fix that but if you have mold toxins in your body it will help clear them.

Also, any suggestions where to purchase alli? I'm going to look into it a little more, or try to anyway. Research is not my strong point lately for sure.