Dizziness, off-balance?

Yes it was my fist symptoms but have go away for several months. Started to treat late December.

I suppose as you treat they can pop up again.

However my ENT + found a closteatomo in my inner ear I although they originally saiid it was too small to cause dizzy/verdigo issues, after he was in there he stated it might have contributed.

I myself think the Lyme was picking on a weak area.


Normal ENT will not look for this. Find a nerotoligest. They specialize in inner ear disorders.

Serfr

I don't have any answers but I can tell you that you are not alone. I have very similar symptoms to yours. Off balance, lightheaded feeling, occasionally a dizzy spell, head pressure, head tingling, fatigue, etc etc. I unfortunately can't seem to get better.

Are you in treatment with a LLMD? I see that you have been in treatment for a long time. I can't believe after 2 yrs of abx and all the herbs that you are still sick. It's very discouraging and depressing.

Hopefully somebody else on the board can help you. Have you done any detoxing? Also, did you have Lyme testing done? Do you definitely have Lyme or co?

What did the mimosa pudica do to you?

Youre symptoms are the same as mine were.. including 1 siezure.. I was DX'd with jeuvenile epilepsy by a neurologist that doesnt believe in lyme and prescribed depakote for siezure control/twitching along with a med called serc for the dizzyness.. these have helped massively in regard to these symptoms.

I am sure however all this is lyme related as all my symptoms started at the same time and I have tested positive for lyme
Also epilepsy doesnt explain the rest of my symptoms but the meds do give me relief.. I plan on getting the lyme under control and coming off the rest slowly.

Dahlias said...
That was one of my worst symptoms too. It came along with all kinds of sensory disturbances. It's better than it was but still comes and goes. I think mine was related to inflammation somewhere in the nervous system. Have you tried targeting inflammation along with treating in general? My doctor suggested a combination of turmeric/curcumin, omega-3 and vitamin C.

Reading all these posts, especially this one, makes me wonder if the dizzyness is related to excess histamine or mast cells. I've been reading a lot on that lately, as I've been horribly worse for over 3 weeks now with symptoms that are new for me. Dizzyness is one of them, although I only had brief spells of that so far. My 3 week decline started with my last menstrual cycle. I've been having ongoing menstrual signs since and found out today there's a relationship between female sex hormones and mast cell issues.

Here's a link to an article. See if you have any of the other symptoms listed. Since most of you said nothing has affected this symptom, it might be worth considering.

Quercetin and Vit C are supposed to be very helpful, but there's a lot more to it, like food triggers. Also, bacteria in the gut can produce it's own histamine, compounding the problem. Leaky gut can also be a factor.

/www.amymyersmd.com/2017/10/everything-you-need-to-know-about-histamine-intolerance/

Thanks everyone. I remember when i first got sick 5 years ago, it all started with horrible acid reflux in my throat. Any bit of food was extremely paimful. i was put on PPIs and antacids for weeks, months. That and then 2 yrs of abx probably destroyed my gut. For supplements i take D3, C, Iron, E, Lions Mane, Calcium, Collagen, Fish oil, and a "multivit/mineral 50+". Dizziness is worse upon waking, and getting up from sitting, but subsides a bit through the day, but then the cycle repeats the next day.

Serfr said...
Thanks everyone. I remember when i first got sick 5 years ago, it all started with horrible acid reflux in my throat. Any bit of food was extremely paimful. i was put on PPIs and antacids for weeks, months. That and then 2 yrs of abx probably destroyed my gut. For supplements i take D3, C, Iron, E, Lions Mane, Calcium, Collagen, Fish oil, and a "multivit/mineral 50+". Dizziness is worse upon waking, and getting up from sitting, but subsides a bit through the day, but then the cycle repeats the next day.

Same with me! Mine is horrible during the night if I get up to use the bathroom and then really bad in the morning or when standing up. When I first wake up (or wake up during the night) I literally have to grab walls I can't walk straight. I've had this since the beginning of getting sick.

Please let me know if you find something that clears this up.

Ditto! Loss of balance was one of my first and worst symtpoms. It started with short bouts of dizziness then within a month progressed to constant boat rocking dizziness. I started treatment at the beginning of Feb
My balance improved a little - I still have to focus on each step I take.

Its a frustrating journey, as my balance got bad again 3 days ago. Im hoping it wont get as bad as it was at the beginning of this crazy journey.

Have you looked into POTS? Positional orthostatic tachycardia syndrome? I had a tilt table test and it was positive. It explains why its so much worse after lying down. Maybe something to look into?! From what Ive hesrd POTS is very common in Lyme patients.

POTS is autonomic dysfunction. I think you definitely have POTS. i have known a couple people that had it go away once they recovered from Lyme and co. The socks help, and so do salt tablets, or electrolyte water. I had it so bad at one point I couldn't stand for more than a couple minutes and my body would sway... my vision would bounce...etc. sending healing thoughts. How long have you had autonomic dysfunction?

That's a crazy story. I can't believe what can trigger Lyme. I feel mine was stress...

You are an incredibly talented artist! Keep up the good work - I will pray your body becomes more and more capable

Beautiful artwork Serfr. You are so talented!!!!!

Dahlias said...
That was one of my worst symptoms too. It came along with all kinds of sensory disturbances. It's better than it was but still comes and goes. I think mine was related to inflammation somewhere in the nervous system. Have you tried targeting inflammation along with treating in general? My doctor suggested a combination of turmeric/curcumin, omega-3 and vitamin C.

This is my hunch as well. CNS inflammation. I've taken Pinella in the past that made the symptom go away for several months. Ordered more, hoping for the same success.