Hi everyone, I've read posts on here quite a bit over the last year but never posted myself.
I'm posting in the help that someone has been through the same thing and or can give me some advice.
Basically, my symptoms started around 3 years ago with dizzy spells where the only thing that helped was sleep, before this I developed tinnitus and what I thought were migraines from the lights at work (kept feeling sick and dizzy with a headache and had to keep going home from work) anyway, my symptoms got worse and I started to feel like I was jetlagged all the time, after many trips to my GP, I got nowhere. they kept saying 'but you have so many symptoms, it’s hard for us to work out what's wrong' they sent me for blood tests and of course nothing came up apart from slightly low iron. After reading a book on self-hypnosis to calm myself down, I felt strangely too calm, I panicked and then I started to get a constant shaking in my chest which drove me slightly mad as I could never fully relax. A friend suggested seeing a homeopath for my anxiety/low mood, I had trouble taking the remedies and she did a live blood test and found out I had adrenal fatigue, she suggested looking for a nutritionist to help with this, I found a local one and she tried to help me but as I had trouble taking everything she suggested, even protein powder, she in the end told me she could not treat me if I couldn't get on the things she suggested. she did start me on a no gluten, no dairy, no sugar and no alcohol diet which I stuck to which did help me to feel slightly better. My homeopath then told me about
a nutritionist that she uses and recommended her as she also had adrenal fatigue. So I started to see the new nutritionist, she was sure I had Lyme disease, she had it herself, so did her daughter and she had treated lots of people with it, as I couldn't afford the tests, she said she would treat me blind and said that even if it wasn't Lyme it would be something similar and the treatment would get rid of it whatever it was. So along with the gluten, dairy, sugar and alcohol, she had me cut out soy, peanuts, corn, rice and started me on the supplements zinc pollinate, slippery elm, colostrum, epa fish oils, magnesium/calcium, vitamin c, acidophilus, enzymes and a thorn multivitamin.
every single supplement I tried to get on made me feel terrible, (foggy vision, headache, dizziness) even at a tiny dose...so far in a year, I have managed to get on the slippery elm, colostrum, acidophilus, epa, vitamin c. all were a bit of a nightmare to get on and I'm still not on the full doses of all of them, also getting on the colostrum caused me to feel like I had flu all the time, achy body etc. but this finally went, my nutritionist thinks this was die off/herxing. I also sometimes have trouble breathing that lasts a few days (I have asthma so this is very scary), blocked ears, tinnitus, a strange feeling in my left calf, a funny feeling in my chest if I walk fast or run, aching joints particularly hips, bloated and painful stomach, clicking knees, foggy vision, a strange feeling in my right eye, incontinence (taking Himalayan salt for this), constipation (taking flax seeds for this) and many other symptoms.
I did get a test in the end with Armin labs (I just had to know what I had!) and came back positive for Mycoplasma pneumonia and Coxsackie-Virus types A7 & B1. Also my CD57 result is low at 50 u/l and this indicates chronic immune suppression which can be caused by a bacterial infection such as Borrelia burgdorferi, Mycoplasma pneumoniae, or Chlamydia pneumoniae. The results also indicate past infection with Chlamydia pneumoniae. but nothing came up positive for Lyme, even though my nutritionist still thinks I have this.
I had a really bad stomach a few times and had to go to A&E twice, both times was prescribed amoxicillin, which strangely got rid of the shaking, it was a bit of a miracle as I thought I would be stuck with this forever! 4 months ago I got to the stage where I wasn't getting anywhere and so I begged my nutritionist to get me on the colloidal silver (currently on 1.5 teaspoons, I need to get to 7!)/biocidin (currently on 2 pumps, I need to get to 3). At first both these were fine and I managed to slowly up the doses of each weekly/every few days by an eighth of a teaspoon, sometimes feeling achy but this went after a few days. I've nearly got to 2 teaspoons of silver a few times now but every time I do, I start to herx and feel terrible. last week I started to get chest pain and went to A&E, they tested everything and it all came back fine...plus another day I had to stay home from work as I felt so bad. I am meant to be taking something called G.I. detox (clay and charcoal) to help with herxing but every time I take this even at tiny doses I get head fog, a stomach ache and a general out of it feeling (which I feel is too much with the achy body, tiredness and the shaking as well) so I end up stopping.
So at present I’m on, 1.5 teaspoons colloidal silver, 2 pumps of biocidin, one slippery elm AM/PM, one acidophilus PM, one epa fish oil AM, one vitamin C AM, one tsp. colostrum AM.
I feel totally helpless and stuck, my husband is really struggling too and finds it hard to support me as I’m so up and down, even though he is trying his best. I'm struggling at work and went for a second opinion through my work Bupa with an infectious disease specialist, (which they suggested as they would like me to be diagnosed by a doctor, annoyingly I could be given time off work if I can get a UK diagnosis but it’s not looking like this is going to happen) who was very patronising and very judgemental. The second I walked through the door he had tarnished me with the 'other camp brush' i.e. people who see nutritionists, wanted to send me for all his tests which included HIV! which he said he was sure I didn't have, said 'that's what infectious disease specialists do' and when I asked him if I did have what it said on the test results, what would my symptoms be he didn't want to answer but said 'seizures' He's also written to my GP to tell them that he's sending me for tests even though I didn't agree to any and has chosen to dismiss my test results from Armin as they were not done in the UK. So this now means that my doctor will not send me for any tests (my nutritionist has asked me to get liver function tests but the doctor says no)
Does anyone know why I might be having so much trouble getting on supplements, if I will get used to the G.I. detox and how long it takes to feel better on the silver? I really do feel like giving up, this is like a nightmare
I feel so alone. help please!