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Posted 7/31/2018 11:08 PM (GMT -5)
Hi all

I am wondering whether anyone has been treated with hyperbaric oxygen for longer than the initial 40 dives, and if so, whether the additional treatment made a difference.

I'm considering additional HBOT treatment -- my lingering symptoms are tremors (resembles Parkinson's), muscle/tendon pain and fatigue. I can't get long-term IV abx without moving.
Posted 8/1/2018 6:48 AM (GMT -5)
If I could do additional dives, I absolutely would. It made a tremendous difference while I was doing it. I got worse once I stopped. I would add some other modality while doing the dives though.
Posted 8/1/2018 5:10 PM (GMT -5)
Thanks,Hoagie. I’m leaning toward doing more. Will let you know.
Can’t get my tremors to ease ... Parkinson’s drugs don’t work, either.
Posted 8/2/2018 12:31 AM (GMT -5)

Coconutlime said...
Hi all

I am wondering whether anyone has been treated with hyperbaric oxygen for longer than the initial 40 dives, and if so, whether the additional treatment made a difference.

I'm considering additional HBOT treatment -- my lingering symptoms are tremors (resembles Parkinson's), muscle/tendon pain and fatigue. I can't get long-term IV abx without moving.

How about oral antibiotics?
Posted 8/2/2018 4:03 AM (GMT -5)
Iv magnesium ,pk protocol ,bvt and rocephin finally stopped my tremors .
A friend did 10kworth so 100+dives said bvt outshined by miles
Posted 8/2/2018 5:28 AM (GMT -5)
I’ve taken lots of different combinations of oral abx. Tremors not improving. Have test results back in three weeks. Have been on clarythromycin and malarone for babesia. Guess I may need to ask the question differently...u
Posted 8/2/2018 5:38 AM (GMT -5)
Bluelyme, thank you.
Sorry but did you mean that bvt or hbot was better for your friend?
The iv magnesium is an interesting idea— !
Posted 8/2/2018 9:02 AM (GMT -5)
Do you have or have had exposure to mold or other biotoxins? Do you have CIRS? This can also cause tremors that would not be affected by abx.
Posted 8/2/2018 12:38 PM (GMT -5)
She said hbot hard chamber was not worth it for her ...

But if you havent read about phioph and her story with mhbot you may wanna.

The patricia kane protocol with iv b vits and phoshatydlycholine is as note worthy in helping stop the tremors .
Posted 8/2/2018 5:49 PM (GMT -5)
Thanks so much for your information! You’ve given me back some hope!
Yes, daisies, that was me with the different but similar name — I somehow got bumped off this forum but I’m baaaack, still with the coconut theme 🌴
I’ll look into these ideas — my situation is a bit tricky cuz I don’t live in the USA. I have a USA llmd and work through a couple open minded docs in NZ, where Lyme isn’t present (yet). So iv abx aren’t possible— might b able to get a month but doubtful ..... other iv therapy is possible.
Thanks so much for your knowledge.

Post Edited (Coconutlime) : 8/2/2018 7:06:41 PM (GMT-6)

Posted 8/2/2018 11:01 PM (GMT -5)

Coconutlime said...
Thanks,Hoagie. I’m leaning toward doing more. Will let you know.
Can’t get my tremors to ease ... Parkinson’s drugs don’t work, either.

Treating Bartonella got rid of my tremors.
Posted 8/2/2018 11:03 PM (GMT -5)

Coconutlime said...
Thanks so much for your information! You’ve given me back some hope!
Yes, daisies, that was me with the different but similar name — I somehow got bumped off this forum but I’m baaaack, still with the coconut theme 🌴
I’ll look into these ideas — my situation is a bit tricky cuz I don’t live in the USA. I have a USA llmd and work through a couple open minded docs in NZ, where Lyme isn’t present (yet). So iv abx aren’t possible— might b able to get a month but doubtful ..... other iv therapy is possible.
Thanks so much for your knowledge.

You were “bumped off”?
Was your account deleted ... or?
Posted 8/3/2018 4:59 AM (GMT -5)
Hi girlie.
I should have been more specific. I forgot my password and had my account locked cuz of too many attempts to log in. The site never emailed me when I requested password info. I contacted administrator but
He didn’t or couldn’t follow through.. so I started another account with my gmail email rather than my New Zealand email account and that got me back on to the forum. Sometimes my foreign email address causes problems with USA websites.
You welcomed me a couple weeks ago when I first posted again and I had said I wasn’t really a new member.
I had a similar name ...
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