Hundred bendryl and still didn't sleep

lotsofbites - I'm sorry for all your suffering.


Please do not take a whole bottle of medication again....please!!!


I was tested for sleep apnea,and i have mixed...some central and some obstructive.
I tried the CPAP, and it didn't help me either...in fact it was worse...as when I woke up in a panic gasping for air...I had to rip off the cpap .

I did read that there is a CPAP particularly for the central sleep apnea. I don't know much about it...but maybe that's an option to try.

Besides the CPAP, there is also an appliance that you can have made..that changes the position of your jaw while you sleep to open up the airways better.

lotsofbites, I just want to add in that I'm also very sorry for everything you're going through. I hope that you have at least one person close to you that will give you morale support. If not, hang with this group. At least we can understand some of what you're going through.

I did the sleep study and they said I don't have apnea, but I have hypoxia and at night stop breathing a number of times every hour.

Mine was caused from improper anesthesia during a surgery and as a pain interceptor afterwards. Referencing poor sleep patterns but separate from having insomnia.

But back to you....I was turned on to an herb, a tincture, called Avena Sativa. It's made from the milky tops of oats. Last year it helped me through a plethora of hell on earth. I no longer wake up and go into anxiety attack, common stress doesn't seem to bother me much, I'm dealing with it like I did pre-infections.

It is comparatively inexpensive it's most definitely worth trying.

As for insomnia, try whatever bedtime activity put you to sleep previously, whether its' white noise from a fan, tv, massage or whatever. I too have had too many wide awake nights, and that awful way you feel the day after is not fun. I have to get strict with myself and change my routine. I used to do a self-hypnosis routine to be able to sleep until I got to where I didn't need it.

Posts here in the past make diet suggestions, particularly timing in the evening.

Post Edited (julymorning) : 5/31/2018 11:52:05 PM (GMT-6)

sandyfeet said...
july morning - Can you elaborate on what you mean that your insomnia was caused by improper anesthesia? I suspect that some of my symptoms predate my lyme infection and may have started after a surgery I had one year prior to infection.

I have heard of the milky oats but haven't tried them yet. Thanks for the suggestion.

lotsofbites - I am sorry to hear the insomnia is so bad. I've been dealing with this for some time as well. I believe, in my case at least, that it is due to both bartonella and babesia which each seem to cause their own unique form of insomnia. Are you treating for co-infections? I also gained some weight while I was ill but untreated. The weight seemed to come off fairly easily with treatment, I'm not sure which infection was messing with this but again I suspect bart/babs.

Sandyfeet, if you enable your email I'll answer you there. It isn't my insomnia that's a result of the anesthesia, it's the fact that I'm now on oxygen 24/7. So it's pretty well off topic here.

I have not tried bioresonance or been to the Hansa Center.

I did start on lower doses of melatonin and then just go so desperate I was trying anything.

have you tried trazadone? that can knock you out quickly and may help you sleep long but that's depending on the individual.

you may have treatment resistant insomnia. my wife has it. she's tried everything and i mean everything and only trazadone gets her to sleep but not for long.

maybe you still need to treat your infections.

Hello fellow insomniacs.
lotsofbites sorry for your tragic loss. May your brother rest in peace.

I've been suffering from terrible insomnia for almost 2 years now.
The benzo's and antidepressants didn't help at all.

Here's my current minimum sleep protocol:
Take these about 2 hours before going to bed so you have enough time to empty your bladders.

1 alcohol free beer (the hops really helps)
1 tea spoon valerian root tincture
20 drops hawthorne tincture is also supposed to help with sleep (probably by relaxing the heart)
garlic capsule (anti-inflammatory)
magnesium powder (relaxes the muscles)
californian poppy tincture (really helps calm the nerves) and/or a tea spoon of regular poppy seed oil.
Go to bed early even if you don't feel tired
1 tea spoon cod liver oil (vitamin d, vitamin a, anti-inflammatory omega-3 fatty acids)

During the day you can try some organic green tea, skullcap, ashwagandha, vitamin c (lemon juice) and similar.

Post Edited (insomniaaa) : 6/1/2018 5:42:08 PM (GMT-6)

I'm sorry you are suffering.

Don't worry if you sleep a lot. Top athletes sleep a ton per day. If you can workout then you're doing better than me and it will usually help u sleep after.

But I know insomnia and the attached inflammation, cortisol, weight gain is terrible suffering, I'm sorry for you as I experience it also.

I battle with insomnia and sleep apnea.

I have a mask and machine ResMed 9 series VPAP ST and nasal pillow. It's like one level up from CPAP full mask, but not top of the line but adequate for my central + obstructive sleep apnea I assume. I can't tolerate full mask CPAP, makes it worse, nasal pillow is MUCH much more comfortable and quiet.

Here's what I do:

I turn off all electronic lights in the room, even small led monitor lights, better if I unplug wifi router too and cell phones off.

I take Trazodone 50mg (just ran out actually d'oh and was taking halfs of those to make it last 25mg) along with Hydroxyzine pamoate (50mg capsule). I actually got more than 6-8 hrs one night in a long while with this.

And when I'm really really desperate for sleep, and I'm cycle off of everything else I will take 500mg or so of Phenibut but I don't recommend this as the downregulation or coming off of it is really hellish, however the first day is a rich oxygenating refreshing sleep honeymoon and then a space glow the next day. Don't want to oversell it because the withdrawal is BAD.

Melatonin (u only need like a tiny .3mg of it or less as people here are saying, it is just a triggering hormone)

Hope this helps, not out of the woods here yet either though.

Stay the course my fellow spoonies.

Hello again!

I forgot...I am also on Prazosin which helps me sleep. My LLMD gave it to me to stop nightmares (from PTSD) so that helps as well. But Seroquel would def knock you out...and Saphris is the same as Seroquel but not as sedating. I have literally tried every drug for insomnia.

Dont ever OD on benedryl. Or OD on anything- why would one do this? They print OD warnings on this stuff for a reason.

This has a chemical that blocks choline receptors, messing up your Crebs cycle. Lyme already can mess up the Crebs cycle.

There are many posts here dealing with sleep issues. We need to try these in moderate doses to see what works.