Muscle Wasting and the 3 B's

Girlie said...

Mustard Seed said...
I still have a serious lack of muscle in my legs. They look almost like I have multiple sclerosis or something. Haven't been treating Lyme for several months.

Why are you not treating?

+1

Mustard Seed said...
Just took a few months off to give my body a break/pursue other things.

Has it set you back? Old symptoms returning...worsening of current ones?

Or were you able to maintain the status quo?

Hello (and sorry for any cross-posting! New to this forum...)

I'm wondering if anyone has had a muscle or deep tissue biopsy, and if so did it show anything? Anything unusual?? And has anyone tested such tissue for lyme (e.g. PCR)?

I'm trying to find a diagnosis for unusual muscular and neurological symptoms resulting in loss of fat tissue and muscle tissue over the last 5-6 years.

All tests so far (blood tests, MRI, PET-CT scan, spinal fluid) are non-conclusive. Blood tests are now showing elevated CK levels.

Thanks!

What blood tests for Lyme have you done?

I suggest you get an Igenex lymeWB IgM and IgG for $250.
And consider going to a LLMD for an evaluation.

Polaris001 said...
Thanks for the information, Astroman. My GP thinks it is time for a muscle biopsy, so hopefully the next specialist I see will be of the same view.

Girlie, thanks for the recommendations regarding tests. I've recently tested positive on an ELISA IgG and WB IgG (previously all those tests have been negative), but my GP doesn't seem to think my symptoms can be attributed to that as "All 3 assays - ELISA, IFA and WB - need to be positive for a confident diagnosis of lyme disease". I have yet to see a LLMD.

You realize your GP is incorrect, right ?

I had the muscle wasting early on with Lyme.
If I were you, I’d focus on finding a LLMD and forget about the muscle biopsy. (My opinion)