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How long have you been sick

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Posted 7/25/2018 1:33 AM (GMT -5)
Trying to see how long us chronic people have been at it

7 years for me
Posted 7/25/2018 3:09 AM (GMT -5)
Sick since 2013 - sick for 5 years.
Posted 7/25/2018 3:21 AM (GMT -5)
Girlie i didn't realize you were so severe. Im sorry cry
Posted 7/25/2018 5:42 AM (GMT -5)
Bitten/infected March 2016.

Finally diagnosed in Dec 2017/Jan 2018.

Treatment started Jan 2018.
Posted 7/25/2018 6:04 AM (GMT -5)
How is your treatment going, sierraDon?
Posted 7/25/2018 6:49 AM (GMT -5)
I feel like i made progress the past few months, became more functional. Earlier this month i was even riding my bike 3-5 times week, 10 to 20 miles at a shot. i started treating lyme/babesia in January, then lyme/bartonella in March.

this past week or so, havent felt as good tho, not sure if its due to me going back to work or not. i have been trying to minimize added stress, so far it hasn't been a problem with work. still tryin to figure out this herx thing, i don't think i herx often or hard, so not sure if this is a herx or not.

Generally speaking it is going OK or well. When i was at my worst, i was bedridden for 6-8 weeks with flu symptoms, various lyme symptoms. that was in January.
Posted 7/25/2018 7:35 AM (GMT -5)
Bitten June 2005, removed tick, EM rash within a week, and PCP gave me Doxy 200mg/day for 30 days. No Sx.

Spring 2008 odd sx started. Spent next 2 years going from PCP to Neuro, RI Hosp Lyme Clinic (joke), and finally a Rheumy.

Diagnosed by LLMD in March 2010 and started treatment.
Posted 7/25/2018 8:23 AM (GMT -5)
Constant symptoms - 3 yrs, 4 mths

Initial Onset of Life Altering Symptoms - 9 yrs in Sep

Mild Signs/Symptoms of Bart and maybe Babs - infancy/early childhood - 48 yrs

My symptoms even now are by no means as severe as yours or many others. I'm not bedbound or housebound, but I am disabled and miserable a lot.
Posted 7/25/2018 8:24 AM (GMT -5)
How funcrional are you, tickbite?
Posted 7/25/2018 8:41 AM (GMT -5)
about 20 with bart, I also have Lyme and babs but can't be sure when they showed up.
Posted 7/25/2018 10:01 AM (GMT -5)
25-30 years for sure , and maybe another 10 before that as a teen and child. Did not treat or get lyme Dx till 4 yrs ago. Was trying to control individual symptoms before that, which didnt do much after a while.

For some, "time sick" can be a very difficult question to answer, ......when were talking decades and varying degrees of "sick" - not to mention multiple issues that look separate to conventional medicine but can and most likely are related.

Many out there have not been "optimally well" for a long time but continue to function through ups and downs. "ill" does not always bedridden for many, though there may have been times like that.

I fall into the category I just described. I no longer consider myself ill, but I'm certainly not optimally well either.

This only forced couching on me for about a year at its worse point, and I tried my best not to cave into this.

I learned to adapt and adapted well in some cases (no choice), since its been part of my life for so long.

As my signature implies I feel 90% "well" many days now.
Posted 7/25/2018 10:56 AM (GMT -5)
9 years for me. I was having very bad anxiety attacks and a few other strange symptoms for about ten years before that, but I wasn't feeling really sick, so I've been kind of not so healthy a lot of my life.

I think I'm about 95% better now. Hopefully, I won't get a relapse.
Posted 7/25/2018 11:37 AM (GMT -5)
I've been up to 90% well several times in past three years or so, only to relapse and backslide to 75% when I try to wean off ABX. Herbs alone don't seem to be enough to maintain improvements.
Posted 7/25/2018 1:47 PM (GMT -5)
All my life, 22 years
Posted 7/25/2018 3:59 PM (GMT -5)
Hard to say when I started getting sick. I have been dealing with fatigue and stomach stuff for around 8 - 10 years but not extremely sick until the middle of 2016. So I say 2 years and counting...
Posted 7/25/2018 4:05 PM (GMT -5)

Alexandros96 said...
All my life, 22 years

. cry
Posted 7/25/2018 4:30 PM (GMT -5)
Just over 1 year here. Bitten by a tick in late May 2017, symptoms started early June 2017. Diagnosed in January 2018 and started treatment. There have been ups and downs but I've recovered a large amount since January, still a ways to go, but I'm hoping that by the end of the year I'll be doing a lot better. Good luck everyone!
Posted 7/25/2018 5:34 PM (GMT -5)

astroman said...
25-30 years for sure , and maybe another 10 before that as a teen and child. Did not treat or get lyme Dx till 4 yrs ago. Was trying to control individual symptoms before that, which didnt do much after a while.

For some, "time sick" can be a very difficult question to answer, ......when were talking decades and varying degrees of "sick" - not to mention multiple issues that look separate to conventional medicine but can and most likely are related.

Many out there have not been "optimally well" for a long time but continue to function through ups and downs. "ill" does not always bedridden for many, though there may have been times like that.

I fall into the category I just described. I no longer consider myself ill, but I'm certainly not optimally well either.

This only forced couching on me for about a year at its worse point, and I tried my best not to cave into this.

I learned to adapt and adapted well in some cases (no choice), since its been part of my life for so long.

As my signature implies I feel 90% "well" many days now.

I was definitely sick for a year or two before getting "sick" i just didn't count it because i was able to find ways to push through it. When i went down hard and was bedridden/lost my job, that's when i start the clock. So 7 years for me
Posted 7/25/2018 6:41 PM (GMT -5)
30 yrs. Hospitalized at 26 yrs old. Got better...very ill at 40, got better again, came down with pneumonia 7 yrs ago and downhill from there. Diagnosed with Lyme beginning of this year. But....getting better smile
Posted 7/25/2018 7:06 PM (GMT -5)

DonN said...
30 yrs. Hospitalized at 26 yrs old. Got better...very ill at 40, got better again, came down with pneumonia 7 yrs ago and downhill from there. Diagnosed with Lyme beginning of this year. But....getting better smile

Dear God
Posted 7/28/2018 10:18 PM (GMT -5)
14 years
Posted 7/28/2018 10:26 PM (GMT -5)
4/2011 so 7 yrs
Posted 7/28/2018 10:43 PM (GMT -5)
Gosh - reading these posts is heartbreaking - so much suffering we have endured.. it’s criminal
Posted 7/29/2018 4:41 AM (GMT -5)

Donjr said...
4/2011 so 7 yrs

What's your level of function, Donjr?
Posted 7/29/2018 9:46 AM (GMT -5)

DonN said...
30 yrs. Hospitalized at 26 yrs old. Got better...very ill at 40, got better again, came down with pneumonia 7 yrs ago and downhill from there. Diagnosed with Lyme beginning of this year. But....getting better smile

DonN,

The last half of your story sounds similar to mine. My initial onset of life altering symptoms started suddenly at age 39.

I missed a lot of work the first 2 weeks but improved on my own over a few months, but I was never "normal" again after that. New symptoms popped up as the years went by, but I was still working and functional. I had no known tick bite, so doctors had no idea what was happening to me.

In 2015 at age 45, I got bronchitis. That was the straw that broke the camel's back. I spiraled downward quickly into a pit and have never gotten out of the pit. Some symptoms have improved while in the pit, but I have worse fatigue, muscle fatigue, and loss of endurance. Hard to climb upward with that.

It makes me furious that my body is weakened like that. I need to be able to do a lot more physical labor. My dad died last month, so now it's me and my 81 year old mom. We're trying to find a non-moldy house to buy (trying to find a needle in a haystack). I need to be able to do work cleaning and maintaining the house when we get it.
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