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Posted 3/17/2018 4:17 AM (GMT -5)
So I am in week 2 if horrid neuro symptoms. Been treating Lyme and babesia for a year a a half (babesia not quite as long) and I never felt things were getting much better, still have had this up and down roller coaster pattern. I'd have good stretches and bad. But the past 2 weeks have been hell! Stopped all treatment and hasn't made a difference at all. One of my symptoms is severe panic attacks, usually I can calm myself down but these attacks are beyond intense... having one now and I don't know what to do! Very scared!
Posted 3/17/2018 6:13 AM (GMT -5)
Hi tonyaraven, Boy I am so sorry you are experiencing these symptoms so strongly. Have you ever tried l-trytophan, Dopatone, gabatone and/or ashwaganda.

Maybe beside stopping all treatment, you need to settle down your neuro system. I would also recommend alternating 2 different binders like activated charcoal and zeobind.

Possibly try Jerrnigans antti tox II to help clear the ammonia out of your brain.


The above is what I did back in July when I over treated too quickly and stirred everything up and went into hellish herxing for months.

It took a while to stabilize and plenty of detoxing.

Hang in there I know its been so rough for you but Im hoping you turn a corner soon and your days get brighter.

Remember always check for contradictions and side effects as Im not a medical professional, just from my own experience.

Take care, Jo
Posted 3/17/2018 9:07 AM (GMT -5)
Thanks Jo! I finally fell asleep but woke up still in this fight or flight feeling! This is what I take in the evening which has always helped: magnesium, taurine, gaba, l-theanine, vit d, melatonin and I restarted lithium orotate last night. I take coffee crude (homeopathic remedy) whenever I wake up to try to help calm me back down. I did a bunch of blood work yesterday, like am cortisol, will be so interesting to see what that shows. I think I still have some ashwaganda powder from awhile ago maybe I'll start taking it again. The strange thing is it seemed like the panic was calming down over the last few days and then yesterday I had a cup of green tea like I usually do and the anxiety started back up! This is one of my first symptoms in 2015, every doctor I saw kept telling me it's just anxiety no tried to put me on all sorts of meds! It has not been a problem this bad since then! I'm so confused!
Posted 3/17/2018 10:26 AM (GMT -5)
"I take coffee crude (homeopathic remedy) whenever I wake up to try to help calm me back down."

This is real coffee with caffeine????

And it calms you ?? Were you like this your whole life?

Thats not a normal caffeine reaction, some adhd kids / people are like that - its a gene thing, and /or an unfortunate methalation (detour) which I've read about. Are you adhd?

I realize many here have not ventured into this "area of study". So, If this is the case, Georgia hunter might be able to help out.

i may be repeating on your other recent posts? : Main adrenal calmers are magnessium glycinate, holy basil. Brain calmers : face flushing Niacin and lith-orotate. 5-htp, calms but makes you drifty in larger doses. These are all the "average" effects on most people.

Thyroid level?
Posted 3/17/2018 12:35 PM (GMT -5)
No it's not coffee, it's a homeopathic remedy for insomnia and stress. I started back up on lith-oratate last night along with the other supplements I mentioned. I don't believe I am ADHD, at least I was never diagnosed as that. I do have the mthfr gene though so I know detox is tricky! I know my llmd is going to want to start treating Bartonella, do you think I should do that when I'm already in such a neurological mess?
Posted 3/17/2018 12:42 PM (GMT -5)
Oh..I goggled crudE coffee and its also a trendy coffee brand aimed at oil worker "macho men" LOL:

/www.crudecoffeeinc.com/collections/coffee

I could not find what your taking.

Oh..you must be talking about : "crudA coffee", one letter (A) makes all the opposite difference sometimes!

www.homeopathicremediesblog.com/remedies/coffea-cruda/

Post Edited (astroman) : 3/17/2018 11:48:12 AM (GMT-6)

Posted 3/17/2018 1:06 PM (GMT -5)
woops! yes, coffea cruda is what mine says! No, I apparently can't even handle a cup of green tea right now! Normally I can have a few with absolutely no problem, but this intense anxiety and nervy pain that is just wandering around my body is so beyond awful! I had my eyes checked by my opthamologist and it looks like something is happening in the nerve of my right eye, although he said it could be a normal aging process, or it could be from the Lyme. I keep getting afraid that maybe I have something like MS since it doesn't make sense that I've done a year and a half of treatment and I'm not getting better! Sorry if I am constantly repeating myself in all my posts, I'm just totally lost! I don't know if I should try to see another Neurologist and ask to do the MS tests again or try to be totally on board that this is all Lyme/ co infections and that I need to stay on that path! Just so badly need a good stretch so I can regain some strength!
Posted 3/17/2018 1:15 PM (GMT -5)
well that coffee thing was kinda funny.

I hear ya on the time this takes. I was almost going nuts at my most hieghtend toxic time with this. Dead stuff and to much meds in me at once + candida taking over at the time.

The MS Drs seem kind of cluless- I saw a few. Its another lable, I thought they has MS figured out- nope- its just another guess. Which means its probably really something else. MS society is a big money making company for a disease that cannot be proven.

I went to a MS meeting to learn. What I learned was these patients fell for the cool aid, they cannot think out of the box on rthere own against big pharma and western medicine. Some might be curable- but not with their mind set. I truly feel for them though.
Posted 3/17/2018 1:18 PM (GMT -5)
Are you able to do any exercise? If not to painfull, I would suggest it- its good for the brain too. An easy walk on mowed grass or bike ride. walking on hard surfaces is hard on the body.

Have you tried D-limonene for detox? its cheap and feels good.
Posted 3/17/2018 2:20 PM (GMT -5)
Treating for bartonella might be a good idea. I really don't know, but maybe if being off treatment isn't working, maybe you could get back on. I don't know that panic is always a die-off symptom. I don't think panic is a symptom of MS, so you probably are having symptoms from Lyme and company.

I used to have bad anxiety, but I really don't know what made it go away.
Posted 3/17/2018 5:43 PM (GMT -5)
Astroman- yes I guess MS, Fibromyalgia, Lupus are all these mystery diseases. It's so, so sad that it has to be all about the Big Pharma and the money. I wonder if things will ever change, or will things just get worse with these unexplainable diseases! Obviously something is attacking the nervous system...sure makes sense that it could be from a tick or other disease causing insects. Things just have to change with the views on Lyme disease. As far as exercise goes I've always been super active, running, yoga, hiking. So, I try to still push myself to at least do a walk, but it makes me sad that I was so very healthy before all this!! I will get some D-limonene, keep meaning to ask my llmd about it. Thanks for all your inputsmile

Notime4lyme- first of all I love your name! I have no time for lyme either!! What did you do for your bartonella treatment? Glad your anxiety went away, I so hope mine goes too!
Posted 3/17/2018 6:09 PM (GMT -5)
Talk to your doctor and see if they will prescribe you clonazepam (Klonapin). I have Lyme and Babs with almost all my symptoms being psych with anxiety as #1 symptom, and I cannot tell you how much it improves my quality of life. I was on a very small dose before I had Lyme due to having some anxiety issues at my baseline, but recently increasing the dose (plus improving my detox) has made all the difference in the world. Some doctors aren’t keen on prescribing benzos (the class of drug) but it’s been a miracle drug for me. Prior to Lyme I took .25mg twice a day (which is a super small dose) and now I take .50mg up to 3x if needed.
Posted 3/17/2018 8:21 PM (GMT -5)
I actually did get a prescription for Klonapin. I tried .25 and almost 2 hours later had a real bad panic attack! Meds often seem to do the opposite for me! I'd love if I had something I could take when things are really intense.
Posted 3/18/2018 3:23 PM (GMT -5)

tonyaraven said...
I actually did get a prescription for Klonapin. I tried .25 and almost 2 hours later had a real bad panic attack! Meds often seem to do the opposite for me! I'd love if I had something I could take when things are really intense.

.25 is a very small dose and may not be enough to get you relief. I had to increase my dose for this reason. The med takes effect usually within 30-40 mins. It is possible that your anxiety and panic are overwhelming the med vs. the med itself causing it. Just a thought.
Posted 3/18/2018 4:05 PM (GMT -5)
.25 isn't going to do anything. You need at least 1mg several times a day, if not more. Talk to your doctor!
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